GRACE'S towering presence has always set her apart, even as a child. However by age nine, her extraordinary height and long limbs were early signs of a rare genetic condition. Grace was diagnosed with Marfan syndrome - a connective tissue disorder that affects multiple parts of the body. The condition affects her cardiovascular system - most significantly, she has an enlarged aorta. Described as being as delicate as tissue paper, her aorta is at constant risk of rupture. Grace told Truly: “Just having that impending doom of my heart could explode at any time. It’s literally a ticking time bomb.” Living with this condition has motivated Grace to spread awareness of this syndrome and she is an active advocate for the Marfan Foundation and works to educate the public. She also spreads awareness using her social media platforms. Grace says: “A lot of people comment that they have Marfan syndrome and they have never met another person with it and realise they are not alone.” Admitting that her dating life has been affected by her condition, Grace is ready to tackle this head on and go on a blind date. With the help of her best friend Ting to calm her nerves before the date, how will the date go?
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