00:00When that's selfish.
00:01For having a baby without a condition.
00:06Mommy, did anybody want her food?
00:08I'm coming, Tara.
00:10Oh, our daughter was born with the same condition, like us.
00:14Her bones are like glass.
00:16Oh my gosh, what they gonna do?
00:19My dad was not happy when I told him I was pregnant.
00:22Were you angry with me?
00:24Yes, I got angry.
00:26And social media.
00:28People just went crazy.
00:29Oh my God, where's CPS?
00:31Why is the doctors, why is the nurses letting them do this?
00:33Do you guys want to have any more children?
00:37Hey guys, welcome back.
00:41Let's see what's new with the king and queen.
00:45What is this?
00:47It's like a mommy.
00:50Say, my name is Tara.
00:53Yes, I'm Ash Squad.
00:55And I'm Deja.
00:56And we both have one baby girl.
00:59You gonna say hi?
01:00Oh, oh, oh.
01:01You take my glasses off.
01:03Ow.
01:04Ready to eat?
01:05Ow.
01:06Are you ready?
01:08We have osteogenesis imperfecta.
01:12A bone condition that causes S to break easier than quote-unquote normal.
01:19I'm making one of your favorite snacks.
01:21Our daughter was born with the same condition like S.
01:24The genetic doctor actually told us that any child we have would have OI.
01:30And whether she has OI or not, that did not matter because we have OI.
01:37Mommy's coming.
01:38Mommy is making the food.
01:40While she was in the hospital, she was tube fed.
01:43So as soon as she got home, we just started practicing eating by mouth.
01:49Atara, look at Dada, look, look, look.
01:52The bottle actually took a while.
01:54She actually started eating through spoon first, which is crazy.
02:00That's like backwards.
02:01You see me?
02:02Look.
02:03Mommy, the baby wants her food.
02:08You see me?
02:09You see me?
02:10You see me?
02:11You see me?
02:12You see me?
02:13You see me?
02:14You see me?
02:15You see me?
02:16Atara was in the NICU for a total of 11 months.
02:21So she came home five days before her first birthday.
02:26Coming home just made it way more comfortable and easier because we have the things that we
02:32need here is amazing.
02:35Not having nurses and doctors or machines beeping 24-7.
02:40It's like we actually get to finally be parents to her.
02:45There we go.
02:46There we go.
02:47You want some more?
02:48You're greedy.
02:49So with Atara, we don't really need that much help as far as bathing, changing, feeding, dressing.
03:00All of that, we're pretty much independent.
03:02Just when it comes to lifting.
03:04Yeah, since she got bigger.
03:05Yeah, since she got bigger.
03:06Yeah, since she got bigger.
03:07When you was tiny, we would've done it all.
03:10Sometimes we sit back and think like, is she going to be taller than us?
03:14Because she's like pretty much half her height now.
03:17And she's one.
03:19So y'all want to see me so bad.
03:21Here I am.
03:22My time to shine.
03:23What are you saying to the haters?
03:26Nothing.
03:27Nothing.
03:28Good job, girl.
03:29Good job.
03:30Good job.
03:31Good job.
03:32Because you don't have to say anything.
03:33We got you, girl.
03:35She must, oh I think we had her.
03:37That's what we liked.
03:38Like let's make a video.
03:39Just announced that we had a baby.
03:41You poop on daddy.
03:42Why you poop on daddy?
03:44You poop on mommy.
03:47People just went crazy.
03:49Oh my God.
03:50We have CPS.
03:51Who is allowing this?
03:52Why is the doctors?
03:53Why are the nurses letting him do this?
03:54Look at him.
03:55He cannot even take care of himself.
03:56They would call us selfish.
03:58Yeah, seriously.
03:59Because like why would you have a baby in your condition?
04:02But the thing is, what people fail to realize, we're not suffering.
04:07Look at us.
04:08Like we're just fine.
04:10People are very disjudgmental.
04:12When you see something different, it's like, oh my God.
04:16Or is that, oh, oh.
04:19She's breaking her toy.
04:21Walk me back.
04:22Were you guys trying to get pregnant?
04:24Were you trying to have babies?
04:26We were not trying at all to get pregnant.
04:30Yeah, you know like when you're in a relationship, sometimes stuff just happens.
04:35Yes.
04:36We didn't plan it.
04:37Tell me about your pregnancy.
04:39Every appointment that I had, they told us about the risk.
04:43The baby could affect my lungs.
04:45She could be stillborn.
04:48Like I could have fractures in my hips, back, side.
04:52Towards the end of my pregnancy, my doctors started noticing my blood pressure was skyrocketing.
04:59We had to do an emergency C-section.
05:02And I was terrified.
05:05I had to wait around 3 something PM.
05:08That's when they came to me and was like, the baby is here.
05:12They brought danger in the room with me.
05:14And I was like, yeah, and all that.
05:16Happy.
05:17This is when stuff gets crazy.
05:18Because I see the nurse moving fast.
05:20Cold blue.
05:21Yeah.
05:22Everybody, one in the room.
05:23And they all were like, Deja, can you see me?
05:25Look at me.
05:26Look at me.
05:27That's when I shut down and I just started crying.
05:30So I wake up in the ICU with a tube down my throat.
05:34I was so confused.
05:36I was like, Deja, I'm here.
05:38So Attara is fine.
05:39Because I know that was her big concerns.
05:41The first time I met Attara was the same day I got out of the ICU.
05:48Like she had a breathing tube down her throat.
05:52The doctors didn't know what was going to happen as far as her breathing and everything.
05:57But she got through it.
05:59And we are here.
06:01And we will always be there.
06:03And the hospital Attara has had a few broken bones or fractures.
06:09But as far as being home, she has not had any fractures or anything like that.
06:15Seeing her grow, progress so much, it's amazing.
06:19Because it let you know, like, you're doing a good job too.
06:23How do you feel about telling your friends and family?
06:26I was more nervous to tell my family.
06:29And telling your dad you're pregnant is a bit crazy.
06:33Oh, my dad's calling.
06:35I was sweating.
06:36Yes.
06:37I was panicking.
06:38She hadn't been there.
06:39Hey, babe.
06:40Hey.
06:41Hey, Mr. John.
06:42I was scared of disappointing him.
06:45How did you feel when you found out I was pregnant?
06:49Oh, my gosh.
06:50What the hell did?
06:51When you text me and said I have something to tell you,
06:55but I don't want you to get upset.
06:58I don't want you to get angry.
07:00I knew what it was.
07:01Were you angry with me?
07:03Yes, I was.
07:04I hated you.
07:05Oh, my God.
07:07Oh, my God.
07:08I didn't know you.
07:09I don't even know this guy.
07:10I was kind of scared and nervous knowing that you had a lie and the risk.
07:15It was kind of devastating for me.
07:17But what we're doing right now is what we do every day.
07:20And I see the interaction with them and Atara is afterwards.
07:26She's smiling.
07:29I think the main thing that kept us okay was that we knew that Atara was okay.
07:35Yeah, Atara was always okay.
07:37Our baby is here and she's going to be fine.
07:39She hates clothes.
07:41Whoa.
07:42How'd it go?
07:43We're going to go make some crafts.
07:45I'm actually really excited because I want to be able to, you know, start doing family things outside.
07:52In the middle, we're going to make a crown because Atara means crown.
07:58Do you have a message for parents who may hurt you?
08:02Don't judge a book by its cover.
08:03You look like you see.
08:04We may look like we can't do this.
08:06We can't do that.
08:07Doesn't mean that we can't.
08:09You're not in our shoes.
08:12Atara is not in your baby.
08:15We are her parents and she is thriving.
08:20Are you waking up?
08:21Ha ha.
08:22Hi.
08:23Hi.
08:24Look, you see what you got mommy and daddy doing?
08:26We brought you all the way here and you fall asleep.
08:29Do you guys want to have any more children?
08:32Oh.
08:33He does.
08:36I'd say I have one more.
08:38Hopefully a boy one day.
08:39But if it happens, it happens.
08:41Yeah, I'm still like on the fence.
08:44Right now we just focus on our baby girl, Atara.
08:48Oh.
08:49Oh, James.
08:50And what are your hopes and dreams for Atara?
08:52We'd be the best parents that we can be.
08:54And she will love us just as much that we love her.
08:58Oh.
08:59Don't love it.
09:00Don't love it.
09:01My dream for Atara is for her to always know that she's that girl.
09:08Like she's been through so much.
09:11She can do anything she wants to do.
09:13She can be anyone she wants to be.
09:16Look at the crab.
09:17Yeah.
09:18Yeah.
09:19I'm a child.
09:20Not look at the winter chasing.
09:22See, look at the crab.
09:23Daddy tried to sing a song.
09:25Look at the crab.
09:26I got the crab.
09:27I got the crab.
09:28I got the crab.
09:29I got the crab.
09:30I got the crab.
09:31I got the crab.
09:32I got the crab.
09:33I got the crab.
09:34I got the crab.
09:35I got the crab.
09:36I got the crab.
09:37I got the crab.
09:38I got the crab.
09:39I got the crab.
09:40I got the crab.
09:41I got the crab.
09:42I got the crab.
09:43I got the crab.
09:44I got the crab.
09:45I got the crab.
09:46I got the crab.
09:47I got the crab.
09:48I got the crab.
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