00:03For the Shepherd family, the NDIS changes are just a small part of a much bigger picture.
00:10There's going to come a time in Jack's life that we will have to care for him, which means we're
00:14going to have to retire early.
00:16With Jack having a high rate of developing early onset dementia, we're having to pre-plan our future.
00:22Like many families, the Shepherds are anxious to find out what impact the changes will have
00:27on the limited services available outside major cities.
00:30Without the services that we have, he's going to go backwards and I just don't want that for him.
00:35Providers say the economic climate is already making it difficult to maintain support services in the regions.
00:42Already there's barriers because of the current changes in NDIS with travel,
00:46let alone adding the uncertainty with NDIS cuts happening.
00:50Those trying to work within the parameters of the scheme are worried about what's to come.
00:55It's so uncertain and the stress of that is significant.
00:59While NDIS participants and providers are waiting on more information about how these changes will affect them,
01:07the Federal Government did make one thing clear.
01:10State governments will be relied on to pick up the slack with the WA Government promising not to forget the
01:16regions.
01:17I'm certainly focused on ensuring that regional residents don't go backwards in the level of service provision they get.
01:22A promise this family hopes it can count on.
01:25A promise this family hopes it can count on.
01:25So Music Restaurant is a painful headache.
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