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  • 2 days ago
27-YEAR-OLD single mom of three, Gege, has "bones like glass" after she was born with osteogenesis imperfecta (OI) type 4 - also known as brittle bone disease. Raising three children with the constant fear of falling and breaking her bones is everyday life for Gege, especially since her condition means she stands at 3'8" tall. Speaking from the top of the stepladder that enables her to reach the kitchen counter, Gege told Truly: "I have to be very careful with how I move and carry my youngest baby so that I don't break anything." But Gege has additional challenges on top of being a single mom with a physical disability. Her eldest son, Montavius (9), was diagnosed with autism - and whilst Melaniè (4) has no additional needs, Gege's youngest, Mílani (1), inherited her mom's bone disease. Gege first became aware that she could pass on her condition when she was pregnant with Montavius. However, after her first two pregnancies resulted in her children being born without OI, Gege felt "very confident" that she would have the same good fortune again: "Third time's a charm, right?" Unfortunately, it became clear at her final ultrasound that her daughter would most likely be born with her condition, leaving Gege dealing with feelings of guilt. When Mílani was born, that guilt remained: "I don't want my baby to go through anything that I went through because it's not easy. Repeating that cycle, it felt like trauma to me." Mílani has broken nine bones in total and Gege feels the responsibility weighing on her, even though she was always just "letting her do anything a normal baby would do." To add insult to injury, Gege has been on the receiving end of an online backlash since sharing her family story on TikTok. Many have judged her for continuing to have children - Gege is no stranger to comments suggesting that "having children and reproducing is not for everyone" and that it is "very selfish" to risk passing on a rare condition. Her default response is defiance: "I'm going to do what I want to do regardless, it doesn't matter what you think of me." And that defiance has been challenging for Gege's grandmother, Darlene, and best friend, Cherish, to come to terms with. Both have supported Gege through all three of her pregnancies, watching on with concern as she put her body through a trio of C-sections - but Darlene predicts that raising Mílani will be a "full-time job" for Gege and already has concerns that the baby's bowed legs will require surgery soon. So with Gege preparing to tell Darlene and Cherish that she wants to have more children in the future, will they be ready to support her again, or will her grandma "explode" as Gege expects?

Follow Gege and her family:
https://www.tiktok.com/@gegeemacc
http://www.youtube.com/@iamgegee1696
https://www.youtube.com/@themaccfamily

Category

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Fun
Transcript
00:00I'm not selfish for having kids knowing I can pass down my bone disease and I want more.
00:05I'm a single mom of three and my bones are like glass.
00:09So many people have called me selfish.
00:11Having children and reproducing is not for everyone.
00:14If they want to feel loved by a dog or cat, don't reproduce.
00:18Granny!
00:19Today I'm going to tell my grandmother that I want more kids.
00:22She was against me having a child.
00:25She's going to explode.
00:26How do y'all feel about me having more children?
00:29You got to go brush your teeth, okay?
00:32And wash your face.
00:33Put your iPads down, please.
00:37My name is Gigi.
00:38I have a brittle bone disease, but I still parent my three kids alone.
00:42You want to brush your teeth?
00:44Okay, let me just put this on your face.
00:47I have osteogenesis imperfecta type 4 and I am 3'8".
00:52My 4-year-old is the same height as me.
00:55So this is Milani.
00:56She's 1 years old.
00:58This is Montavious.
00:59He's 9 years old.
01:01And this is Melani.
01:02She's 4 years old.
01:03Okay.
01:04You ready?
01:06Osteogenesis imperfecta is a brittle bone disease.
01:10I have to be very, very careful on how I move and carry my youngest baby so that I don't
01:17break anything.
01:18I need you to go get her walker for me.
01:20Okay.
01:22You're welcome.
01:23My condition affects my bones in my day-to-day life by the way I take care of my children
01:28and the way I do a lot of things around the house.
01:32Why Tevius, I need you to give me the pancakes.
01:36Melanie, can you get the bacon for me, please?
01:38You got it for me already?
01:39Uh-huh.
01:41Plug that up for me, too.
01:42Okay.
01:44It looks like the kids are a lot of help.
01:45What did you used to do before?
01:46They could bring stuff and move around so much.
01:49I would just have to struggle.
01:51Just do it myself.
01:54Tevius, can you pull the baby a little closer to me, please?
01:56Is your mom a good cook?
01:58Yeah.
01:59What's your favorite thing that she makes?
02:00She makes bacon and pancakes and with syrup, with pancakes.
02:07Is that your favorite thing?
02:09Yeah.
02:09My oldest, Montavious, was diagnosed with autism when he was five years old.
02:15He's like the biggest help.
02:18I have two baby daddies.
02:19My girls share a dad.
02:20My son has his own dad.
02:22They are still present in the children's lives.
02:24They're just two hours away, so it's just me by myself.
02:28I would definitely be bound to break if I fell off of this thing the wrong way.
02:36I've broken over 20-something times.
02:40My first fracture happened when I was four months, the same age as Milani.
02:46Ready to play your clothes on, girl?
02:47When did you learn that this was a condition you could pass on to your kids?
02:51In 2016, when I got pregnant, I was 17 years old.
02:55I was not aware that I could pass it down to my child.
02:59When I was 20 weeks pregnant with my son, they ran my blood and they said,
03:03hey, you have type 4.
03:04This type right here is like very high, high risk.
03:09So I had a lot of ultrasounds, a lot of prenatal appointments.
03:15Everything was good.
03:16C-sections went smooth.
03:18Babies came out good.
03:20When I did become pregnant with Milani, I felt very confident that, hey, if my first two are without OI,
03:28she's not going to come out with OI third time's the charm, right?
03:31And unfortunately, we had that final ultrasound getting ready for the birth.
03:36And he told me, hey, there's a chance that she's probably going to have OI.
03:41Literally cried so bad.
03:43I did have a lot of guilt when I was pregnant because she is not going to have a regular
03:48life like her brother and sister.
03:50She's going to have to be cautious of everything that she does.
03:53I'm going to have to be cautious.
03:54The whole thing is super scary.
03:56It's so scary because you do not want to hurt your baby.
04:00And who wants to break a bone, you know?
04:03I don't want my baby to go through anything that I went through because it's not easy.
04:07I'm tough, but seeing it on your child and repeating that cycle, it's like trauma.
04:15It felt like trauma to me, and I'm just like, I'm not going to be able to do this.
04:18How is she progressing?
04:20Honestly, I feel like after all the breaks and stuff, she's getting stronger.
04:26How many breaks does she have?
04:27She's had nine breaks total, but she's very brave and very strong.
04:32She likes to explore.
04:33She is very dare-double-ish caring for her.
04:37It's a challenge.
04:38It's not easy.
04:40I've had that guilt on me, like letting her stand up, and she's broken her ankle before.
04:46And I'm just like, oh my God, that's all my fault because I'm letting her do anything a normal baby
04:52would do.
04:52Just can't do anything any type of way with her.
04:56Does all of this ever feel like just a lot to manage?
04:58After I had Milani, I felt like it was just a lot on me dealing with three kids.
05:04It does get very overwhelming, but I don't regret any of my babies at all.
05:09What judgment have you received in relation to having children with your condition?
05:13People are always questioning me on why am I doing this?
05:16Why am I continuing to have children?
05:18When people call me selfish for wanting to keep having children, that's like probably mentally the hardest part for me.
05:26They're not putting themselves in my shoes as a human.
05:30I'm still human.
05:31So my feelings still matter.
05:35Producers ask the audience, is it selfish to have children if you know that you could pass on a rare
05:40condition?
05:41And I just kind of wanted to show you some of the responses they got and kind of get your
05:45thoughts on what people have to say.
05:47That's so very selfish.
05:49If they want to feel loved by a dog and a cat, don't reproduce is kind of crazy.
05:55Just add the dog and the cat.
05:56Having children and reproducing is not for everyone.
05:59I disagree.
06:01Everyone deserves their own family.
06:03With a physical disability, mental disability, any disability, I feel like, hey, reproduce.
06:09I mean, the world is going to judge you either way it goes.
06:13And you just have to be a very strong individual to do what's best for you.
06:17I just don't let that sound good to me.
06:18I'm going to do what I want to do regardless.
06:20It doesn't matter what you think of me.
06:23I'm still going to have more children.
06:26And I'm still going to be a great single mom to them.
06:30Oh, it's granny.
06:33Hey, school.
06:34My grandmother, she is the one who raised me.
06:39She's very helpful with everything.
06:41We talk to her every day on FaceTime.
06:43Hi, Cherry.
06:44Hi.
06:46Oh, my goodness.
06:48It's Monday, Monday.
06:51Cherish, she's my childhood friend.
06:54We've been friends since we were babies.
06:57She's more like a sister.
06:58Yeah, growing up.
06:59Oh, my goodness.
07:00I'm getting big.
07:02My grandmother was against me having a child.
07:05She was very shocked.
07:08You say, I'm pregnant.
07:09I'm like, I don't know she now.
07:11I don't even know who she talking to.
07:13I was furious.
07:16It's the worry of it.
07:18Each time I got pregnant, she was just very, very concerned about my health and the baby's health.
07:27I see the both, and I know that she's going to need the same surgery that you had.
07:33My grandmother assumed that I would get my toots tied, and I did tell her, like, I don't plan on
07:40having any children right now.
07:42Today, I'm going to tell my grandmother that I want more kids.
07:45She's going to explode.
07:46How do y'all feel about me having more children?
07:49Are y'all scared?
07:49No more kids.
07:51Because, three, you got so lucky.
07:54I did.
07:55But that's, Melania's going to be a job.
07:58I know, yeah.
07:59Like a full-time job.
08:00Yeah, I know.
08:01Don't take a chance.
08:02Well, you just open my eyes.
08:04I get it.
08:05I understand.
08:06You still, to this day, worry about me.
08:09Of course.
08:10I know.
08:10But I have to let you, you know, you do have to let go eventually.
08:14You're a very strong young lady.
08:16You are very strong.
08:18I mean, you blow my mind.
08:20I'm just like, I can't believe it.
08:22Honestly, like, you achieved so much already.
08:24It's like, there's nothing you can't do.
08:26I think you're doing so good, and I'm just so proud.
08:29Thank y'all.
08:31What she was saying about having more kids, you think she can handle it?
08:34I wouldn't want her to do it, but it's not my decision.
08:38She takes very good care of her kids, and she's adventurous.
08:42She'll do what she thinks she won't.
08:45She really will.
08:48I don't have any regrets on having children as a person with OI.
08:52I've achieved a lot of my goals with my children, and I feel like we're living a very peaceful life.
09:02So, I love it.
09:05We're good.
09:06What's impressed you most about her raising these kids on her own?
09:09She takes good care of her, and she doesn't really ask for help.
09:13If she want to go, she going.
09:14If she want to do, she doing.
09:15She doesn't let none stand in her worth.
09:17What would you say to other young disabled people out there considering that I'm dependent?
09:21Go for it.
09:22Don't care about what others have to say about you because it's your life,
09:27and you deserve to be happy no matter what.
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