00:00 Eight year old Ellie needs 24/7 care.
00:05 Can you write your name Ellie?
00:07 She lives with White-Sutton Syndrome, autism, ADHD and epilepsy.
00:12 It's a recipe for disaster and what I have to cope with is enormous.
00:19 Ellie's not getting the therapies she needs because her NDIS package was cut by $26,000.
00:26 You can't even get an assessment from a psychologist.
00:30 The NDIA says it's standard practice to request more evidence of a child's disability when
00:35 they turn eight, but Peter says he was never told.
00:39 He says his requests for an appeal were ignored until he contacted the media.
00:44 I was very upset about it because my daughter needs help now.
00:51 Ellie's funding has since been increased but her doctors argue it's still not enough and
00:56 have launched a second appeal on her behalf.
00:58 In the meantime we need to pay bills for her.
01:02 The NDIS is almost like a second job.
01:05 Advocates say Peter is among hundreds fighting months-long battles with the NDIA despite
01:11 repeated inquiries that have promised to resolve the hurdles.
01:15 People are on a sort of perpetual hamster wheel of running around, going to specialists,
01:22 going to doctors.
01:23 An in-depth investigation by Advocacy for Inclusion says it overshadows the good work
01:29 the NDIS provides.
01:31 People have told us their documents have gone missing.
01:33 The report also revealed the story of a client who was forced to sleep in an armchair for
01:38 12 months while waiting for their accessible bed to be approved.
01:43 There are also ongoing concerns the local area coordinators are constantly changing
01:48 and therefore don't know enough about their client.
01:51 We need some attention to the way that the NDIS communicates.
01:56 I wouldn't like anyone to go through it.
02:01 It's very bad.
02:02 A plea for help from those who really need it.
02:05 [BLANK_AUDIO]
Comments