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00:00When I was pregnant with Skylar, I did not love her. I didn't buy her no clothes. I almost didn't
00:04want to have a baby shower either. At just 20 weeks pregnant, Shay found out her daughter would
00:09be born with Down syndrome. The doctor didn't say it was a 50-50 chance. It was a very high
00:14chance that she would have Down syndrome. My OB and my high-risk doctor at the hospital both
00:19presented the option for abortion. After careful deliberation, she and her husband decided to keep
00:24the baby. Her dad and I were both feeling a bit embarrassed because this would be the first child
00:28on both sides of the family that is born with a disability. That's exactly why I didn't want to
00:33do a maternity shoot. I didn't feel like there was anything to be proud of. I was always in my head
00:37like, am I going to want to take pictures with her? Am I going to want to show her off? However,
00:41during her pregnancy, she saw signs of hope that her baby could be normal. I was getting ultrasounds
00:46every week my third trimester. I was going to the hospital twice a week. Once for the ultrasound,
00:52the next like later on in the week was for an NST. During all those ultrasounds, they said
00:56everything looked fine. Her heart looked okay. She didn't even have markers for Down syndrome.
01:01But after her baby was born, she immediately knew she had it. We could not believe it at all. We
01:06were in that NICU every single day, twice a day. We would be there for morning rounds and night rounds
01:11because we wanted to hear it at the doctor's mouth about our daughter because the nurses couldn't answer
01:15every question we had. The doctor's news was devastating. Her baby had two holes in her heart
01:20and soon after her liver began to swell. Shay was heartbroken and was left feeling like a terrible
01:24parent. Not everybody can take care of a special needs child. It is mentally draining and it could
01:30be financially draining. It's a lot. My daughter has physical therapy, cardiologist appointment,
01:35hematologist appointment, like...
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