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  • 2 days ago
A woman with a rare condition that causes hearing- and vision-loss lit up when a cochlear implant was activated in one of her ears. Rebecca Alexander, 47, from New York City, has been diagnosed with Usher syndrome, a rare genetic condition that combines both hearing loss and progressive vision loss. As a result, Rebecca received her first cochlear implant in her right ear in 2013, as while wearing her hearing aid, Rebecca had around a 28 percent discrimination rate – meaning she could only accurately repeat back what was said to her 28 percent of the time – and a 26 percent discrimination rate without. That procedure was a success, and Rebecca said being able to hear clearly – even though she has learned sign language – is extremely important to her, as she comes from a hearing family, and also works as a psychotherapist, listening to people speak all day. Then, years after her first implant, Rebecca was informed that she was a candidate for a cochlear implant in her left ear, too, which was overseen by staff at New York University Langone Cochlear Implant Center. This time, knowing what to expect, Rebecca had a friend capture the activation on video. As Rebecca heard the implant come to life, she lit up smiling and said, "Oh, I forgot what this feels like!" Her jaw then dropped as she declared, "It's so weird," as she was asked if she could hear on her left side, and whether the noise was loud or soft. The moment took place in December 2017, but it later went viral in February 2026, when Rebecca posted the clip on social media. The 47-year-old was quick to point out that the clip is not technically her hearing for the first time, as some might expect, but that her shock came from remembering what having the implants activated felt like, given it's such a surreal experience.
Transcript
00:00Oh, I forgot what this feels like. It's so weird.
00:06I don't use the word miraculous about anything, but for me, it was.
00:10Can you hear me on that side?
00:13You literally see my brain and like eyes just making sense of all of this.
00:19Dr. Syndrome is the leading genetic cause of progressive combined deafness and blindness.
00:25I was diagnosed with retinitis pigmentosa or P, the vision part of my condition, when I was 12.
00:31And then Usher syndrome officially at the age of 19.
00:34I woke up with really loud ringing in my ears, tinnitus, which is oftentimes what war veterans experience or musicians.
00:41And the sensation was that I couldn't hear people speak to me over it.
00:45To be losing my vision and to then not have access to sound would be daunting.
00:50And it can feel very isolating and very lonely.
00:52I got here implanted on my right side in 2013.
00:56For my left ear, it was about five years later that my left ear became a candidate.
01:01I'd forgotten what it sounded like to be activated again.
01:04Oh, I forgot what this feels like.
01:07It's so weird.
01:10Ah, can you hear me on that side?
01:17Is it loud? Is it soft?
01:20No, it's soft.
01:21Do you want more?
01:23So I'm only, oh my God.
01:25You're only hearing out of that ear.
01:27I completely forgot this.
01:27You know what's so incredible, Allison?
01:30It only makes me teary because it's incredible that this can become this.
01:35Yeah, it will.
01:37Getting cochlear implanted was absolutely life-changing for me.
01:41Her sister stayed for lunch.
01:44Her sister stayed for lunch.
01:45The train is moving fast.
01:47The train is moving fast.
01:49And I was up sentences in a sound booth 100%, which is absolutely life-changing, miraculous.
01:56I do not know how I would be able to live my life with as much ease and freedom as
02:03I do now.
02:04Tell me I will talk to you all in this morning.
02:06Tell me I will come to you all in this morning.
02:08We're very confident in my life when I have somebody willing to live my life.
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