00:0212-year-old Charlie Coco has a rare chromosome disorder and her mum Mel terminal cancer but
00:09they see a future when they gaze up at this dormant star it's amazing it's incredible
00:16before it stopped operating the 120 meter wheel used to glow through the night it burns so
00:22brightly patients at the Royal Children's Hospital could see it and she loved it she
00:26really looked forward to it this week the mother and daughter get to renew a beacon extinguished
00:31five years ago I'm so excited to actually watch her have her moment and be seen and watch her have
00:39the joy of turning on the lights and everyone around her celebrating her and celebrating the
00:44Melbourne star and having that memory that she can look back after I pass it's you know it's hard to
00:51talk about without crying you know it's a really difficult life and so to give them the chance
00:57for a bit of fun to set the fireworks off and light up there and hopefully give some light in
01:03their
01:03life so there's clearly a lot of work that still needs to be done before it's fully operational
01:08but the promise is it'll be ready to go before the end of the year the deeper question is what's
01:12different this time that means it'll be sustainable over the long haul we're a small family business
01:17we're not a major corporation from the other side of the world there's be a lot more care and passion
01:23and this Thursday evening memories will be made for this family and a wish fulfilled thank you so
01:29much we really appreciate it
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