- 2 days ago
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00:00:00Transcription by CastingWords
00:00:30Transcription by CastingWords
00:01:00Transcription by CastingWords
00:01:30Transcription by CastingWords
00:01:59Transcription by CastingWords
00:02:29And so we'd like to take a moment to thank Alexander for his gift
00:02:34and for the family for consenting on his behalf
00:02:37and just take a moment of silence, please.
00:02:39Is everyone okay to go ahead?
00:02:59Yes.
00:03:01Okay, starting please.
00:03:04Can I get my headlight please?
00:03:07Do you want to do the vessel cup change?
00:03:22Yeah.
00:03:23Okay, pancreas is coming out.
00:03:26Do we have the...
00:03:30Yeah.
00:03:31Makes sense.
00:03:32So...
00:03:33Wow, those are some beautiful ones.
00:03:37I don't know, I mean you could split it and sew it together closer.
00:03:52Like you could cut some out of there.
00:03:54I don't know.
00:03:56The next time I see you, you have new lungs, you're in the ICU, okay?
00:04:00I'm gonna hold it snug so you just get oxygen and not room there.
00:04:03Big, slow, easy breaths.
00:04:04Here we go.
00:04:05Big, slow, easy breaths.
00:04:06Here we go.
00:04:10So, what we're gonna do is on the count of three, I'm gonna pull the tube out, okay?
00:04:36But you're gonna have to take in a nice deep breath for me.
00:04:38Does that make sense?
00:04:39Just a nice deep breath, honey.
00:04:42Yeah.
00:04:43Okay, so I'm gonna pull these tapes out behind your head here.
00:04:47Yeah.
00:04:48Okay, you ready?
00:04:52Remember to deep breath, honey.
00:04:55So, on the count of three here, okay?
00:04:58One, two, three.
00:05:00Nice deep breath in.
00:05:02No.
00:05:03No.
00:05:04No.
00:05:05No.
00:05:07Yeah.
00:05:08No.
00:05:09No.
00:05:11No.
00:05:12No.
00:05:13No.
00:05:14That's enough, man.
00:05:16No.
00:05:47OK, let's go to E4, print list, and...
00:05:58Are we going to ICU next?
00:06:06Morning, how are you?
00:06:07I'm pretty good.
00:06:08Doing all right?
00:06:09I'm Dr Shapiro.
00:06:10Yeah, we've met before.
00:06:11Yeah.
00:06:12So we're still planning for Friday then?
00:06:14Operation Friday?
00:06:15Yeah, yeah.
00:06:16OK.
00:06:16You might need to go back to the dialysis again a little bit after the surgery.
00:06:20It's always a possibility.
00:06:22Yeah, I am happy to see that, yeah.
00:06:24I am happy.
00:06:25You guys, when you come past, you should do this firmly.
00:06:28A quarter of our patients will die waiting for a transplant,
00:06:32and we're desperately short of organ donors.
00:06:34Yeah, some of them will wait years for a transplant in certain blood groups.
00:06:43Some of them will go straight, you know, close to the top of the list because they're so sick.
00:06:47Many people will die waiting because there's an adult that doesn't come in time.
00:06:56James Shapiro.
00:06:58The team should be there setting up, so we won't lose any time.
00:07:03He's so scared.
00:07:14I'm always getting a second chance.
00:07:21Mm-mm.
00:07:22Right?
00:07:23Mm-mm.
00:07:24This is it.
00:07:26This is your second chance.
00:07:28Mm-mm.
00:07:29Yeah.
00:07:31Yeah.
00:07:32That's going to go good.
00:07:33Mm-mm.
00:07:36Mm-mm.
00:07:38OK, I think we're ready to go.
00:07:39Are you?
00:07:40Yes, we are.
00:07:42Are you ready?
00:07:45There you go, Pat.
00:07:47All right, you want another hug?
00:07:48Kiss?
00:07:49Yeah.
00:07:49High five?
00:07:50OK.
00:07:51I love you.
00:07:52Love you, too.
00:07:53OK.
00:07:54It'll be good.
00:07:54Everyone will be good.
00:07:55You've got a good team here.
00:07:56Take really good care of her.
00:07:57Yeah, you've got a good team here.
00:07:59Mm-mm.
00:08:03All right.
00:08:04Take care of her.
00:08:05Yep.
00:08:07This patient is very sick.
00:08:08She has what we call a high melt score,
00:08:11which means that the liver has been very diseased,
00:08:13very scarred, a lot of pressure in the veins,
00:08:16a lot of risk of bleeding.
00:08:18I mean, this isn't unusual for us,
00:08:20but it's, yeah, as with any liver transplant
00:08:23in a sick patient, it's an extra challenge.
00:08:27And flagyl.
00:08:33Does she have a little bit of oxygen here?
00:08:35It's a little bit of a flagyl.
00:08:36It might smell kind of funny,
00:08:38but you're just reading how to judge this.
00:08:39She's got the effects for you before.
00:09:10I think we'll plan and all that.
00:09:17So our plan here, I guess, is just to rehearse things a little bit.
00:09:22Let's just put some fresh bungee in.
00:09:25Can you see how horribly diseased this liver is?
00:09:29It really is. It's horrible, yeah?
00:09:34The only...
00:09:35The end result would be, if she doesn't get this now,
00:09:41within three months, I don't think she would be here anyway.
00:09:44So that's how critical it is.
00:09:46It was a very tight timeline for her.
00:09:49So you can't say that it's definitive that she's going to be all right.
00:09:56There could be lots of problems.
00:09:59And the end result of some of them is death, right?
00:10:02So it's a tough, tough decision, you know?
00:10:06But it's one of those things you have to do.
00:10:08Either you live or you die.
00:10:10And it's not fair, but these things happen in life,
00:10:14and that's the way it is.
00:10:15So now we can blow the liver in.
00:10:34Yep.
00:10:41So now the liver enters the field.
00:10:45When you watch a new organ come to life like this,
00:10:55and you put new blood in it,
00:10:57seeing, you know, a pale brown organ come to life,
00:11:02I'm thinking, what an incredible thing to do.
00:11:05And it never fails to, you know, give me some thrill
00:11:08to see life come back into an organ like this.
00:11:11Crazy high levels.
00:11:20Just, um...
00:11:22Good job.
00:11:28Good job.
00:11:29Emily?
00:11:29Somebody has end-stage liver disease at one moment,
00:11:43you release the clamps,
00:11:44and now they suddenly have a new chance of life again.
00:11:48So it's a wonderful privilege to be a part of that.
00:11:53Okay, good to go.
00:12:04You know I'm here, don't you?
00:12:07You're getting there, Patty.
00:12:14Yeah, you're getting there.
00:12:19It's a long haul, but you'll get there.
00:12:20You're getting there.
00:13:20These are his friends.
00:13:25We love you, son.
00:13:28You are our boy.
00:13:31You are our love boy, our love child.
00:13:35Matthew, Matthew, right now is when we need you the most.
00:13:40The doctors are going to be doing some tests,
00:13:42and these results of these tests are so important, son.
00:13:46This is when we need you to shine like you've never shined before, son.
00:13:51Please, don't shine.
00:13:55Everybody join hands, please.
00:13:58Everybody join hands for our son.
00:14:01Everybody pray.
00:14:06Matthew, please, please.
00:14:09This next couple hours is so important to you.
00:14:13I'm a baptician.
00:14:14Please, I'm a baptician.
00:14:16Help me.
00:14:17You can do it.
00:14:18You can do it, Jesus.
00:14:20It's so playful.
00:14:21I want the whole boy back.
00:14:24I want the whole boy back.
00:14:26You're such a good boy.
00:14:27You're such a good boy.
00:14:30You're so kind.
00:14:30He's the one that he's a wonderful woman.
00:14:31You're so kind, Matthew.
00:14:33You're so giving.
00:14:43Well, we know how important these tests that are coming up,
00:14:48and what we're trying to do is get something in his brain working
00:14:52so it's worth giving a sign that we can carry on with him,
00:14:57and that's what we are.
00:14:58We're just trying to stimulate him.
00:15:01We're hoping that his brain reacts,
00:15:04and when he goes through this battery,
00:15:06a test is so important of what happens after.
00:15:09The doctor has explained to us that this is a very big decision-making,
00:15:14and we're just praying and hoping that there is enough there
00:15:18that we do move forward with him.
00:15:21We're terrified that if there isn't,
00:15:25the results aren't really one.
00:15:29We're just scared.
00:15:31He's going to do it, Les.
00:15:33I know he is.
00:15:34He's going to do it.
00:15:35I know you're going to do it, Matt.
00:15:36He's going to do it.
00:15:37I know you are, Matthew.
00:15:38I believe.
00:15:39I believe.
00:15:40He's going to do it.
00:15:41He's going to do it.
00:15:41You're going to do it, Matt.
00:15:42We're just hoping that by reaching him,
00:15:47it can help him,
00:15:49and we're asking him to give his fight.
00:15:52Even though he doesn't fight,
00:15:54that's what he has to fight.
00:15:57But I hope he beats the hell out of it.
00:16:02Matthew, I'm going to put a hat on your head, okay?
00:16:06So it's going to feel a little snug.
00:16:08How much propofol is he on?
00:16:14300.
00:16:15300?
00:16:15Okay.
00:16:17And he's having jerking?
00:16:20Yeah.
00:16:21I'm not sure if it's myoclonus or seizure, so...
00:16:25Matthew?
00:16:27Matthew?
00:16:28Matthew?
00:16:29Matthew?
00:16:38Any response to pain at all?
00:16:42Just abnormal extension.
00:16:44Okay, but nothing?
00:16:49Matthew, I'm going to just pinch your finger, love.
00:16:52Okay, right now.
00:16:55Yep.
00:16:57So we started our myoclonic jerking.
00:17:00Okay.
00:17:01Well, there we go.
00:17:02Okay there, Matthew.
00:17:03Okay, I'm all finished.
00:17:05Matthew.
00:17:05Hang on there, Matthew.
00:17:08You okay, honey?
00:17:14Our whole world was turned upside down.
00:17:18Just in the matter of 20 minutes, my whole life changed.
00:17:23My whole life changed.
00:17:24Apparently, Matthew was getting a tattoo, and the story's a little mixed up and foggy, but
00:17:35he was left, and they came back, and he was unconscious.
00:17:39Matthew, I'm just going to do some flashing lights.
00:17:42In one minute, we were such a content family, and just, we just felt so lucky.
00:17:50They're such a good family.
00:17:52And then, bang.
00:18:01All right, Matthew, we're all done.
00:18:03I know it has to be analyzed, and I know that is the waiting game.
00:18:20This is a very scary day for us.
00:18:23We do know we were told 72 hours.
00:18:26We do know these tests are going to show a lot, give some answers.
00:18:30I'm very afraid of what the answers could be.
00:18:35Trying to have more hope, but fear is there.
00:18:38Everybody's going to feel the ramifications of what's happening here, so we've lost a lot
00:18:46of very young, young members in our family that it's horrific.
00:18:53I don't even understand how we could lose so many young, potential, amazing people.
00:19:01You need that family support.
00:19:02That is what a person needs in this scenario.
00:19:04There's no real right or wrong way to feel at this time, but knowing that you have
00:19:09the love of your family, it's very important.
00:19:15And I'm so thankful for everybody that we do have.
00:19:21And I feel very sad for people that don't have what we have as a family.
00:19:34I've been pacing up and down these hallways, and all of a sudden, it reminded me of when
00:19:52Matthew was born and the similarity of me pacing that hallway, and it struck me I was waiting
00:19:58for a birth of Matthew again, that's what I'm waiting for.
00:20:05I'm waiting for a birth.
00:20:15Hello.
00:20:17Hello.
00:20:20Hi, honey.
00:20:21So we're just going to go a little bit over the things that you've been discussing before.
00:20:37Is everything clear to you?
00:20:39Do you have concerns?
00:20:40Is something new come up?
00:20:41Do you know kind of what you have to expect?
00:20:44And you know that the perfusion of the heart with blood, so oxygen going to the heart itself,
00:20:52is dependent on that small chamber that is not properly formed on the right side.
00:20:58In her situation, I don't think there's much dispute about which is the right way to go.
00:21:03I think we all agree that transplant, for sure, gives the best chance to lead a long-term
00:21:10as close as possible to normal life.
00:21:14You do know, however, too, that it's not going to be a walk in the park.
00:21:19We can go in a very good condition into the surgery, and we know that in this condition,
00:21:24the babies usually do very well.
00:21:26It is exchanging a life-threatening situation, in which she is now, with kind of a chronic disease
00:21:34or chronic abnormality.
00:21:36So you know that she will, lifelong, depend on taking medications.
00:21:41But reality is, with the babies, the first two years are a bit of a struggle, often.
00:21:48And in children that are immune-suppressed, that can cause a lymphoma, which is basically
00:21:53a type of leukemia, and that's not that uncommon.
00:21:59It's hard to even imagine how that feels, right?
00:22:01Like, you go through all this, you go through a heart transplant, everything goes well,
00:22:04and then suddenly something like that strikes you.
00:22:07But I think it's, in all fairness, important for you to be aware of that as a possible option,
00:22:12but also be aware that 90% of our kids do really, really well.
00:22:18So if you have any questions, just find us any time.
00:22:22I only talk all the time now.
00:22:26Which is pretty common, actually.
00:22:27It sounds scary.
00:22:41Yeah.
00:22:43Hope for the best.
00:22:44Yeah.
00:22:44You think about going through the whole heart transplant, and then maybe later on dealing with cancer
00:22:51or something like that, it's terrifying.
00:22:55It's just something we've got to do.
00:22:57We love her and just want her to have the best life she can possibly have.
00:23:03So...
00:23:04I don't know if we really have many options at this point.
00:23:06No.
00:23:08Are you tired?
00:23:10No, I'm sorry.
00:23:11You're sleeping.
00:23:11Are you sleeping?
00:23:12No, I'm sorry.
00:23:13Are you sleeping?
00:23:14No, I'm sorry.
00:23:15Are you sleeping?
00:23:15No, I'm sorry.
00:23:16No, I'm sorry.
00:23:16No, I'm sorry.
00:23:17No, I'm sorry.
00:23:17No, I'm sorry.
00:23:18No, I'm sorry.
00:23:19No, I'm sorry.
00:23:20No, I'm sorry.
00:23:21He's got five beautiful grandchildren that he's living for.
00:23:49He's got to watch them.
00:23:49He's got to bring them up right.
00:23:52I hope so.
00:23:54I didn't make this up last summer.
00:23:56I took my two grandsons, caught up their first fish.
00:24:04I'm glad you guys can't.
00:24:05No problem.
00:24:05Yes.
00:24:06Get away.
00:24:06Mm-hmm.
00:24:07I finally talked him out of being stupid.
00:24:10Yeah, I'm not talking.
00:24:10Did you?
00:24:11Mm-hmm.
00:24:11How are you doing, Dad?
00:24:13How are you doing, Dad?
00:24:16It's been better.
00:24:17I mean...
00:24:18A little bit better?
00:24:25Quite a bit better than I was.
00:24:27Yeah.
00:24:29Looks like you didn't stop sticking, you ain't he?
00:24:31No.
00:24:32No.
00:24:34It was close down to me pretty regularly.
00:24:36Yeah.
00:24:37Still bruised at night, y'all.
00:24:40Same old, same old.
00:24:42Give me two to the chair.
00:24:44I can stand.
00:24:45I just sat for a clean ride and sat on a bench and sat on a truck.
00:24:49I'm good.
00:24:49How are the kids?
00:24:54Good.
00:24:54All of them?
00:24:55Good.
00:24:55Yeah.
00:24:56Oh, yes.
00:24:57Oh, yes.
00:24:57I'm filled with mischief.
00:24:58Mine are, anyways.
00:24:59I think they have a big problem.
00:25:02They haven't had Grandpa for a while to treat them right.
00:25:05Yeah.
00:25:06You guys make them follow the rules.
00:25:08Yeah, I know.
00:25:08No big spoiling.
00:25:09Yeah.
00:25:10You're great.
00:25:12I'll make up for the last time.
00:25:13I know you will.
00:25:16I'll go over here for a minute.
00:25:18Give him some time with the kids.
00:25:19I don't know how's things going.
00:25:23Good.
00:25:24Good, good.
00:25:25Weighting sucks.
00:25:27Mm-hmm.
00:25:28Yeah.
00:25:29No doubt.
00:25:29They upped me.
00:25:31I'm a level four now.
00:25:34That's good.
00:25:35No.
00:25:37Oh.
00:25:38Yeah.
00:25:39The trouble is I'm too big.
00:25:43Our lungs are too big.
00:25:47Having trouble finding a match?
00:25:48Yeah, they've been getting lots of smaller arms, but not big enough for me.
00:25:56So, see how it goes.
00:26:00When did you get put on level four?
00:26:03Today.
00:26:03Today.
00:26:04They told me about it today, so we'll go with that.
00:26:08Well, that's good that you're next in line, though.
00:26:13Yep.
00:26:23You have to think positive.
00:26:26You know, that's all you do is you hang on.
00:26:29Well, Mama's always told us that, you know, the difficult you can do now, the impossible
00:26:38only takes longer.
00:26:39So, this is a little, like, impossible, but it's just going to take longer to have it done.
00:26:44He essentially needs a heart.
00:26:49And, you know, he's going to need a fair bit of rehab afterwards, too.
00:26:52It's not going to be an easy road even after the heart transplant.
00:26:55And I think he acknowledges that, too.
00:26:57Hey, Doc.
00:26:58Hey, Bill.
00:26:58How are you?
00:27:00Good to see you.
00:27:00Better today.
00:27:01A little better today, yeah.
00:27:02Better today?
00:27:03So, one good thing is, you know, the ultrasound for your heart didn't show any worsening fluid.
00:27:09Okay, that's good.
00:27:10So, that's at least one possible.
00:27:11You've got to get something right.
00:27:12So, I cut back your steroids, so your sugar should be better.
00:27:19I'm hoping that you get some sleep, because that's probably why you're not sleeping as
00:27:23much.
00:27:25So, you're probably the highest status person in Alberta right now.
00:27:30Yeah.
00:27:30Your muscles are getting weak.
00:27:32And your energy, your sodium, you start up this morning.
00:27:35Yeah, I heard you had a little fall.
00:27:37Like, my concern is, and I've seen patients like yourself who get weak.
00:27:41Like, you were once a pretty big guy.
00:27:43And I don't mean in the stomach, in the muscles, too.
00:27:45You keep right up to her mood and dog all.
00:27:48Well, not in that group.
00:27:49I mean, like, you have more muscle.
00:27:51And when you're sick, your body preferentially uses muscle for energy.
00:27:55And if you get too weak, you actually, the outcome for going for a transplant is far worse
00:28:00than being sick and heavy.
00:28:02Does that make sense?
00:28:03So, I want to prevent that from happening.
00:28:06So, I'll just give you a light on.
00:28:07I just want to see your neck here.
00:28:09And then, the other thing with you being weak is just kind of take it easy when you're
00:28:13getting up.
00:28:14I know you're so used to doing everything on your own.
00:28:15I know.
00:28:17The last thing I need you to do is fall either on your chest or your head.
00:28:21Yeah.
00:28:21And then we got a whole set of other issues.
00:28:23Okay?
00:28:24Yeah.
00:28:24And I'll be here the whole weekend, so I'll keep you updated every day.
00:28:27Okay?
00:28:28Anything else I can help you with?
00:28:31Fight me hard.
00:28:32I'm on it.
00:28:34Okay.
00:28:35Talk to you later.
00:28:36Thank you, sir.
00:28:37All right, if you need anything, just hop around and give me a shot.
00:28:40Hmm.
00:28:40It would almost make sense that if somebody has viable organs when they pass, that it should
00:29:00just be an automatic thing where, you know, you take them from them and give them to those
00:29:06that need it the most.
00:29:07And then that lessens the strain on the medical system as much as possible.
00:29:12This year, I'll have completed 20 years with the Edmonton Police Service.
00:29:26Right now, I'm on long-term disability, so I've been off work for just about two years
00:29:30now.
00:29:30950.
00:29:36150.
00:29:36150.
00:29:37Yeah, that's good enough.
00:29:40When you have a family, there's always many things on the go.
00:29:42like there's you know competitions coming up she's a competitive diver so
00:29:48we're hoping that she qualifies for nationals and with that will come travel
00:29:52so you're trying to plan for that but like can I get dialysis there can I am
00:30:00I gonna be well enough to travel am I gonna get the call like am I possibly
00:30:04missing out on getting an organ because I had to put myself on hold for a week
00:30:08to go to a competition because I could get dialysis there
00:30:19planning Lana's birthday oh she turns 40 on the 23rd so I think she'll figure it
00:30:25out when my parents show up at the pool take Izzy home nobody says anything
00:30:31before then why can't I go to dinner dad because they don't let minors in there
00:30:37well that stinks
00:30:41and I can just press it you try and do what you can to be as healthy as possible or at least as
00:30:51alert and have as much energy as possible but going from you know having a parent that
00:30:57goes to work is like every other parent in the world and then hangs out on the weekends and
00:31:05you know you go do stuff to planning your life around this machine she came up and up one night and you know she saw the tubes in the arm and stuff and she had to leave she couldn't it just wasn't you know tolerable for her to see
00:31:22see after
00:31:26come here be love you love you love you have a good sleep I'll see you in the morning
00:31:32well it just it cleans out the blood I don't know it's uh I don't feel any different really I feel kind of wiped the next day
00:31:55I'm pretty used to it by now so it's just kind of that's that's my routine three times a week I'm here late if I was at home I'd be in bed already
00:32:21I was at home I'd be in bed already
00:32:51I'm here
00:32:55take care
00:32:56What I'll need is a 4x4 and a flashlight if you have it.
00:33:23Sure. Yep, I do.
00:33:26You may turn on the light now.
00:33:53You can come in if you wish.
00:33:55I'm just repeating what we did this morning, okay?
00:33:59You can hold his hand if you wish.
00:34:02My son, my beautiful boy.
00:34:04You're so blessed, Matthew.
00:34:06You're so blessed.
00:34:07Yeah, he will be moving.
00:34:09We just stopped the drug for the exam and then...
00:34:12I'm just going to put this in his mouth to check his gag reflex.
00:34:19Don't suffer, my boy.
00:34:20Don't suffer, my boy.
00:34:22I love you, my son.
00:34:24I love you, my son.
00:34:26Okay.
00:34:28Would you like to stay here?
00:34:29I'm just going out to the family conference room to meet with your family.
00:34:34Would you like to stay here or join me?
00:34:36I want to join you.
00:34:36Okay.
00:34:37If you're...
00:34:37We'll come back.
00:34:38Yeah.
00:34:39You have an opportunity to come back, so...
00:34:40Yeah.
00:34:41We'll just go out there now.
00:34:42Okay.
00:34:43So, girls, please stay with him, okay?
00:34:46I'll be back.
00:34:47I'll be right back to see you.
00:34:59I love you, I love you, I love you.
00:35:01I love you, I love you, I love you.
00:35:05I love you, I love you, I love you.
00:35:35I love you, I love you.
00:35:39I'm so scared.
00:35:42There's no need to be.
00:35:43I'm scared.
00:35:46Do we have everyone here that you would wish here?
00:35:51Yes.
00:35:52I'm Dr. Kutsianos, I'm the attending intensive care unit physician this week here.
00:35:57I've been caring for Matt since Monday.
00:36:00As you're aware, he had an episode where his heart stopped for a long period of time.
00:36:05It was at least 20 minutes before he recovered his blood pressure.
00:36:11When we look at everything from start to finish.
00:36:14He's been ill in the ICU.
00:36:18He's been comatose in the ICU.
00:36:20He's had many irregular movements that we do see sometimes in these circumstances.
00:36:25So, I examined Matt this morning and this afternoon and what we look for is different basic reflexes
00:36:35in the brain that are often preserved even though we're not conscious.
00:36:41The upper part of our, if our upper part of our brain doesn't work.
00:36:44By that, I mean we can't communicate, we can't understand.
00:36:51Often, the lower part of our brain, which is very primitive, still works.
00:36:55So, we're in a scenario where just by examining him,
00:36:59and I had mentioned to most of you yesterday that it didn't appear that he would recover his brain function,
00:37:07although we can't tell that just by examining him early on.
00:37:12We have to wait until approximately the third day.
00:37:14For more solid proof that he won't recover his brain function,
00:37:22I had organized another special test yesterday to be done today.
00:37:26So, both examining him and based on the test,
00:37:32I can tell you with a great degree of certainty that he will not recover brain function.
00:37:37So, we're left at this circumstance where I don't think any family would want an individual to be left on life support
00:37:48in this circumstance in the long run.
00:37:53I'll stop here to ask for any questions currently.
00:37:59No, no, no.
00:38:00No, no, no, no, no, no, no, no.
00:38:07No, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no
00:38:37would want. I leave his mother showing up tonight. Why is that? Why is that? Well I think at this stage
00:38:47I'd recommend that he in the long term by that I mean days not stay on life support
00:38:54because we're really we're really prolonging the dying process.
00:38:57So what you're also saying there is no miracle? I'm saying that I can tell you what is done yeah pretty
00:39:08good we don't want to make an error in this situation because you can understand it's someone's life. Yes I understand what you've
00:39:27done. There's very few things that we can say in medicine that are fairly solid and then this I
00:39:36think from our experience worldwide is yeah I can I can give you a good degree of certainty.
00:39:45Yes I think it'll be best. Las what do you think? Yeah I just want to be by Matthew's side
00:39:51now I know I'm saying goodbye. He's such a special boy. I personally would like it the sooner the
00:40:01better because I don't want him to be in this state this comatose. I also find this very hard on all the
00:40:06family and friends like the hurt is just you're not alone we see this not unfrequently and it's a common
00:40:13yeah I just see everybody's gut-wrenching feelings and all I want to do is hold my boy for the last couple
00:40:22days or hours that I have. Just let us know how many chairs you want in there and that we can
00:40:26organize that we can let his arm rest down. Oh boy we'll be okay I gotta go be with Matthew now when
00:40:35I walk out the boys are all gonna look at me and I'm gonna go like this and and then I'm walking
00:40:41straight to see Matthew so good luck with the guys. I have one more thing that I want to discuss
00:40:47it's an obligation on my part by law I have to discuss this and now that after we've discussed the
00:40:57issue of taking him off life support at some point in time in the next few hours or days
00:41:04and that is the issue of organ and tissue donation. So I think I just plan to open the discussion I
00:41:11don't think it sounds like the intention is that you would want to take him off life support tonight
00:41:16because he's got other family coming but it's an introduction to that to think about to discuss
00:41:22and we can have another discussion tomorrow regarding that.
00:41:34I love you. Thank you. You're welcome.
00:41:51No. There's no chance. There's no chance.
00:42:09Matthew will leave us. There's no chance. There's no chance. There's no chance.
00:42:17There's no chance. My voice. There's no chance. My voice. There's no chance.
00:42:31So I've been caring for this young man Matt, a physician. He's 28. Came in Saturday evening after
00:42:39cardiac arrest. He's lost some but not all of his brain stem reflexes and I had organized for
00:42:47somatosensory potentials today which were done and they showed no conduction
00:42:52on either side of his brain. So I finished meeting with his family. It's some mother, father,
00:42:59the brother that just arrived and a sister and some cousins and his 10 girlfriend of 10 years.
00:43:08And I talked to them about, you know, withdrawing life support because that was really the only
00:43:13option in this circumstance. And I approached them about the possibility for organ donation.
00:43:19And they will be deliberating on it. You know, if they're interested, it wouldn't be till tomorrow
00:43:24because, um, I think, uh, they wanted to have more time with Macy and have more time with him.
00:43:41So, um,
00:43:46um,
00:43:50um,
00:44:54She's been on a ventilator, then she's trached, then she's plugged, she's receiving antibiotics,
00:44:58she's sitting in the intensive care unit, and that's expensive if you put a dollar
00:45:04figure to it.
00:45:05But it's a temporary situation, and she can pull through.
00:45:09Now this isn't a, you know, her liver's working really well now.
00:45:12So if we can do one simple maneuver, we, yes, all right, it's a surgery.
00:45:16It's not complicated for me.
00:45:18It's incision, drain the fluid, close.
00:45:21So that to me is a, it's a no-brainer.
00:45:24You know, it's a big collection, so, you know, the thinking is, take her to the UR and drain
00:45:32the collection, wash it out, send some cultures off, and then we can tailor any body towards
00:45:36that if she needs ongoing therapy.
00:45:38You know, from surgery-wise, it's a pretty straightforward surgery to do.
00:45:43I don't think it's going to set her back too much, but, you know, she's got that trach
00:45:46in place, she's going to, she probably is going to spend some more time on the vent.
00:45:50So, Scott, go ahead.
00:45:51We'll do the dual physician consent form.
00:45:56We'll book her as an E6, and we'll get it done.
00:46:00Okay, thanks for good.
00:46:01Yeah, thanks, Wendy.
00:46:21Surgery is an absolute detail-orientated profession.
00:46:44You know, everything, every detail matters.
00:46:46People have to be thinking, you know, where does the incision go?
00:46:49Where does the retractor go?
00:46:50So, it's all about the surgeon and the assistant.
00:46:54Very important dynamic.
00:46:57Now, what would you do, Scott?
00:46:59You're into this, and you get a big pool of vial.
00:47:04You'll be in a bunch of vial.
00:47:05And leave drains.
00:47:07Don't bother putting the Thompson on.
00:47:09Let's have five sponges per side, and four towel clips, please.
00:47:15There's a person like Scott, who I've worked with a lot.
00:47:17You know, I know he's done a full surgical residency.
00:47:19He's done two very intense years now as a multi-organ transplant fellow.
00:47:24I know that I can trust him.
00:47:26I know that if he's helping me with something difficult, I can trust that he'll be putting his hands in the right place and exposing things in a way that I need to see.
00:47:32Scott himself had a liver transplant when I first arrived in Edmonton in 1993.
00:47:42And it's incredible.
00:47:43Here he was, you know, a 14-year-old boy.
00:47:45Yep.
00:47:45And I spent hours and hours, not only in his surgery, but by his bedside while he recovered and got to know him and his family very well.
00:47:54And now it's incredible that he is here training exactly the shoes that I was in at his stage.
00:48:04And he's going to be a brilliant liver transplant surgeon.
00:48:06Yeah.
00:48:08I learned all about liver transplant from looking after him.
00:48:11It's four more paxels and maybe two more at 15.
00:48:16When you're set on a journey with transplant, you're taking an organ that can save somebody's life.
00:48:24And it does save people's lives.
00:48:27So you have a responsibility.
00:48:28Once you've set off on that journey, I mean, probably the most important thing is making the right decision at the beginning.
00:48:33And once you've made that commitment, you've got to make sure that you do everything possible to get a successful outcome.
00:48:38I know it was going to be hard.
00:48:47I know it was going to be hard.
00:48:49For one thing, she was so ill when she came in.
00:48:51Then she was in the hospital for five, six weeks before the operations.
00:48:56She was sick.
00:48:58You know, she didn't have much time left.
00:49:00You know, months probably.
00:49:02Probably by now she probably wouldn't be here.
00:49:04So this is a life-saving situation for her.
00:49:07Now we've got to get her through the rest of it.
00:49:11Because I know that Dr. Shapiro has done a good job.
00:49:14He's quite happy with things.
00:49:16The liver's functioning properly.
00:49:18All her vital signs are good.
00:49:20In Pat's case, very complicated.
00:49:23So I kind of knew it was going to be.
00:49:28I want to go home.
00:49:30Oh, you're not well enough to go home, sweetie.
00:49:33You're going to be a while yet.
00:49:35But you're on the right path.
00:49:38It won't be long now.
00:49:39Oh, good.
00:49:41They got that infection.
00:49:43Everything under control now.
00:49:44Now you can really start to heal.
00:49:47Oh, good.
00:49:48Your new liver is doing very well.
00:49:51Oh, good.
00:49:52Okay?
00:49:52There's lots of pressures.
00:49:54People will, you know, the intensive care unit docs, others will approach you and say,
00:49:58this is hopeless.
00:50:01We've been here for three months now.
00:50:03We're on dialysis.
00:50:04We're on this, that, and the other.
00:50:06You know, we're making no headway.
00:50:07We should just pull the plug and let the person die.
00:50:10And I can also see the till tallying up, you know, every day how much money's gone into it.
00:50:17But, you know, we've got to think more than how much is a person's life worth and how much
00:50:23to give, how much not to give.
00:50:24You ought to think about the value of the organ.
00:50:26You have a huge responsibility to the organ donor family and to the organ to do what it's
00:50:32meant to do, which is to save a life.
00:50:33I think probably the list, more so than the dialysis, the list itself becomes the overriding
00:50:57factor on absolutely everything.
00:50:59Because you kind of, you get to that point on the list where you're, okay, a year and
00:51:02a half, two years on, you're like, I should be getting close.
00:51:09So you're always just kind of waiting.
00:51:11You always have your phone with you.
00:51:12You don't turn it off in movies.
00:51:13You leave it on at nighttime beside your bed.
00:51:19You're in that perpetual state of waiting.
00:51:23That's a weird thing to go through.
00:51:29Watch out for the dog.
00:51:38I know.
00:51:40Ideally, it'd be nice to, you know, you get the kidney.
00:51:43The surgery goes well.
00:51:45Recovery goes well.
00:51:46So in about six months or so, you're healed up and life's pretty much back to normal.
00:51:53You want everything to go as fast and as smooth as possible so that there's no disruption on
00:52:02her life.
00:52:05I want to be done with this part.
00:52:07I want to move on and, you know, get to be able to go on holidays and go to work and live
00:52:13a normal life.
00:52:14You're running out of options here, aren't you, Doc?
00:52:34You're scaring me.
00:52:35A lot of us were fearful and we thought we might have to pull the plug and say, no,
00:52:41we can't list them like this.
00:52:42And so that's why, I mean, it came to a head and both the surgical team, the medical team,
00:52:47the ICU team all came together and said, we got to do something or do nothing.
00:52:50So we actually went ahead and implanted a secondary mechanical device, which is a temporary device.
00:52:58It's not a permanent one compared to what he had before.
00:53:02So we've almost essentially bypassed the whole heart.
00:53:08I want a chance at this.
00:53:10I mean, I've already invested how much time and energy into recovering?
00:53:16What am I going to do, quit now?
00:53:18Well, I've worked too hard at this.
00:53:23So I have grandchildren.
00:53:27Yeah.
00:53:30That's what it really means to me.
00:53:37It's unbelievable.
00:53:41I want to get out and do things with them.
00:53:44I'm a little fight for that.
00:53:51If it was just for me, I'd have probably gave up.
00:53:57But I want to be there for my grandkids.
00:54:04I want to be there for my grandkids.
00:54:14Are you busy?
00:54:15Are you busy?
00:54:17Are you busy?
00:54:19Are you busy?
00:54:20Why don't you say I'm busy?
00:54:22Or are you busy?
00:54:24OK.
00:54:29I get ready.
00:54:31Is that the phone number of people is going to call me?
00:54:33Not a good phone number.
00:54:35My phone number is going to call me.
00:54:37And I'm going to call me okay.
00:54:39It's all fine.
00:54:40It's not a good phone number.
00:54:41It's not a good phone number.
00:54:42It's all fine.
00:54:43Christy it's Karen. Hi Karen. Hi. How are you doing? Good thanks. And you? So I'm actually calling you with a heart offer. You have a couple high status receipts. Right. Do you want me to email you the chart? Oh sure that'd be great. Okay do you want me to give you the CTR numbers too for your... Oh sure that would be great thank you. I know that. I guess you can
00:55:13kind of guess what's going on if we're coming with the big team and not stay at the bedside. So we actually do have an organ for her. Which is a pretty good organ. A little bit smaller child than her. And it's going to come from a little bit further away so we still have a little bit time. Today from what we guess now it's going to be some time tonight probably
00:55:41around somewhere between 8 and 10 that she goes to the operation room. And then coming out sometime tomorrow morning. So just wanted to give you a heads up. We're pretty happy about it too. I think it's actually the perfect time.
00:56:00And it is a very good organ. And it is a very good organ. It's going to be... Everything should be pretty straightforward. Okay.
00:56:07Okay.
00:56:09No it's... The car and the van are for the same purpose. People and equipment.
00:56:19So we are now en route. Okay great. Thanks Paul. Okay bye.
00:56:38What questions do you have?
00:56:41I'm just excited.
00:56:44Yes.
00:56:45So it's going to be a couple of tough days of course. It's a surgery. It's a long surgery and don't be worried if it takes long.
00:56:53So the way it's timed is that we will try to have the heart removed at the time that the other heart comes in the door pretty much.
00:57:02So she will go into the operation room before maybe around the time that we obtain the heart from the other place.
00:57:11And only if everything is fine they will go ahead and open the chest.
00:57:16We're doing a pediatric heart recovery to transplant into a little babe in Edmonton.
00:57:30So time is of the essence. And what we call the time from... The time from the heart is stopped till the time that it's beating again in the recipient.
00:57:42There's a very finite time which is like for adults about 4 hours where that time is.
00:57:49And then for peds they may be upwards of 6 or 7. They don't like that but sometimes you have no choice.
00:58:04Hi buddy. Guess what?
00:58:07Harlow is going to give me a hug.
00:58:09Guess what, Tatum.
00:58:10Harlow is going to give me a new heart.
00:58:13Wow.
00:58:14Yeah.
00:58:15Say yay.
00:58:16Harlow is going to give me a hug.
00:58:18Oh.
00:58:19Harlow is going to give me a new heart today.
00:58:21Good night.
00:58:30I've played for it all week.
00:58:32I thought it would happen this week.
00:58:33I thought it would happen this week.
00:58:40Aww.
00:58:45Okay.
00:58:47So I'm just thinking out loud.
00:58:49So 10 o'clock, we're done.
00:58:5111, 12, 1, 2.
00:58:54So it looks maybe more like three o'clock would be our ETA.
00:58:59So right now the baby's completely asleep. So we're going to breath and then we open the sternum,
00:59:08put the retractor and do all dissections.
00:59:15When we open the precardium, we need to see, visualize the heart, be sure the heart is good,
00:59:19there is no any congenital malformation and the heart contract is fine, there is no tumor,
00:59:26there is no any pathology or any problem with the heart.
00:59:30ETA 9.30, 10.30, 12.30, 1.30, 2.30.
00:59:44Hi Jenny, Karen. Hi. So the heart looks good and our ETA looks closer to three.
01:00:00Make your head nice and greasy for your surgery.
01:00:05And crying with something.
01:00:06I know.
01:00:30Hello, hello.
01:00:51Hello.
01:00:53Here we go.
01:00:55Here we go.
01:01:05Here we go.
01:01:15Here we go.
01:01:17Here we go.
01:01:20Single cannula and SVC, what's the ACT?
01:01:28We're 25, it's 5.
01:01:30Okay, go on bypass, please.
01:01:32Cool down to 34.
01:01:353 or 4 degrees.
01:01:37Mm-hmm.
01:01:39Were Venus in too far?
01:01:41Yeah, it was in about 8 centimeters too far.
01:01:44That's right, yeah.
01:01:47Okay, next turn.
01:01:50You can cut across there.
01:01:56Uh-huh.
01:02:03Yep.
01:02:05Okay, four 5-O-C-1s.
01:02:13Pull it here.
01:02:15That's good, tag, please.
01:02:17That's good, tag, please.
01:02:19Another stitch.
01:02:22Okay, that's good.
01:02:25Okay, let's have a look.
01:02:30Pulled off the RPA there.
01:02:32Let's see the new heart.
01:02:34What's the new heart?
01:02:35Mm-hmm.
01:02:36Don't set up on everything.
01:02:37They said no.
01:02:38Yeah.
01:02:39Okay, that's okay.
01:02:40Good side.
01:02:41Okay, um, thumbs, please.
01:02:44Uh-huh.
01:02:45We can go through the transverse sinus.
01:02:47Okay.
01:02:48Okay, you can tie that knot there.
01:02:50Okay.
01:02:51Okay, you can tie that knot there.
01:02:53Okay, you can tie that knot there.
01:02:55This one?
01:02:56Yep.
01:02:57Okay.
01:02:58Okay, you can tie that knot there.
01:02:59This one?
01:03:00Yep.
01:03:01Yeah.
01:03:02Okay.
01:03:03Okay.
01:03:04This one?
01:03:05Yep.
01:03:06Okay.
01:03:07Okay.
01:03:08This is wound around here, so just take that driver off, the tag off.
01:03:11That's nice.
01:03:12Okay, perfect.
01:03:13Okay, perfect.
01:03:14And I'm going to take this clamp off the RPA.
01:03:16Okay, you can tie that knot there.
01:03:18This one?
01:03:19Yep.
01:03:20Okay, this is wound around here, so just take that driver off, the tag off.
01:03:36That's nice.
01:03:37Okay, perfect.
01:03:38And I'm going to take this clamp off the PA for the moment.
01:03:43Pull this over here.
01:03:45And the heart's starting to beat already.
01:03:48That's cool.
01:03:49We need another clamp.
01:03:50Okay, we need another angled clamp.
01:03:53I'll grab one of the other two.
01:03:55The size difference is not huge.
01:03:58We can go like two or three times body size in a baby.
01:04:03If it's, we've got to be careful it's not too small, because if it's too small it won't
01:04:07have enough pumping capacity.
01:04:11So it's a good heart.
01:04:12It just, it came from a long ways away.
01:04:14So it was in the bucket there for like five and a half hours, huh?
01:04:19Okay.
01:04:20Hi.
01:04:21Mr. Burgundy of Men, I'm Dr. Rebecca.
01:04:22How are you?
01:04:23Good.
01:04:24So we're all done.
01:04:25Everything went very, very well.
01:04:26It, um, the heart started up right away.
01:04:27And, uh, getting it in wasn't any major issue.
01:04:31So, um, heart's working on its own now.
01:04:32And, uh, we're just going to wait for the bleeding to settle down just a little bit before we close
01:04:36it.
01:04:37Okay.
01:04:38Okay.
01:04:39Hi.
01:04:40Mr. Burgundy of Men, I'm Dr. Rebecca.
01:04:41How are you?
01:04:42Good.
01:04:43So we're all done.
01:04:44Um, everything went very, very well.
01:04:45It, um, the heart started up right away.
01:04:48And, uh, getting it in wasn't any major issue.
01:04:52So, um, heart's working on its own now.
01:04:55And, uh, we're just going to wait for the bleeding to settle down just a little bit before
01:05:00we close up.
01:05:01And then the baby go back to the ICU.
01:05:04Uh, first 24 hours is sort of the important time.
01:05:07Heart's got to recover from the operation and all the bleeding's got to settle down.
01:05:11So it's a bit early to relax completely.
01:05:14But, um, things look pretty good.
01:05:17So I think we're in good shape.
01:05:19Okay?
01:05:21Okay.
01:05:23We don't shake anymore because we're too many germs, huh?
01:05:26Sure enough.
01:05:27Okay.
01:05:29I'll talk later, folks.
01:05:50This has been a great big block out to me.
01:06:08Yep.
01:06:09Big black out.
01:06:10And when I found out I almost died, that was something else.
01:06:23I even saw, you know how they say that you see a figure before you croak?
01:06:30I saw a little Virgin Mary.
01:06:33Oh, is this Dr. Shapiro?
01:06:38It is.
01:06:39Oh, hello.
01:06:40Pat, how are you?
01:06:41Good.
01:06:42Very nice to see you again.
01:06:43Yeah, nice to see you.
01:06:44Congratulations.
01:06:45Huh?
01:06:46Congratulations to you.
01:06:48It's been a long haul, hasn't it?
01:06:49Too long.
01:06:50Yeah.
01:06:51Yeah.
01:06:52Yeah.
01:06:53It was a difficult transplant.
01:06:54Yeah.
01:06:55You were very, very, very sick before it.
01:06:57That's what I heard.
01:06:58Yeah.
01:06:59Anyway, times are going to get a lot brighter for you.
01:07:00Yeah.
01:07:01You've got a new chance.
01:07:02Yeah.
01:07:03It's very lovely to see you, Pat.
01:07:04Yeah.
01:07:05It's nice to have met you.
01:07:06Yeah.
01:07:07My lifesaver.
01:07:08Well, likewise.
01:07:09It's been a pleasure to look after you.
01:07:10Look, I'm happy.
01:07:11I'm happy.
01:07:12I'm happy.
01:07:13I'm happy.
01:07:14I'm happy.
01:07:15I'm happy.
01:07:16I'm happy.
01:07:17I'm happy.
01:07:18It's a pleasure to look after you.
01:07:20We'll see you in the clinic.
01:07:21Okay.
01:07:22Okay.
01:07:23Keep your spirits up.
01:07:24Yeah, I will.
01:07:25Okay.
01:07:26All right.
01:07:27Lovely to see you, Pat.
01:07:28Okay.
01:07:29Bye-bye.
01:07:30Okay.
01:07:31Okay.
01:07:32Sometimes I wish I wouldn't have gone through all this.
01:07:47Kind of hard.
01:07:48All my wasted days.
01:07:49It would have been better just to.
01:08:02I think anyway.
01:08:04But I thank the person.
01:08:08That's all I can do.
01:08:10He gave his life to save mine.
01:08:23Which was nice.
01:08:27Sorry for the tears.
01:08:29You have every right.
01:08:31You have every right.
01:08:35Yep.
01:08:36You're welcome.
01:08:38Okay, now.
01:08:51Say it a bit.
01:08:52Look.
01:08:53It's full.
01:08:54You take a picture?
01:08:55Yeah.
01:08:56Yeah.
01:08:57Okay.
01:08:58Okay.
01:08:59Okay.
01:09:05I don't think anyone would call my life balanced, but I certainly have more control over it now
01:09:11than I've ever had before.
01:09:12And I know what the priorities are.
01:09:15It's take me a while to learn that.
01:09:17When you're young and fresh and trying to prove yourself, it's not quite the same.
01:09:24You feel you have to, every invitation you have to take, every grant you have to apply for, every paper you have to write.
01:09:33Now it's different for me.
01:09:34Well, I had an event two years ago when I was thought fairly healthy.
01:09:48Running could, you know, run down a quarter every day.
01:09:52And one night in the middle of the night, I got out of bed and I fainted on the floor.
01:10:00And I went to emergency.
01:10:03And I had a temporary pacemaker put in and then a permanent pacemaker and a bunch of tests.
01:10:08And I was found that I had a condition called cardiomyopathy.
01:10:12And I had no idea.
01:10:17It's not bedtime yet.
01:10:19It's too early for bedtime.
01:10:22So I had this pacemaker put in.
01:10:24It happened during a vacation.
01:10:26I don't think I lost a day of work because of it.
01:10:28And I haven't turned back since.
01:10:30I've been able to, you know, do everything that I've done before.
01:10:35So are we reading this one?
01:10:37Yeah.
01:10:38I don't know what this is about.
01:10:39Is this about...
01:10:41Like, look.
01:10:43What I've learned is life is precious and time is precious.
01:10:48And, you know, I want to look after my patients.
01:10:51I want to have fun doing surgery.
01:10:53I want to have fun doing research.
01:10:55And I want to come home early.
01:10:56I want to have it all.
01:10:57And I've learned that actually, by letting go of a lot of things, I can do that.
01:11:02And I feel very lucky.
01:11:08Do-do-do-do-do-do-do-do-do-do-do.
01:11:12Ready for songs?
01:11:16Gentlemen.
01:11:18Matthew was born here and it's kind of sad that he started his life
01:11:47and finished his life in this hospital we were so proud that he was born here so we have all agreed
01:11:54that we will Matthew's organs are to our it will be donated that is listed as you think you said
01:12:02I can go through all that specifically when it comes to the tissue we did not realize part of
01:12:12the skin part was to the degree and we did not realize the need for it at the same time the eyes
01:12:20not so it's I don't know how much Matthew has to give Matthew's already given his life and we don't
01:12:34have to yeah we we don't have to do it all you know we we're already you know he's already given
01:12:42um and but I don't think we have to do it all I Dane he's your brother what I've I've said my piece
01:12:51about it I say do the organs the essential organs and leave the tissue I just I don't feel comfortable
01:13:01about the tissue on my own donor card I am not I don't donate my if that's the case just my organs
01:13:09and I just don't and then Leslie just said it everybody's done enough yeah and Matthew has
01:13:19contributed more than all of us so so basically what will happen is that if for organ only there
01:13:26would be a cut probably from around Adam's apple for I'm a male um down to the pubic area and then
01:13:35usually just across from the abdomen tabbed and so other than that there should be no visible scarring
01:13:44or anything if if we go just for organ donation now Leslie let's do the organs
01:13:51part of the the process as well requires us to take part of the spleen so pardon me the spleen so the
01:14:03spleen basically is attached to the pancreas and now we use that tissue to determine his tissue typing
01:14:13matching to the the recipient so yeah I like basically the spleen is just um they take a piece
01:14:24of it just to check his his genetic typing versus the recipients because what they want to do is match
01:14:32the donor organs to the recipients as closely as possible so that there's less chance of rejection or
01:14:40having the organs fail but it's not really a an organ that we're taking or anything like that it's
01:14:46just a basically a tissue sample that we're using to make sure that the the matches is the best match
01:14:55possible Leslie it's all right Matthew would be okay with it he honestly would be okay can I okay let's sign
01:15:03sign I I have to leave I want to sign this I feel nauseous can we just let's move forward okay we're
01:15:09moving too slowly for me I need let's let's let's move forward you know let's we're being all this
01:15:14delicate and I need to get to my son let's move forward with the giving person that we know Matthew was
01:15:22we would know that that this is what he would have wanted he would have done it without hesitation
01:15:36oh my god
01:15:55could you tell me who's on call for lung transplant
01:15:58hi Karen speaking hey Karen hi I'm Ali I have a lung to offer you okay I do not have HLA or serology
01:16:13at this point in time okay but we're trying to rush this as quickly as possible and we need to go to
01:16:20OR today before midnight okay oh Matthew oh Matthew you should be filling out that form for me
01:16:37why did I have to fill that out for you
01:16:39so these lungs sound promising okay they have multiple recipients and liver I still have to get
01:16:56a hold of that liver recipient kidneys um that sounded promising I think okay
01:17:02I think we'll talk to the lab just to see that that serology will be done and HLA will be done
01:17:13and then give a couple hours flex and really confirm that all our time okay so that everyone can tee up
01:17:19they're going to fix me up they're going to give me a new heart they've got uh according to Dr Sharma
01:17:38and from what I've heard since I got here they got an excellent heart lined up for me the best yeah perfect
01:17:44yeah
01:17:48we have found you a very good heart uh that's what they tell me yeah it's a very good quality heart so
01:17:53I'm very confident you're going to do well so of course there's a bonus lots of complications that
01:17:58can occur along the way yeah well hey there's nothing got you nothing gained right yeah that's
01:18:03right but things like infection or having trouble with your lung function or kidney function or things
01:18:09like that and any one of those things can contribute to not actually making it through this whole
01:18:12experience yeah which that risk is probably in the 10 to 15 percent mark i would think yeah
01:18:18so quite a bit higher than usual but but uh i think that's another game i think given the fact
01:18:23that we've got this heart for you uh we should go ahead that's why we've gone to all the trouble
01:18:27of getting this organized it's gonna do good absolutely power of positive thinking exactly right
01:18:34good all right bet i got a chance to chat with you yeah see you soon see you soon okay
01:18:46i'm a little nervous
01:18:49i'm ready to start the final leg of this journey it's unbelievable how good that feels
01:19:03i'm gonna be able to do that
01:19:08oh my god this is so unfair
01:19:14you want to relax because the best of your students is going to be with someone
01:19:19this is so unfair
01:19:22Oh, no.
01:19:24UR has delayed.
01:19:26We would like to delay for one hour.
01:19:29Oh, OK.
01:19:31Wonder, can I call you at a different phone, Darren?
01:19:36I want to leave you from this nightmare.
01:19:39I want to leave you from this nightmare.
01:19:42I can't lose it.
01:19:44I just, I just don't want to lose it.
01:19:46I'm just being so selfish.
01:19:48I just don't want to lose it.
01:19:50This is not abnormal.
01:19:52This is pretty routine.
01:19:53But in this case, it's much more sensitive.
01:19:57And the delay is much more, you know,
01:20:02much maybe not received in the same, you know, as.
01:20:09It's more difficult for the family,
01:20:11and maybe in this situation, to have a delay.
01:20:20So, are we, are we, are we trying?
01:20:35Not quite, yep, pretty soon.
01:20:37We're just going to have a minute of, um, silence.
01:20:41This has been an incredibly stressful time for everyone
01:20:44because it's been so busy.
01:20:46But this family has really, really hung in there.
01:20:49And this is, this is a loss of their son.
01:20:53And it's been really, really hard on them.
01:20:55And as always, it's so totally unexpected.
01:20:57So they have graciously agreed to consent for transplantation.
01:21:01So if we can have, like, five seconds of silence
01:21:05to just remember the gift that this family, um,
01:21:08is willing to give through their son.
01:21:18So they're going to withdraw life support,
01:21:20like, any minute now.
01:21:21Okay, what I will need from you in, in, in sequence
01:21:24is the scalpel, followed by the sternal saw.
01:21:29And I'm going to put, uh, the, the bakeys and the meths in there,
01:21:33so I have that up already.
01:21:38I'm so serious.
01:22:03Sounds like they're coming.
01:22:08Go Matthew, go save some lives Matthew, go do it Matthew, goodbye my son, goodbye Matthew,
01:22:28goodbye my son, goodbye my son, I will see you again Matthew, I'll call you when we're
01:22:32done okay, I'll see you again Matthew, I love you Matthew, goodbye Matthew, I love you Matthew,
01:22:40I love you, I love you, I love you Matthew, okay so we're going to go out into the right.
01:23:02Here they come, feet first, yeah, that's okay, great Teresa, who's the last one?
01:23:32He's checking the ID.
01:23:34Can you pass me the trigger please?
01:23:39Parents, can you unplug it?
01:23:41I'm sorry.
01:23:44Yeah, he's a good boy.
01:23:48Okay, suction's up to Dr. White, give me the skin knife please, skin knife.
01:23:53Second place.
01:23:55Knife moving.
01:23:57The liver and not the liver, but the pancreas can.
01:24:01Perfusion cannula, Karen, we need our pulmonal pleads please.
01:24:06Yep.
01:24:08Right away, please.
01:24:10The retractor.
01:24:12Yeah, we should be able to take the whole thing out.
01:24:18Where's the pulmonal pleads?
01:24:23Of course, yeah.
01:24:24Wonderful.
01:24:25Thank you, Chris.
01:24:26Okay, suction's up to Dr. White, give me the skin knife please.
01:24:29I'll keep going.
01:24:30Please.
01:24:32Please, thank you.
01:24:33Thanks, thank you.
01:24:34Hello.
01:24:35We're here.
01:24:40Hello.
01:24:43Bye-bye.
01:24:44I'd like to thank you all for joining us here tonight
01:25:07as we pay tribute to and remember Matthew.
01:25:12He lived his life how he wanted to,
01:25:14and he lived his life to the fullest with no regrets.
01:25:19I love you. I miss you.
01:25:23You're my friend. You're my best friend. You're my brother.
01:25:26And I'll see you again.
01:25:27So the other thing was Matt was really, really generous.
01:25:31He was really giving.
01:25:33That's what made him such a joy, even for Leslie and I.
01:25:36He's probably put Leslie and I on more adventures
01:25:39than we could shake a stick at just by spontaneous taking us out there.
01:25:43And have us live life full.
01:25:51We want you to know that Matthew was an organ donor.
01:25:55We knew that he would want to give this gift of life to someone who needed it.
01:26:06Our load was shared by so many,
01:26:10and our son was so loved by so many.
01:26:12We want you to know how grateful we are.
01:26:18We want you to know how grateful we are.
01:26:19Through you.
01:26:27We want you to know how wild it is.
01:26:30I love you.
01:26:34We want you to know how powerful we have to take care of will be.
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