00:00The Social Manifesto is a document that was put in place to raise awareness of the stakeholders
00:11of Italian health, which are orbiting around ophthalmology, in particular rare diseases
00:18in ophthalmology, so that we can become aware of a disease, keratitis canthamoeba, an ultra-rare
00:27disease that until today has not had the possibility of being treated pharmacologically
00:34effectively, which can, if not treated adequately, also lead to blindness.
00:40The purpose of this manifesto is precisely to raise awareness of public opinion, in particular
00:46health workers, but also citizens, because this disease, and this is commendable, I mean,
00:52for those who have made, who have conceived this manifesto, this disease can be prevented,
00:58not only cured with this new medicine, this polyhexanide, which was put in place by
01:05an Italian pharmaceutical company, but it can be prevented, so prevention is also the
01:11objective of this manifesto, to spread the way in which this disease can be prevented.
01:17Being an ultra-rare pathology, it meets the prevalence criterion that was established
01:26by the European Pharmaceutical Agency for ultra-rare diseases, that is, less than one
01:31subject every 10,000 inhabitants, so very few individuals in Italy.
01:36The need is precisely to know the disease from a clinical point of view, prevent it,
01:46and prevention is carried out simply with a series of, how to say, hygiene attitudes
01:57towards contact lenses, because these are the ways in which the infection manifests itself.
02:08Contact lenses that are now being used by many people, especially young people,
02:14who, in fact, not observing normal hygiene practices, can run into this infection.
Comments