00:00My name is Amy James. I am a proud Wocamore woman and my home is Tennant Creek. I can share
00:11the story with you with my good friend Estella. Estella was born here. So Estella is a Warramungu
00:18and Walpuri woman. She was a little fighter, so she was born with some complications. Estella
00:27came into our family because both Darren and I have a health background and worked in the
00:32local hospital. She'd come in with Grandma and have some of her therapies done. There
00:37came a time where Grandma struggled to have Estella at home because she couldn't have
00:42the resources that she required. She came and saw us one day and said that she'd like our
00:46help growing Estella up. So Estella was coming for a few weeks and Estella is now 19 this
00:51year and she is still with us. What is good about having Estella in your life?
00:58Estella is resilient. She is strong. Watching Estella navigate her world with everything that
01:06has gone on with her makes her the greatest inspiration that I could have in my life.
01:11Estella, how do you stay in touch with your culture? How do you stay in touch with your culture?
01:18We live here. Mainly by staying in Tennant Creek through activities like the Desert Harmony,
01:27going to Barclay Arts. She meets a lot of her family there. Estella requires someone with
01:34her all the time. So finding a care worker to meet your needs, in Tennant Creek at least,
01:41has become very, very difficult and that's where informal supports come into place. So
01:47someone else in the family would be doing that side of the care.
01:51Anything else you say, Estella?
01:53Hi.
02:01There is one thing I know Estella would like and that's for people to see her as a person,
02:08not as her disability.
02:14Estella's grown up here so they forget how old she is.
02:17So she has challenges with that.
02:20And touching. People have this weird thing where they need to pat or touch like this.
02:27And as you can see, Estella really doesn't like that. But we see it with a lot of people.
02:34So I think being treated like you'd want to be treated, how anyone would want to be treated
02:38in an everyday environment is what Estella would like.
02:41Yes.
02:59I think being treated with It.
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