00:00Imogen's mum has tried everything to reassure her about having a CT scan, but nothing works.
00:09So the five-year-old who lives with intellectual disability and profound hearing loss must be fully sedated for the procedure.
00:18She is highly sensitive to sounder movement. She's also extremely anxious in any medical setting.
00:25Worried about her growth in Imogen's middle ear, a specialist recently ordered a CT scan for her.
00:31Inika was shocked when told the next appointment for a sedated scan was in five months.
00:37If Imogen was a typical five-year-old, she would have had her scan and her doctor would have had the results within a week.
00:43More than 450,000 Australians live with intellectual disability.
00:48Those needing sedation or support during medical procedures often struggle.
00:52If someone can't undergo investigations, they may never receive the diagnosis and they have no chance of accessing treatment.
01:00Research shows people with intellectual disability die on average 27 years earlier than the rest of the population.
01:07A Queensland study which looked into deaths of people with intellectual disability found many people with disability were not diagnosed with the condition that led to their death until just before or after their death.
01:20Lack of access to support for procedures and investigations can really mean the difference between life and death.
01:27Imogen's mum didn't rest until she secured a CT scan under general anaesthetic for her daughter.
01:34I want to eat it.
01:35I want to eat it.
01:36The radiologist reported the growth had caused near complete obliteration of part of her ear.
01:42Slide our baby, baby still.
01:45She had surgery to remove the mass the following day.
01:48It could have grown towards her brain and it could have just continued to cause more catastrophic damage in her head.
01:54New South Wales Health has told the ABC it's committed to providing safe, inclusive and person centred care to people with disability.
02:03Decisions to conduct imaging under anaesthetic or sedation are based on a patient's needs and done in consultation with a treating practitioner.
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