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Extraordinary Portraits Season 5 Episode 4
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00:10¡SuscrÃbete al canal!
00:30...to immortalize these unsung heroes with a unique series of portraits.
00:34This is the hardest bit for you, isn't it, Eddie?
00:36Sitting still.
00:37We were just, uh, we were just looking at you.
00:40Can you look at me with your eyes?
00:42It's not going to be easy.
00:43I feel in my own personal hell.
00:45The reveals are not that far away now.
00:48If this second cast fails, I'm done.
00:50There's a big sense of responsibility to capture their story.
00:55But the results are going to be amazing.
00:57I've put my heart and soul into this.
00:58Three, two, one.
01:02Fantastic.
01:03Quite blown away, to be honest.
01:05I wasn't thinking you were going to make me cry.
01:07Sorry, I'm getting a bit emotional.
01:10Creating a legacy for generations to come.
01:13I want to remember them like that.
01:15I'm struggling to find right words because there's no words.
01:18To have us captured in that moment, in that spot that means so much is, uh, an absolute privilege.
01:25Welcome to Extraordinary Portraits.
01:39Most of us live our lives thinking we've got plenty of time.
01:43Time to make plans, to put things off, to pursue dreams.
01:48But what if you knew that your time was limited, that your life might be curtailed?
01:55Well, our next sitters are living with that sobering reality.
02:00But instead of letting it take them over, they've decided to step up, to make changes, and to live a
02:08life truly of purpose.
02:16Jordan and Kian have a rare form of dementia expected to develop in their forties.
02:21The same disease that claimed their mother's life at the age of 52.
02:25Determined to make their time count, they're raising awareness and funds to find a cure for a disease that affects
02:32almost a million people in the UK.
02:34Hello.
02:35How are you?
02:35Kian?
02:36Nice to see you.
02:37Jordan?
02:37Nice to meet you.
02:38Good to meet you, lads.
02:39Yeah.
02:39Come on in.
02:40Thank you.
02:41Follow me.
02:42Welcome to Portrait Towers.
02:48Firstly, Kian and Jordan, welcome.
02:50If you could just explain to me a bit about the diagnosis.
02:54Early onset frontotemporal dementia.
02:56Right.
02:57It's incredibly rare, this type of dementia.
03:00But just to put it into perspective, our nan was one of six siblings.
03:03Four out of the six had dementia in their forties.
03:05And we had 50% chance of inheriting the faulty copy from our mum.
03:09And once you inherit that faulty copy, you unfortunately have 100% chance of developing symptoms of FTD.
03:16We know that we are carriers of the genetic fault.
03:18Gosh.
03:19We are going to lose our lives more than likely in our forties.
03:22And it's going to be like watching what mum went through all over again with us.
03:28That must have been quite a sort of devastating bit of news for you guys.
03:33Definitely.
03:34Let's talk about your mum.
03:36Just if you can paint a bit of a picture of what kind of person she was.
03:40Mum was kind of the beaten heart of our family.
03:43She always went the extra mile, kind of, on birthdays and Christmases to make our day feel extra special.
03:48Sounds like she was an amazing woman.
03:50Ah, most definitely, yeah.
03:52When did you first realise that there was signs that things were not right?
03:57She was formally diagnosed when I was nine and you were 15.
04:01Dad sat us all down in the front room to say that mum had this terminal diagnosis
04:06and that if she was going to have six to ten years to live, there's certainly no cure.
04:09There's a lot to go through as kids, though.
04:13Yeah, so overnight we became mum's carers, I suppose.
04:18It seems unusually cruel.
04:21It was really, really hard.
04:22A thousand times over, I wish this never happened.
04:24I wish mum was still here.
04:25I wish we were never affected by all of this, if I'm honest.
04:28But, you know, you play the cards that you doubt, right?
04:31How do you feel about how that's changed your view of your lives?
04:35I've been on the journey to turn my circumstances into something positive,
04:38flip it on its head and give me real purpose back into my life
04:42and use it as a kind of a, this diagnosis as a licence to live
04:46and a reminder that life is short.
04:48Part of that is, for me, is making a difference whilst we're here, you know,
04:53and how we should set a target to raise £100,000 in the calendar year for the charity.
04:59There's a lesson for everyone about this,
05:01and I think that's a tribute to you, probably to your mum and dad as well.
05:04I genuinely believe that together we can be such a force
05:07that we can raise millions of pounds towards research
05:10and hopefully bring about life-changing treatments
05:13for millions of people in the future.
05:15I salute both of you for that attitude.
05:17Thank you.
05:18Now, have you any idea how this portrait might pan out?
05:25We're just quite excited about the opportunity, you know, something new for us.
05:29All right, then.
05:30Are you ready to meet your artists?
05:32Yes.
05:33Yeah, sounds good.
05:34All right, well, sit tight.
05:35Okay.
05:46Hi, Ricky.
05:47Nick, good to see you.
05:48Oh, I won't do that.
05:50Honestly, it was incredibly moving,
05:53talking to these two young lads
05:55who were living with a sort of life-changing diagnosis.
05:59It touches on a lot of other things of memory and loss and sort of celebrating life.
06:05I think, Unza, you'd be perfect for this.
06:08Oh, wow, okay.
06:09So, if you'd come with me, I'll fill you in on the way.
06:12All right, see you, everyone.
06:13See you later.
06:13See you later.
06:14Bye.
06:15Thank you.
06:17Two of them.
06:19I hope the next one's not triplets.
06:24Okay, chaps, this is your artist.
06:26This is Unza.
06:27Nice to meet you, guys.
06:27I'd like you to introduce to Jordan and Kian.
06:30Nice to meet you.
06:32All right.
06:32Is there anything that you'd want to ask, Unza?
06:35Yeah, I think the main thing for us is that it's not all doom and gloom, I think,
06:38and we want it to be somewhat hopeful, if that's possible.
06:42Yeah, of course.
06:43It's your portrait.
06:44Yeah, yeah.
06:45And what kind of...
06:46What do you want it to represent?
06:48The one thing we come back to is kind of creating a legacy
06:50to live on long after we lose our lives to dementia.
06:54I think I'm looking forward to getting to know you guys
06:56and really getting to understand your story.
06:58I want to do your story justice.
07:00Thank you.
07:00I'm going to leave you to it.
07:02Thanks, Bill.
07:03So, good luck.
07:04I'll see you soon.
07:05We'll see you soon.
07:13There's many, many layers to this story.
07:16That is a feature of Unza's art.
07:19So, I think she's the right person to take on this challenge.
07:24I'm fascinated to see how it will unfold.
07:39Family is at the heart of Jordan and Kian's story,
07:42so that's where Unza begins.
07:45I think the family really gives us a touch of personal insight.
07:49We can't really hide ourselves from the people who we live with,
07:52the people who are the closest to us,
07:53so I'm kind of hoping to do some really good detective work today.
08:02Hello.
08:03How are you?
08:04You all right?
08:04Hi.
08:04Nice to see you.
08:05Good to see you guys.
08:05How are you?
08:05And you OK?
08:06Come on in.
08:07Thank you.
08:08We're just through here.
08:11So, this is my dad, Glenn.
08:13Nice to meet you.
08:13Hi, nice to meet you.
08:14My sister, Canada.
08:16Hi, nice to meet you.
08:18I don't know how she's going to fit both your ugly mugs.
08:20I'm not on canvas.
08:22You made us.
08:23Yeah.
08:25Only partly.
08:26Sorry, you'll get used to his bad jokes.
08:31Oh, wow.
08:33So, I feel like you are as important to get to know as the boys are.
08:38You must be so proud of your boys.
08:41I'm proud of my boys.
08:43And whilst the spectre of dementia is always on your shoulder,
08:50we're living life as normally as we can.
08:54It affected them all differently.
08:56Cian being the youngest, it was anxiety.
08:59And Jordan, for a very long time, was anger.
09:03But they've turned it round.
09:04I think they've achieved a lot.
09:05And I think they're going to go on to achieve a lot more.
09:08I didn't want any of them to inherit the illness from the mum.
09:14But this might sound weird.
09:16They're going through it together.
09:19It's a tough process.
09:21But I'm glad that it's not just one of them going through it on their own.
09:25Yeah, honestly, you guys have really shown a lot of support and love with each other.
09:31And I hope I capture that.
09:33Thank you very much.
09:34I think let's get some food out now.
09:46When you found out about your diagnosis, how did you kind of take that?
09:52Yeah, it was extremely hard.
09:54Like, I was so anxious at the time.
09:55It was all that dominated my thoughts, really.
09:57I couldn't really sleep at night.
09:58It was horrible.
09:59But, yeah, eventually came back around to the smartly, you know, positive person that I am.
10:05There's a kind of strange comfort in that, the idea that we are in it together, no matter how horrible
10:10that is.
10:16So, you have some pictures here.
10:17This is a book that Kian's friends made for him after he got his diagnosis.
10:23So, he's put the page in with us and we've got some old ones with mum.
10:28Wow.
10:28She's very glamorous.
10:30Oh, she's so beautiful.
10:31It's one of my favourite ones, me and my mum.
10:33You can kind of see how full of life she is.
10:37Yeah.
10:37We try and keep her memory alive as well through her things.
10:40Aren't we all had a tattoo in the same place?
10:43Oh, wow.
10:44What does it say exactly?
10:46Love always.
10:47Always.
10:48So, she would always sign, like, birthday cards, Christmas cards off with that.
10:52So, yeah, it's just like a look down and remember mum.
10:57Like, we have a really close bond.
10:59They always, before they put the phone down, say, love you loads.
11:02Like, we've been through something together that I think, unless you have lived it,
11:06no one can understand that, like, no one has walked in those footsteps.
11:12I kind of just had to take a second.
11:15Their story is just so, it's so much, you know, to take in.
11:20There's a big sense of responsibility to capture their story, to capture their legacy.
11:26Lost kind of, it can push people apart, but they've used it as a kind of excuse to kind of
11:32come together even more.
11:33So, just have a conversation, just laugh, tell jokes.
11:39Huey!
11:41That's it, that's the portrait.
11:44Talking to them now, having an initial idea of what I want to do,
11:47I know that it has to be kind of something very natural.
11:51I kind of want to get them in their element.
11:53Can I ask one of you to put the arm around, like...
11:56Should we do what we know I'm doing now and see ya?
12:03After meeting the family, Unza now faces a difficult choice.
12:07Do I kind of want to take the painting in a positive, amazing direction,
12:12or do I want it to depict the tragedies they've gone through and that they're still going through?
12:17I think I'm going to try and catch Jordan tomorrow on his run
12:23and see if he can kind of give me more insight.
12:42How are you?
12:43I'm all right, how are you?
12:44Yeah, good, thank you.
12:48My mum's friend paid for this bench to be put here for my mum and their sister
12:52who also died from frontotemporal dementia.
12:54And I am biased, but I do think that it's the best view of the lake.
12:58Oh, that really is.
12:59Yes.
13:00I spend a lot of time here, so...
13:01If you ever want to be alone, is this where you go?
13:04Yeah, I think that's it.
13:05I think if I ever want to switch off from kind of the chaos of the world,
13:09I come and sit here and it's a really peaceful, kind of quiet spot.
13:12I hear the birds tweeting.
13:14So what worries you about the future the most?
13:16The biggest worries come from the people that I leave behind,
13:19you know, the burden that it places on my wife,
13:23my dad and my siblings who are having to relive, basically,
13:26the experience we went through with my mum all over again,
13:28and it's that that worries me most.
13:31I've got some sort of contentment about, you know,
13:33ultimately my fate is one that I'm going to lose my life early
13:36and that is more than likely going to be to fund a sample dementia.
13:39You worry about everyone else but yourself?
13:42I definitely think, you know, that all the work we're doing
13:45can take us closer to a world without dementia.
13:49Do I think that the cure will come in time for me and my brother?
13:52Probably not.
13:56I've got a couple more miles to do, so I'm going to get off and...
13:59Yeah, no worries.
14:00OK. Nice to meet you again.
14:01All right, cool.
14:02See ya.
14:17Unza's paintings tell a story through hidden clues and messages,
14:21so they require more than just a perfect shot to capture what she needs.
14:25You guys just kind of talking, doing what you normally would do on the bench.
14:29Candid.
14:30Candid. There you are.
14:33Brilliant. Let's go.
14:35Let's go.
14:36Can you come just a tiny bit closer?
14:40Yeah, yeah, yeah, yeah.
14:42Talk to each other. How would you guys talk to each other?
14:47I'm trying to get them to feel at home,
14:50but in a place that's significant to both of them.
15:03How do you guys feel being here?
15:05I think it just offers somewhere other than the cemetery, ultimately,
15:09that I can feel a bit closer to mum.
15:12What I'm trying to achieve is the perfect composition
15:15with the perfect kind of balances of colour, contrast.
15:19Everything has to be balanced out.
15:28This is literally changing the whole idea of the painting for me.
15:34This is literally changing the whole idea of the painting for me.
15:49Brilliant. Can you get a bit closer, though? Now.
15:57One more time for me, yeah?
15:58Ready?
15:59You got me calling it all times.
16:04That's brilliant.
16:06That's the one.
16:08If I was a bluebird, I would fly to you.
16:17Unza's taken hundreds of pictures for reference,
16:20hoping she'll find inspiration for the composition and mood of her piece.
16:25Hey, Unza.
16:26Hello, Ben.
16:27How's it going?
16:27How are you?
16:28Very good.
16:30How have you been?
16:32Very good, thanks.
16:33Yeah.
16:34How about you?
16:35I haven't had my eureka moment yet.
16:37That's what you're after.
16:38That's what I'm after.
16:39So what's the plan today?
16:40So the plan today is to develop pictures that I haven't even seen,
16:43and I'm hoping that they give me something to work with.
16:47All right.
16:48Let's get to work.
16:48Let's do it.
16:50OK, so I just drop it in, yeah?
16:53On your marks, get set, go.
16:57OK, slosh it around a bit so it gets covered,
16:59and then they just leave it.
17:01Oh, it's already starting to develop.
17:02Look at that.
17:03I can see an image of somebody sitting on a bench in the park.
17:06It's like a magic trick, isn't it?
17:07It just sort of appears.
17:09Don't want to mess it up.
17:10Right, OK, this is going in here, yeah?
17:11Yep.
17:12OK, there we go.
17:13That's amazing.
17:14You're an actor.
17:14Have you done this before?
17:15No, but I have moved things around with tongs.
17:27Gosh, they really came out well.
17:29Amazing, aren't they?
17:30For me, I would prefer to capture the emotion rather than the aesthetic.
17:35And I feel like what isn't being captured in this picture
17:39is how Jordan is an elder brother to Kian
17:42and how he takes care of him
17:43and how, despite his own issues, he's always there for Kian, you know?
17:48And they both have that energy and they both have that light.
17:51I would say that goes a long way to telling their story.
17:55Do you know, surprisingly, I feel like my mind just decluttered a little bit.
18:03Just as she was getting to grips with the painting,
18:06Unza's had her own family emergency.
18:09Her mother's been rushed to hospital.
18:11I've just landed in Pakistan.
18:13I'm on my way to see my mum.
18:15She's not been doing so well.
18:17It's a really stressful time for me right now.
18:19What I've done is I've shipped the painting from London to Lahore now.
18:25So I'm just going to wait for it to arrive
18:26and see if I can finish it while I'm here.
18:31I've just been really, really stressed
18:33because now there's just so much going on at one time.
18:45The heat and humidity of Lahore brings its own issues.
18:49I've run into a few challenges.
18:51I used the wrong medium to prime the canvas
18:53and now the oils just will not dry.
18:58It's too late for me now to order a new canvas and start from scratch.
19:02I'm just, I'm panicking a bit, so fingers crossed.
19:13While painting this, I think I was thinking about the boys and their mum a lot
19:16and kind of drawing parallels into their lives and mine.
19:20It's definitely kind of helped me connect to them in a way
19:24and that's kind of helped me connect to the painting.
19:34The reveal day is looming,
19:36but Unza won't be there as her mum is still unwell.
19:40So the painting is finished and it has been packed up.
19:44It's on its way to them right now
19:46and I'm not going to lie, I am very sad.
19:51Just because I thought I would be there.
19:58In an extraordinary portraits first,
20:00I'll be doing the reveal on Unza's behalf.
20:03Hey, Caroline.
20:04Hi, Bill.
20:04How you doing, all right?
20:05Yeah, good.
20:06This is it, this is Unza's portrait.
20:08It is indeed, in one piece.
20:10Thank goodness for that.
20:11Yeah.
20:11It's been on a bit of a mission, isn't it?
20:16Jordan and Kian have brought their family along for the big day.
20:32Looking forward to seeing the painting?
20:33Yeah.
20:35Exciting?
20:35Now that's...
20:36Hello.
20:36Hi, Bill.
20:38How are you?
20:39Hey, Unza.
20:40How's your mum doing?
20:42She's doing much better.
20:43Thank you, Bill.
20:44Oh, good to hear.
20:45Going through what you're going through with your mum,
20:47it must have been...
20:48There's a lot of...
20:49A lot of emotions attached to this now.
20:51A hundred percent.
20:52I feel like I've really connected to the boys and their story.
20:55I feel like somehow, somewhere, we drew parallels.
20:58That kind of really helped me
21:01see things from their perspective
21:02and how they were kind of going through life.
21:04It's a shame that you can't be with us,
21:06but I understand you've got to be there.
21:07Yeah, it's definitely been tough, but...
21:10You know, I'm glad we made it here.
21:12It's also so incredible to have a portrait done, like...
21:14Yeah.
21:15Yeah.
21:15Are you feeling celebs?
21:17It just feels weird, so surreal.
21:19I just hope that it's captured in a way
21:22that it's kind of uplifting
21:24rather than, like, overwhelmingly sad.
21:26I'm going to do the reveal for you, OK?
21:28So, I hope I'm not going to mess this up.
21:33All right, speak to you later, Bill. Thank you.
21:36Everyone, if you'd like to come through,
21:37there's a portrait viewing.
21:39Well...
21:46Well, firstly, welcome, everyone.
21:48How are you feeling about today?
21:51It's a bit of a surreal feeling.
21:52I think there's some nerves there.
21:54There's a lot of excitement, too.
21:55Yeah, just excited to see what she's created.
21:58I'm very, very, very scared.
22:00Looking at you guys there,
22:02I can feel my heart pounding.
22:04I just really hope you like it.
22:06So, OK, so this is it, the moment.
22:08Moment of truth.
22:10You ready?
22:12Yeah.
22:13OK.
22:36Wow.
22:37That's fast.
22:38That's really hateful.
22:39I wasn't expecting that.
22:41I think it's fantastic.
22:42Yeah, it's brilliant.
22:44They got you smiles.
22:45Just, uh, quite blown away, to be honest.
22:52You're OK?
22:53You're OK.
22:57Oh, I don't care.
22:58It's going to set me up.
22:59Sorry.
23:00It's fine.
23:01All right.
23:02One day I'm not going to have them, and I want to remember them like that.
23:11I'm just pleased that Unza's been able to encapsulate, as I say, that moment in time, and to see us
23:17just laughing.
23:18Because I think a lot of the things that we do can be often quite serious and quite sad because
23:22of the topic and the circumstances.
23:24Um, and people forget that we're just two normal lads who take the mick out of each other and have
23:30a laugh and enjoy good times as well.
23:32We didn't want it to be dark and negative, we wanted it to be optimistic and capture our, hopefully, good
23:39energy.
23:40I feel shocked.
23:42That's how I know them.
23:44Like, she's captured them as my brothers.
23:47You know, having a laugh and how they are as people because it's very easy for people to see them
23:54as, like, really inspiring, really resilient, really strong.
24:00But they're my little brothers.
24:03And I see the down days and the hard days and the good days.
24:09I see them live and breathe this.
24:13And I think there's so many things that Unza could have captured, but she's captured them.
24:21That's showing you today that although it's a dark future, that you're living for today, life is worth living in,
24:28that you're happy and you're smiling.
24:32In the future, when we maybe don't have Jordan and Kian as we have them today, it's a moment in
24:41time that, um, we've shared together and Unza has managed to capture that wonderfully.
24:48They just, like, bring light into a room and I think that that picture captures it perfectly.
24:53It's so nice to have something that you love just there forever.
24:58Yeah.
24:59It would appear to everybody else as a small detail.
25:02It's hugely significant.
25:04Jordan's tattoo says, love always.
25:07It's in Gerry's handwriting and each of them have that tattoo in the same place.
25:11So that's very significant.
25:14It's a nod to my mum straight away.
25:17It's something that has binded us together even closer because there's a story behind that as well.
25:24And to capture Gerry's name and her date of birth on the bench is also a small detail to other
25:31people, but hugely significant to all of us.
25:37It's in a place of huge significance for us as a family.
25:41We lost our mum over a six-year period and every day she became less and less of the person
25:46than the mum and the wife that we all knew her as.
25:50Somewhere where I go quite regularly if I'm struggling, to have us captured in that moment, in that spot that
25:58means so much is an absolute privilege.
26:01We know that dementia is our future if nothing changes and sadly that only ends with us being taken away
26:07day by day when we become symptomatic.
26:11And that's incredibly difficult for both me and Keane, you know.
26:13So I think we very much live in the present, so to see kind of the emotion from my sister,
26:18you know, and it really does hit home that ultimately one day we're going to leave these guys behind.
26:25I feel very privileged that Unde's been able to create something that can live on long after us, hopefully.
26:33So what I'm going to do now is I'm just going to step out for a minute and let all
26:37of you come a bit closer and really take in the painting.
26:43Okay.
26:44Thank you.
26:45Thank you.
26:49God, it looks so, like, you two, it's weird.
26:53The detail on the t-shirts is incredible as well.
26:56Yeah.
26:56The closer you get, like, the more you see the detail.
26:59Incredible, really.
27:00Brilliant piece of art.
27:08Hello.
27:08Hi, Unde.
27:09Hi, guys.
27:10We just want to say it's absolutely incredible.
27:13It's been very emotional.
27:14The details and the effort that you've put in to encapsulate the energy and who we are as people, yeah,
27:19I'm just really grateful.
27:20It's incredible.
27:21The first day I met you guys to the last time I saw you guys, you guys were laughing and
27:26just such happy people.
27:27Your smiles are the first things that need to be captured in this painting.
27:31Thank you, honestly.
27:32You guys are amazing.
27:34Thank you.
27:39It was very moving to see the reaction of the family.
27:44It shows just how important, how significant this portrait is going to be to them and to the family, particularly
27:52in the future.
27:53She's captured them in a moment.
27:56It's a moment between two brothers.
28:00Kian and Jordan, they teach us all kinds of lessons about life, you know, and that is that life is
28:06fleeting.
28:08It's precious and we should seize every moment with both hands and live it to the fullest.
28:38It's precious and we should be able to take care of the family, you know, and that is how important
28:42it is to the family, you know, and to the family, you know, and to the family, you know, and
28:44to the family, you know, and to the family, you know, and to the family, you know, and to the
28:45family, you know, and to the family, you know, and to the family, you know, and to the family, you
28:45know, and to the family, you know, and to the family, you know, and to the family, you know, and
28:45to the family, you know, and to the family, you know, and to the family, you know, and to the
28:46family, you know, and to the family, you know, and to the family, you know, and to the family, you
28:46know, and to the family, you know, and to the family, you know, and to the family, you know, and
28:49to the family, you know, and to the family,
28:57Gracias.
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