00:00The SLA is a complicated disease. It doesn't allow you to move your arms and legs, it makes you unable to speak, to swallow and not to breathe.
00:13It seems clear that the care is extremely complex.
00:18A revolutionary idea was that of Alberto Fontana, who years ago thought that for people of this type there is a need for a complexity of assistance.
00:29Simple but revolutionary.
00:31That's why I went to the NEMO centers.
00:33NEMO is a thought rather than a place.
00:37It is a way to deal with this complexity.
00:40We do it and we hope that this model will spread nationally.
00:45Because you can't think with traditional systems, as we have done so far, to manage this complexity.
00:52On the part of research, two years ago there was a real turning point.
00:58The SLA is a rapidly progressive disease.
01:02For the first time, it was possible, in this small percentage of people with SLA who have a sub-immune mutation, to stop the disease.
01:11There are still many things to understand about this therapy, which is the Topfersel, which acts only on people who have this mutation.
01:20But the scope is phenomenal.
01:23Before, we hoped to stop the SLA, which is a terrible disease.
01:28Now we know that it is possible.
01:30So it is possible to look for new ways.
01:34And these new ways are now based, for the first time, on scientific knowledge.
01:39The level is growing month by month.
01:42There is no week without new acquisitions.
01:45The moment will come when this acquisition of topics will lead to a new therapy.
01:51I believe in it, but not with a generic hope.
01:54I believe in it because knowledge is increasing to such a level that this will happen sooner or later.
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