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  • 4 weeks ago

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00:00from this negligence and yet people don't seem to f***ing care. I do. I'm not going to sit here
00:05and allow this to keep f***ing happening. No, I'm going to be using my voice, my platform to demand
00:10systemic change. Just because you're okay the way that the system is doesn't mean the rest of us are.
00:15Living with chronic illness is exhausting and the last thing you need is doctors who don't care about
00:21you. I live with FND, endometriosis, ankylosing spondylitis, autism and ADHD. They're hard to live
00:29with. I'll be for real, like the seizures are just horrible. It's hard enough living with one chronic
00:34illness, yeah, but it's even harder when you have multiple and people just think, well, you're fine,
00:38you look fine. And it's just like, do you know how long it took me to look this fine today? You know
00:42what I mean? Like it's not so easy, so tiring and draining having to deal with it. And yet no one
00:49ever f***ing cares. The healthcare system doesn't care. If you've not got epilepsy, bro, they don't
00:53care. Unfortunately, some of her viewers decided to send her hate online. Some of these people
00:59in the comments who are staff who claimed it's a drama queen. All I was wanting was to be listened
01:04to, to be heard, to not be dismissed and to be treated with the respect and dignity that I am
01:10entitled to. That is the bare minimum. And them staff failed to deliver it. When there's NHS staff
01:16online calling sick patients a brat and manipulative, it proves my exact point. If you're tired of demanding
01:25patience and manipulation, then quit. Us patients are also tired of being abused by staff too. I was
01:31fighting for my safety.
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