Kerry Pearce and her son Jensen

A SIX-YEAR-OLD from Waterlooville is just one of no more than 100 people across the world who have a rare disorder.

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Jensen Pearce has Desanto Shinawi Syndrome – a genetic disorder caused by the mutation of a gene – which was only discovered in the last few years.

His mum Kerry is trying to raise awareness of the disorder and raise money for more research.
By Sarah Standing