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Director Siân Heder and star Ruth Madeley stop by THR's TIFF Studio at the 1 Hotel in Toronto to talk about their film 'Being Heumann' and the excitement of opening the Toronto Film Festival with their movie. Plus, Heder reveals working on this film before 'CODA' came out and shares the story of how she connected with Madeley to play Judy.

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00:00Hi, I'm Sean Hader.
00:01I'm Reith Maidley, and I play Judy Heumann,
00:03and you are watching The Hollywood Reporter.
00:13We're going all the way down.
00:14Stand up and let gravity do this.
00:16This is an adventure.
00:17Did you guys get any sleep last night?
00:19No.
00:20I think I got three hours.
00:21Yeah, what are you guys doing?
00:22Did I get here?
00:23I was like...
00:24I just hate my whole face.
00:26Hi, I'm Sayah Rankin with The Hollywood Reporter,
00:28and I am here with the gang from Being Human.
00:31First of all, we have to talk about last night.
00:33Big TIFF opener.
00:36World premiere.
00:37I mean, it was pretty awesome.
00:40I have to say, I think, like, there were so many moments.
00:43I truly haven't been able to watch the movie with an audience,
00:48and especially because it's funny,
00:50and you're sitting in the edit room, like, you know,
00:53my editor and I are laughing.
00:54Like, I think it's making me laugh.
00:56I don't know if it's going to make anyone else laugh.
00:59And then to have, like, a crowd that big,
01:00to 1,200 people in a theater,
01:02and hear those moments where everyone is sort of
01:05getting the joke together,
01:06it was just really fun to see the movie that way,
01:09and, like, have our cast together.
01:10We shot in Toronto and be back here.
01:13It was great.
01:14It was such a special night of celebration,
01:15just sheer celebration for seeing everyone again,
01:19being all together again, and just celebrating,
01:21and being able to talk about what we made.
01:25It's great.
01:25How long ago did you guys start working on this?
01:27I guess it probably started with you.
01:28But were you kind of looking, like, as soon as CODA comes out,
01:33are you like, what's my next thing?
01:35Or how great is that?
01:35I was working on this before CODA came out.
01:38So I actually met Judy.
01:41I had made CODA, but it hadn't come out in the world yet.
01:43And I saw Crip Camp, and there's this amazing,
01:47she's an amazing character in Crip Camp,
01:49where I'm like, who is this woman who's, like,
01:51yelling about lasagna at summer camp?
01:54Like, she's in a Senate hearing.
01:55Like, the most self-possessed person I've ever seen.
01:58And I was, you know, fascinated by her,
02:01and reached out to her.
02:02And so I'd been working with Judy already on her story.
02:06She passed away two years into us working together.
02:09But I had, like, five projects after CODA.
02:11I wrote a bunch of scripts.
02:13I was sort of trying to figure out what was my next move.
02:15And there were a lot of voices chiming in to go, like,
02:19this is what you should be doing.
02:20And I think to tap back into why I tell stories
02:23and be like, this story moves me.
02:25This was something I was drawn to and interested in
02:28before I went on this ride with CODA.
02:31And so it was kind of amazing that it was my next film.
02:34And it feels like it took what I started with CODA actually
02:37up to, like, a whole other level.
02:39How quickly did you start looking for your Judy?
02:42I mean, I knew we didn't have a movie if we didn't have Judy.
02:45Like, I was like, there is no movie.
02:47Like, if I can't find her, then I don't have it.
02:51And I actually found Ruth because I was building a deck of images
02:55with a deck designer to kind of try to sell Apple
02:58on how fun this movie was going to be.
03:00And I'm working with this deck designer and he was like,
03:04oh my God, do you know this woman, Ruth Madeley?
03:06And I was like, I don't.
03:07And he said, she's in this movie when Barbara met Alan.
03:10She feels like Judy.
03:11You have to see this woman.
03:13And so I watched the movie and I was like,
03:15Ruth has this essence that is very Judy-like, you know,
03:27but, like, also I put you through the ringer.
03:29Like, Ruth auditioned many times and came to New York
03:31and we worked together there.
03:33And it was really, like, a great, amazing process.
03:36I owe the guy who did the deck a really big, like, hamper or something.
03:40Richie Burrish.
03:41Yeah, we definitely love him.
03:44Thank you, Richie.
03:46Did you have...
03:48Were you automatically on board to do it in your mind
03:51when you, like, met Sean and heard about this movie?
03:54Or did you have, sort of, certain criteria
03:57or, like, things you wanted to know about
03:59what the movie was going to be, what the set was going to be like,
04:02anything like that before you said yes?
04:05There was no hesitation.
04:07It was like, yes, please.
04:08But, no, it was...
04:09I think knowing that Sean was doing it was a huge excitement for me
04:15just as an actor.
04:16One of my favorite things as an actor is the collaboration with the director.
04:20And, like, it was the best, the best partnership
04:23I could have ever dreamed of in that respect.
04:27But then also to know that Sean wanted to do this authentically
04:32with, you know, disabled characters being played by disabled actors.
04:36That was such...
04:37I've been, like, advocating for that for so long in my career now.
04:41And so to see that be put forward on the Hollywood, you know, level,
04:48that for me felt revolutionary and necessary and really needed.
04:54So, yeah, there was no hesitation whatsoever for me.
04:57But it was just...
04:58I was just so privileged and excited to be part of those
05:01really important conversations about how we get it right.
05:03But also there were so many cast members who had never been in a movie before
05:07or were non-actors or...
05:09And so to have Ruth as a partner who was really experienced,
05:13had been on a lot of sets and could kind of...
05:16I mean, there were so many levels of meta in this movie
05:19where, like, the making of the movie became, like, the protest
05:22where we were kind of, you know, going through the hardship
05:25that they went through in the building
05:27and trying to figure out the collaboration on set.
05:29I mean, making an accessible set is impossible.
05:32Like, there's not...
05:33It's not impossible. We did it.
05:35But, you know, it hasn't been done, you know, on that scale.
05:39And so trying to figure out, like,
05:41there was one accessible trailer in all of North America.
05:44So when we started to look for trailers, it was like,
05:47how do we find this?
05:48Okay, we have to build our trailers.
05:50We have to build our hair and makeup trailer from scratch.
05:52We have to build a ramp village and figuring out, you know...
05:56And it wasn't just wheelchair users.
05:58It was blind people, deaf people, little people, you know,
06:02every kind of disability on our set.
06:04And so to create, like, a set that's working across disability
06:08to take care of people's bodies while we're making a movie,
06:10I think it was a really wild journey.
06:13And to have Ruth as a partner in that, who had been on many sets
06:17and been, like, could also speak in a leadership way to the cast
06:22and go, guys, it's never like...
06:25You know, like, we're creating something new here.
06:27And it was just really...
06:28It was really...
06:29I think it tested us both, actually, as leaders,
06:32which is what Judy went through in the protest.
06:36And it was kind of wild to do it with each other.
06:39I don't think I've ever clung on to anybody as tight.
06:41I was like...
06:42It was amazing.
06:44And I've been on the sets where there's no ramp,
06:49there's no accessible bathroom.
06:50I've been on all of those.
06:51And at the start of my career, I wouldn't have dared or dreamt to say anything.
06:57I would have been like, don't worry, I just won't drink.
06:58Don't worry, I'll just crawl.
06:59Or whatever.
07:01And to be in that privileged position where I could now kind of share my experiences
07:06with other cast members who haven't done this before
07:09and be able to say, no, you can ask to go to the bathroom.
07:14You can ask for that.
07:16That's fine.
07:16And I saw a few of them, like, you know, a bit nervous to ask for certain things.
07:21And it just transported me back to myself at that first part of my career.
07:27And I'm like, no, no, no, you ask for what you need.
07:30And, yeah, we were just really, really happy that it was done in such a thoughtful and dedicated way.
07:39After CODA came out, I feel like a lot of conversations were...
07:42And Marley was, you know, really vocal about this,
07:45kind of the things that Hollywood needed to do to sort of catch up in a sense,
07:49both with, like, the way they were casting deaf actors
07:52and also in, like, accessibility of movies and all that kind of stuff.
07:55You know, I guess the jury is sort of still out in whether Hollywood at large,
07:59like, rose to the occasion that you guys set out.
08:01But I'm curious what, like, this movie,
08:05what sorts of things you want to see people talking about are happening
08:08in the same way that people did after CODA.
08:11I mean, people did and didn't.
08:14You know what I mean?
08:14Like, I think at CODA, like, everyone adopted the deaf clap and it was amazing.
08:18And by the time we won at the Oscars, the whole audience is, you know,
08:22cheering for us like this.
08:23But making real, lasting change where, you know, it's like,
08:27are the interpreters there just when we're there?
08:29And then when we're gone, they go away?
08:31Like, is that how we're working as an industry?
08:34And so I think for us, like, it's really hard to create a map of something new.
08:40And there are things that are inherent in movie making
08:43that are at cross-purposes with disabilities.
08:46Like, there are definitely things like movies, like, time is money,
08:48and you're losing the light and you've got to go
08:50and you're in that location for a limited amount of time.
08:53And a lot of times disability is asking for time and care and like,
08:58hold on, we're actually not going to move on right now
09:01because this person needs to take a break or get out of their chair or stretch.
09:04And, but what it revealed in such an amazing way to me was how inhumane movies are in general
09:12and how movie making in general, like, I destroy my own body on every set that I'm on.
09:18And I was like, wait, we have to learn how to do this in general.
09:22Like, this shouldn't just be for this project because taking care of your people on your crew,
09:29like, I'm just as worried about the guy who's been carrying a Steadicam for 12 hours
09:34as I am my disabled actors because, like, we're human bodies
09:38and we're trying to do a really hard thing in a limited amount of time.
09:41I think it's so, it's such a wonderful privilege to be able to be able to have these conversations at
09:49this level,
09:50like stuff that I know I've been seeing for 10 years in the industry
09:54and then have, be able to show multiple cast members on screen
10:01and talk about everybody's experience and how access is so important across the board.
10:06And also just things like figuring out things every step of the way, like doing a table read
10:12and being like, do we need a braille script for Charlie?
10:15Like, how much is a braille script to make?
10:17Like, mistakes that we made where we sent out, like, PDF sides for casting that, like, blind people's readers
10:24could not read the PDF that we sent.
10:26So it was just a lot of trying to figure that out.
10:29Like, how do you do ADR when someone is trying to put words into their own mouth
10:34but they can't see their performance?
10:35So like, how are we handling that?
10:37And I think the problem solving was actually amazing and really fun.
10:42I loved that bit.
10:42I think that's so many, the history of movie making and production is people are often so afraid to get
10:52things wrong
10:52that they just would rather not do anything.
10:55And the problem solving was like one of the biggest joys.
10:59It was like finding all these different ways of working and, you know, it's okay that it's not perfect.
11:05Let's see what we can do on the fly and, like, get it done.
11:10And we did.
11:11And it made it into the movie.
11:13Yeah.
11:13And that was, like, the beautiful part is that you sort of went, okay, like, in rehearsals, our non-disabled
11:20cast had to figure out how to transfer our wheelchair using cast.
11:24And, like, those transfers and, like, the relationships that formed all kind of made their way into the movie and
11:31there are, like, layers on screen that I think are really fun for me to watch because they make the
11:36film feel very alive.
11:37Yeah.
11:38So fun.
11:39Did casting Mark Ruffalo as the antagonist, was that, like, was he excited to play the bad guy or was
11:49it, I'm curious about kind of how, because normally he'd be on the other side.
11:53Yes.
11:53Well, Mark was very excited to play the bad guy, but also he was like, he's not the bad guy.
11:57Like, the first time we had coffee in New York and he was like, Joseph Califano is not the bad
12:03guy.
12:04And he was actually notoriously, like, a major civil rights activist, you know, not an activist, but he was a
12:12big supporter of a lot of, like, civil rights agenda.
12:15And he worked with LBJ.
12:16He did the Great Society program.
12:19He, you know, supported the Selma March.
12:21Like, he was this good guy.
12:23And in this case, he was like, it's too expensive.
12:26And so I think what Mark was interested in and what I was interested in is kind of speaking to
12:32the bureaucrat who's gotten sucked into the system, who's too fearful to do the thing they believe in.
12:39And I think that's talking to a lot of people right now who know what the right thing is and
12:45have a moral ground, but they're too afraid to act because they're going to lose their, you know, whatever money
12:52for their reelection.
12:54And so I think that was the fun was also for me.
12:59Like, I remember researching Joseph Califano and going to Judy and being like, he was in a really tough spot.
13:05I was like, you could make a movie about Joseph Califano who, like, 100 disabled people storm a federal building
13:11and demand you spend $3 billion in 60 days.
13:16And when I told Judy that, she was like, no, no, I don't like him.
13:20I don't care.
13:21I love that.
13:22He is a villain.
13:23Yeah.
13:24I remember our first day on set.
13:26We were in the CIL and Mark came to visit and it was the first time we met.
13:32And he was like, this is the room I want to be in.
13:33I don't want to be in the government office.
13:35And it was just so great.
13:38And the fact that Sian gave Mark and I that phone call, the Califano Judy phone call, that was so,
13:46so precious.
13:46That's the only thing in the movie that did not really happen.
13:49I know.
13:50I love the fact that when Sian told me, I said, did they ever meet?
13:55Did they ever talk?
13:56And Sian was like, no.
13:58Literally, the second he signed, Judy was like, great, next.
14:02Finally, right.
14:03Move on.
14:04But I really love the fact that we got a creative phone call.
14:08Because they were the same person.
14:10They were both from Brooklyn.
14:11They were both from the same neighborhood.
14:15I love that they talk at the end because it was like what I could imagine he would say to
14:21her about Washington being complicated.
14:23And Judy did go on to work in Washington and be in government and I think suddenly realized that that
14:30activist part of herself who was, you know, building sex tents in the hallway needed to like be in a
14:36different place when she was in Washington.
14:38And before we have to wrap, I did want to ask this.
14:41So I feel like the sex tent is going to get a lot of play.
14:43Of course.
14:44As it should.
14:45Yeah, definitely.
14:46And is that the sort of thing I imagine when you're like making this movie, you're like, this is going
14:49to be a thing people stick on and want to ask about or talk about.
14:51I didn't, but we were obsessed with the sex tent.
14:55So in rehearsal, I was like, what could I do with the cast to like get them bonded right away?
15:00We had two weeks of rehearsal or a week of rehearsal.
15:02And I was like, what could I do?
15:03And I was like, I'm just going to have them get together because everyone had just met.
15:08And I was like, I'm going to make them build a sex tent.
15:10And I'm not even going to explain what that is.
15:11It was the best.
15:12It was sort of like use your own creative vision for what you think a sex tent would be.
15:17Well, it was everyone working together and I had hid stuff around the soundstage.
15:21So it was like we were working in this rehearsal space and everyone had to like build American flag, got
15:27pulled out of the hallway.
15:28I remember Andrew painting with his feet, you know, the foot, you had the foot print.
15:32Andrew took off his shoe and ended up painting with his feet.
15:35Someone made like a blowjob stool.
15:37Yeah.
15:38Very, very, very creative.
15:39I was like, everyone had very specific ideas of like what should be happening.
15:43Yeah.
15:43And then that sex tent, the way we built it, that was the shape of it in the movie.
15:49In the movie.
15:49And I did.
15:50I took my art department in when we were done, my production designer, and I was like, this is what
15:55they made.
15:55It has to look exactly like that.
15:56It has to look exactly like this because this is what a bunch of, a motley crew of ragamuffins.
16:02Ragamuffins indeed.
16:03Build as a sex tent.
16:04That's incredible.
16:05It reminds me of in school when you'd have the science experiment with like the marshmallows and the toothpicks and
16:09like build the statue or whatever, like a real bonding.
16:12Actually the interest, like the support system of the sex tent, that was the real problem.
16:16It was.
16:17Like what is, we had some flags, we had like some lines coming off across the sides.
16:21Yeah.
16:21And a strong foundation.
16:22Yeah, and something broke.
16:23And then we're like, no, it's not strong enough.
16:24That's not gonna last.
16:25Now it's not gonna last two seconds.
16:28Well, thank you guys so much for chatting about this.
16:30I appreciate it.
16:31I'm glad we landed on sex tent.
16:33This is a beautiful place to end.
16:34This is a beautiful place to wrap.
16:35Yeah.
16:35I love it.
16:35I hope every interview ends somehow on sex tent.
16:38We'll make sure of it.
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