00:00What happened for many years is that a disability, even a serious disability, like the one that
00:09SMA brings, was associated with all the adjectives that are part of the grayer aspect of the
00:16pathology, so to fatigue, to pain, to fear, sometimes to resignation.
00:21There are the parts of shadow, but there are also a lot of parts of light, like in everything.
00:27In this project, people with SMA have the opportunity to implement their light, to work on their
00:35ability to communicate, but also to communicate to the world that having SMA does not mean
00:40just being on a wheelchair, but it also means that through the wheelchair we can
00:45move and we can go into the world with people, to tell through our voice,
00:51our life, what we are and what we do.
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