00:00 So we've done a Baby Loss Memorial display for the last five or six years.
00:05 It started off quite small and it's grown year on year.
00:10 So each individual heart is on display and can be seen quite prominently.
00:16 Baby Loss Awareness Week is so important to thousands of parents
00:20 across not just Wales or the UK but the world.
00:23 It's celebrated annually and gives mums and dads a chance to share their experiences
00:27 without the stigma behind speaking about such an emotional issue.
00:30 So the week is about trying to break the stigma surrounding baby loss
00:37 and to get people talking about it so you know people that do unfortunately suffer losses
00:42 because they are far more frequent than people realise
00:45 can feel comfortable having conversations about their babies.
00:54 Fian's Gift started out as a way of fundraising money for screenings for pregnancies to find
00:58 irregularities like Edwards Syndrome, something that in 2018 wasn't available under the NHS.
01:04 Now it's freely available, the charity focuses on other fundraising activities
01:08 and raising awareness of baby and pregnancy loss.
01:10 Our main reason for starting the charity was basically to educate people
01:17 because we wanted to try and avoid people having the shock that we did
01:22 finding out that our baby was being diagnosed with a condition that we didn't know existed.
01:28 Finding out as early as possible in any subsequent pregnancies whether you know
01:34 another Edwards baby was a really really key thing so
01:38 being able to subsidise towards private screening for that was massive.
01:42 Many people wouldn't realise that up to one in four pregnancies doesn't make it to full term
01:47 so hundreds of mums around the world suffer the same harrowing fate
01:51 and Sarah hopes to help people talk about the issue and help ease the difficulties surrounding it.
01:55 And I think people think that the idea is the week is about mums and dads that have lost babies
02:05 it's not, it's to start the conversation for people that haven't been through a loss
02:13 to understand that it's okay to talk about babies that are no longer here
02:18 you know it's okay to let people that have suffered a loss show their emotions
02:23 and to not feel awkward when somebody mentions their babies because for me personally it took
02:30 me it took me a while to sort of understand that it was okay for me to talk about Ffion to other
02:37 people because I was always worried that other people would get upset and realistically that was my loss.
02:44 On Sunday thousands of people across the world will light a candle at 7pm
02:48 for an hour to remember all those babies who were taken too soon
02:52 so it's hoped that around the globe for 24 hours people can take a moment to think about the babies
02:57 mothers and fathers whose lives together were taken away.
03:00 James B. Watkins, Local TV.
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