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  • 2 days ago

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00:00I've tried every single thing, painkiller-wise, medication-wise, to try and stop the growth of this endo, but not doing anything.
00:07So I started my periods when I was like 16, so I was quite late when I started them.
00:11And even from the first period, I had unbearable cramps.
00:14And this went on for a few years. I didn't know what endometriosis was at the time.
00:17I just thought it was bad cramps.
00:19But things quickly began to escalate.
00:21In 2021, I had a lump, like I could feel it, and it was really sore whenever I got touched.
00:27I was being sick all the time. I was losing weight.
00:30I couldn't work, probably. When I was at work, I couldn't sit down because it was too unbearable, the pain.
00:35And then I ended up going to the doctors, and they referred me to A&E and said,
00:39you need to see someone for that. And obviously, I was panicked.
00:41I was like, well, what is it? But they wouldn't see anything.
00:43I got drips and stuff and IVs in it because they said I was so dehydrated and I was so skinny.
00:49But obviously, this was because I couldn't keep anything down because of the pain of the endo.
00:53And then I had a few ultrasounds, et cetera, done.
00:56And what they found was any woman's worst nightmare.
01:00And they said that it was a nine-centimeter endometriosis cyst on my left ovary,
01:05and I might end up losing my left ovary.
01:07The news was a massive shock to Riri.
01:10I was only 20 at the time.
01:11And they get told you could lose your left ovary. I was a bit panicked.
01:14I was like, well, what does that mean sort of thing?
01:16But this was just the beginning of her long battle.
01:19See, I was still being sick. I got anti-sickness tablets,
01:22very strong painkillers just to try and manage the pain, but it nothing else.
01:25Surgery happened four or five months later.
01:27After the surgery, they confirmed that it was endo.
01:30It had all been taken out.
01:32But then the day after the surgery, I said to my partner,
01:35I've still got endo pain.
01:36And she was like, you can't have it. It'll just be recovering.
01:38Everyone said it'll be you're recovering.
01:40But I was like, no, this is endo pain.
01:42And her suspicion was correct.
01:44I had an ultrasound in August.
01:46I had stage four endo.
01:47I had cysts in the pelted Douglas.
01:49My rectum was connected to my uterus.
01:51My ovaries were stuck behind my uterus.
01:54I had fluid in my tubes.
01:55I had everything.
01:56And I will never forgive the guy for what she did.
01:59Because if he had just referred me to the specialist in the first place,
02:03I personally don't think it would have been as bad as it got.
02:06So less than six months after surgery,
02:09the adhesions and stuff are back and causing me unbearable pain.
02:12She has only one option left.
02:14So I've asked for a hysterectomy.
02:16I'm just hoping to say yes,
02:18because I can't do this pain much longer now.
02:21Like at this point, I'm willing just to give it all up and just say,
02:24because this isn't a life.
02:26I lie in bed all day, every day.
02:27Can't go out, can't do anything,
02:28because I'm missing that much pain all the time.
02:31Give me a hysterectomy and say how I go.
02:34But I feel, have a feeling they're going to turn around and say,
02:37we can't do a hysterectomy because of your age.
02:39Bearing in mind, there's other ways to have children if I wanted them.
02:44But we shall see what happens.
02:46This painful condition is finally getting the spotlight online.
02:50Some argue endometriosis is still being brushed off by doctors
02:54and feel not enough is being done to support those living with it.
02:58But what do you think?
02:59Is endometriosis finally being taken seriously?
03:02Or is there still a long way to go?
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