00:00Imogen's mum has tried everything to reassure her about having a CT scan, but nothing works.
00:09So the five-year-old who lives with intellectual disability and profound hearing loss
00:15must be fully sedated for the procedure.
00:18She is highly sensitive to sounder movement.
00:21Worried about her growth in Imogen's middle ear, a specialist recently ordered a CT scan.
00:27Inika was shocked the next available appointment was in five months.
00:31If Imogen was a typical five-year-old, she would have had her scan
00:35and her doctor would have had the results within a week.
00:37More than 450,000 Australians live with intellectual disability.
00:42Those needing sedation or support during medical procedures often struggle.
00:46If someone can't undergo investigations, they may never receive the diagnosis
00:50and they have no chance of accessing treatment.
00:54A recent Queensland study found people with disability were not being diagnosed
00:58with deadly conditions early enough.
01:00Many were not diagnosed until just before or just after their death.
01:05Imogen's mum didn't rest until she secured a CT scan under general anaesthetic for her daughter.
01:11The radiologist reported the growth had caused near complete obliteration of part of her ear.
01:18She had surgery to remove the mast the following day.
01:21It could have grown towards her brain and it could have just continued to cause
01:25more catastrophic damage in her head.
01:27New South Wales Health has told the ABC it's committed to providing safe, inclusive
01:32and person-centred care to people with disability.
01:35Decisions to conduct imaging under anaesthetic or sedation are based on a patient's needs
01:42and done in consultation with a treating practitioner.
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