The saddest fight: A child trapped in endless pain

Free Malaysia Today

Six-year-old Dhia Amanda cannot speak or cry for help. Her tiny body jerks in violent spasms she cannot escape — and only one small device can ease her suffering if help arrives on time.   Read More:  https://www.freemalaysiatoday.com/category/leisure/2025/11/21/the-saddest-fight-a-child-trapped-in-endless-pain   Laporan Lanjut:   Free Malaysia Today is an independent, bi-lingual news portal with a focus on Malaysian current affairs.    Subscribe to our channel - http://bit.ly/2Qo08ry   ------------------------------------------------------------------------------------------------------------------------------------------------------  Check us out at https://www.freemalaysiatoday.com  Follow FMT on Facebook: https://bit.ly/49JJoo5  Follow FMT on Dailymotion: https://bit.ly/2WGITHM  Follow FMT on X: https://bit.ly/48zARSW  Follow FMT on Instagram: https://bit.ly/48Cq76h  Follow FMT on TikTok : https://bit.ly/3uKuQFp  Follow FMT Berita on TikTok: https://bit.ly/48vpnQG  Follow FMT Telegram - https://bit.ly/42VyzMX  Follow FMT LinkedIn - https://bit.ly/42YytEb  Follow FMT Lifestyle on Instagram: https://bit.ly/42WrsUj  Follow FMT on WhatsApp: https://bit.ly/49GMbxW  ------------------------------------------------------------------------------------------------------------------------------------------------------  Download FMT News App:  Google Play – http://bit.ly/2YSuV46  App Store – https://apple.co/2HNH7gZ  Huawei AppGallery - https://bit.ly/2D2OpNP   #FMTNews

Transcript

00:00This is Dia Amanda, six years old, trapped in her own body.

00:07She cannot speak, cannot cry for help, cannot stop the spasms.

00:13Every day is a storm, every movement a battle.

00:18Her parents, Norliana Mohamad Safiya and Saiful Sujat Sulaiman, watch helpless.

00:25A rare disorder, GNA-01. It twists her body, steals her speech, steals her rest.

00:34The worst agony isn't the disorder, it's knowing you can do nothing to stop it.

00:42There is hope. A tiny device smaller than her palm can calm the flare-up inside her brain.

00:49It won't cure her, it won't give her back her childhood,

00:53but it can give her peace, rest, stillness.

00:58It costs 150,000 ringgit for the device.

01:02250,000 ringgit total. Surgery, hospital care, post-op.

01:08Suriana Welfare Society saw her suffering.

01:12Its advisor James Nyagam and executive director Rachel Ho couldn't look away.

01:16They jumped first. Now they need Malaysians to build the parachute.

01:22Every ringgit is a chance for her to rest.

01:25Every share is a chance for hope.

01:29Tonight, other kids will dream.

01:32Amanda will lie awake, fighting a storm she never asked for.

01:38Help Amanda find peace. Donate now. Share her story.

01:42Donate to Suriana Welfare Society, Malaysia, RHP Bank 21403-500165118

01:51Reference, Dear Amanda

01:52Call or WhatsApp 012-211-4444

01:57Rachel Ho, 017-755-8022

02:01Mary Rufina, 1-300-88-2200

02:06Anthony Amma

02:07Frankie D'Cruz and Natasha Bust, FMT

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