00:02Each morning Gaynor Crossan gets her husband Graham ready for the day.
00:09MND has progressively taken Graham's ability to eat, talk and even breathe without help.
00:16We're housebound. We don't go out. Before we used to go to movies, to plays, to concerts, but we don't
00:23do any of that anymore.
00:26We're just going to get Graham up, that's it.
00:29Because he's over 65, Graham can't access the NDIS.
00:34He does receive some aged care support to live at home, but he's been told he doesn't meet the criteria
00:40for the highest level of funding.
00:44So, as costs increase, his carer hours have reduced from an already bare minimum of 14 hours a week to
00:519 hours.
00:52Not even enough to get him in and out of bed.
00:55It's both our safety that is at risk here, because I can't manage Graham on my own.
01:03And the Hamden roar is the sound of the football ground, all implanted into trained spotting sprays.
01:11The knockback came after the government began reassessing aged care packages using an algorithm, which can't be overridden by humans.
01:20The algorithm is something that needs to go, in our opinion. It's just not able to capture what the needs
01:28of somebody is with MND or any other condition.
01:31A federal government spokesperson told the ABC the new assessment process relies on clinical advice to obtain the most accurate
01:40outcomes.
01:41They say the government is monitoring the changes and will refine them as the system matures.
01:46This has the look and feel of the robo-dead experience, and I would hope that government is looking at
01:53it really closely and very quickly.
01:55The worst thing of all is this whole decision is based on a computer algorithm.
02:02How can something like that decide what a person's needs are? It's quite inhumane.
02:11How can something like that decide what a person is? It's quite inhumane.
02:13You
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