Extraordinary Portraits Season 5 Episode 4

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Transcript

00:01None of us know what surprises life has in store for us.

00:06But all around are everyday heroes.

00:08Ordinary people showing amazing bravery, courage and determination.

00:12I was holding him by the wrists so that he couldn't blow up the bomb.

00:15When I opened my eyes, I was on the hospital bed, all handcuffed.

00:19I competed in eight Ironman triathlons.

00:23And I'm here to give them the recognition they deserve.

00:26I've assembled a crack team of artists, painters and sculptors

00:30to immortalize these unsung heroes with a unique series of portraits.

00:34This is the hardest bit for you, isn't it, Eddie?

00:36Sitting still.

00:37We were just looking at you.

00:40Can you look at me with your eyes?

00:42It's not going to be easy.

00:43I've been in my own personal hell.

00:45The reveals are not that far away now.

00:48If this second cast fails, I'm done.

00:50There's a big sense of responsibility to capture their story.

00:54But the results are going to be amazing.

00:57I've put my heart and soul into this.

00:59Three, two, one.

01:02Fantastic.

01:03Quite blown away, to be honest.

01:05I wasn't thinking you were going to make me cry.

01:07Sorry, I'm getting a bit emotional.

01:10Creating a legacy for generations to come.

01:12I want to remember them like that.

01:14I'm struggling to find right words because there's no words.

01:18To have us captured in that moment, in that spot that means so much is an absolute privilege.

01:25Welcome to Extraordinary Portraits.

01:39Most of us live our lives thinking we've got plenty of time.

01:43Time to make plans, to put things off, to pursue dreams.

01:48But what if you knew that your time was limited, that your life might be curtailed?

01:56Well, our next sitters are living with that sobering reality.

02:00But instead of letting it take them over, they've decided to step up to make changes and to live a

02:08life truly of purpose.

02:16Jordan and Kian have a rare form of dementia expected to develop in their forties.

02:21The same disease that claimed their mother's life at the age of 52.

02:25Determined to make their time count, they're raising awareness and funds to find a cure for a disease that affects

02:32almost a million people in the UK.

02:34Hello.

02:35How are you?

02:35Kian?

02:36Nice to see you.

02:37Jordan?

02:37Nice to meet you.

02:38Good to meet you, lads.

02:39Come on in.

02:41Follow me.

02:42Welcome to Portrait Towers.

02:48Firstly, Kian and Jordan, welcome.

02:50If you could just explain to me a bit about the diagnosis.

02:54Early onset frontotemporal dementia.

02:56Right.

02:57It's incredibly rare, this type of dementia.

03:00But just to put it into perspective, our nan was one of six siblings.

03:03Four out of the six had dementia in their forties.

03:05And we had 50% chance of inheriting the faulty copy from our mum.

03:09And once you inherit that faulty copy, you unfortunately have 100% chance of developing symptoms of FTDA.

03:16Mm.

03:16We know that we are carriers of the genetic fault.

03:18Gosh.

03:19We are going to lose our lives more than likely in our forties.

03:22Mm.

03:23And it's going to be like watching what mum went through all over again with us.

03:28That must have been quite a sort of a devastating bit of news for you guys.

03:33Definitely.

03:34Let's talk about your mum.

03:36Just if you can paint a bit of a picture of what kind of person she was.

03:40Mum was kind of the beaten heart of our family.

03:43She always went the extra mile, kind of, on birthdays and Christmases to make our day feel extra special.

03:48Sounds like she was an amazing woman.

03:50Oh, most definitely, yeah.

03:52When did you first realise that there was signs that things were not right?

03:57She was formally diagnosed when I was nine and you were 15.

04:01Dad sat us all down in the front room to say that mum had this terminal diagnosis

04:06and that she was going to have six to ten years to live, there's certainly no cure.

04:09That's a lot to go through as kids, though.

04:13Yeah, so overnight we became mum's carers, I suppose.

04:18It seems unusually cruel.

04:20It was really, really hard.

04:22A thousand times over, I wish this never happened, I wish mum was still here,

04:25I wish we were never affected by all of this, if I'm honest.

04:28But, you know, you play the cards that you doubt, right?

04:30How do you feel about how that's changed your view of your lives?

04:35I've been on the journey to turn my circumstances into something positive,

04:39flip it on its head and give me real purpose back into my life

04:42and use it as a kind of, this diagnosis as a licence to live

04:46and a reminder that life is short.

04:48Part of that is, for me, is making a difference whilst we're here, you know,

04:52and how we should set a target to raise £100,000 in the calendar year for the charity.

04:59There's a lesson for everyone about this,

05:01and I think that's a tribute to you, probably to your mum and dad as well.

05:04I genuinely believe that together we can be such a force

05:07that we can raise millions of pounds towards research

05:10and hopefully bring about life-changing treatments for millions of people in the future.

05:14I salute both of you for that attitude.

05:18Now, have you any idea how this portrait might pan out?

05:25Um...

05:25We're just quite excited about the opportunity, you know, something new for us.

05:29All right then.

05:30Are you ready to meet your artists?

05:32Yes.

05:33Yeah, sounds good.

05:34All right, well, sit tight.

05:35Okay.

05:46Hi, Ricky.

05:47Nick.

05:47Good to see you.

05:48Oh, I won't do that.

05:50Honestly, it was incredibly moving, talking to these two young lads

05:55who were living with a sort of life-changing diagnosis.

05:59It touches on a lot of other things, of memory and loss

06:03and sort of celebrating life.

06:05I think, Unza, you'd be perfect for this.

06:08Oh, wow, okay.

06:09So, if you'd come with me, I'll fill you in on the way.

06:12All right.

06:12See you, everyone.

06:13See you later.

06:14Bye.

06:17Two of them.

06:19I hope the next one's not triplets.

06:24Okay, chaps, this is your artist.

06:26This is Unza.

06:27Nice to meet you guys.

06:28I hope you're introduced to Jordan and Kian.

06:30Nice to meet you.

06:31Nice to meet you.

06:32All right.

06:33Is there anything that you'd want to ask, Unza?

06:35I think the main thing for us is that it's not all doom and gloom,

06:38I think, and we want it to be somewhat hopeful, if that's possible.

06:42Yeah, of course.

06:43It's your portrait.

06:44Yeah, yeah.

06:45And what kind of...

06:46What do you want it to represent?

06:48The one thing we come back to is kind of creating a legacy

06:50to live on long after we lose our lives to dementia.

06:54I think I'm looking forward to getting to know you guys

06:56and really getting to understand your story.

06:58I want to do your story justice.

07:01I'm going to leave you to it.

07:02Thanks, Bill.

07:03So, good luck.

07:04Thanks.

07:04I'll see you soon.

07:05Well, Phil.

07:05See you soon.

07:13There's many, many layers to this story.

07:16That is a feature of Unza's art.

07:19And so, I think she's the right person to take on this challenge.

07:24I'm fascinated to see how it will unfold.

07:39Family is at the heart of Jordan and Kian's story.

07:42So, that's where Unza begins.

07:45I think the family really gives us touch of personal insight.

07:49We can't really hide ourselves from the people who we live with,

07:52the people who are the closest to us.

07:53So, I'm kind of hoping to do some really good detective work today.

08:02Hello.

08:03How are you?

08:04You all right?

08:04Hi.

08:04Nice to see you guys.

08:05Hey.

08:06Come on in.

08:08Just through here.

08:11So, this is my dad, Cleann.

08:13Nice to meet you.

08:13Hi, nice to meet you.

08:14My sister.

08:15Can I do?

08:16Hi, nice to meet you.

08:18I don't know how she's going to fit both your ugly mugs.

08:20I'm on canvas!

08:22You made us.

08:23Yeah.

08:25Only partly.

08:26Sorry, you'll get used to his bad jokes.

08:31Oh, wow.

08:33So, I feel like you are as important to get to know as the boys are.

08:38You must be so proud of your boys.

08:41I'm proud of my boys.

08:43And whilst the spectre of dementia is always on your shoulder,

08:50we're living life as normally as we can.

08:54It affected them all differently.

08:56Cian being the youngest, it was anxiety.

08:59And Jordan, for a very long time, was anger.

09:02But they've turned it round.

09:04I think they've achieved a lot.

09:05And I think they're going to go on to achieve a lot more.

09:08I didn't want any of them to inherit the illness from the mum.

09:14But this might sound weird.

09:16They're going through it together.

09:19It's a tough process.

09:21But I'm glad that it's not just one of them going through it on their own.

09:25Honestly, you guys have really shown a lot of support and love with each other.

09:31And I hope I capture that.

09:33Thank you very much.

09:34I think let's get some food out now.

09:36Yeah.

09:46When you found out about your diagnosis, how did you kind of take that?

09:52Yeah, it was extremely hard.

09:54Like, I was so anxious at the time.

09:55It was all that dominated my thoughts, really.

09:57I couldn't really sleep at night.

09:58It was horrible.

09:59But, yeah, I eventually came back around to the smartly, you know, positive person that I am.

10:05There's a kind of strange comfort in that, the idea that we are in it together, no matter how horrible

10:10that is.

10:16So, you have some pictures here.

10:18This is a book that Kian's friends made for him after he got his diagnosis.

10:23So they've put the page in with us and we've got some old ones with mum.

10:27Wow.

10:28She's very glamorous.

10:30Oh, she's so beautiful.

10:31She's one of my favourite ones, me and my mum.

10:33You can kind of see how full of life she is.

10:36Yeah.

10:37We try and keep her a memory alive as well through her things, aren't we all?

10:41We all had a tattoo in the same place.

10:43Oh, wow.

10:44All three of you.

10:44What does it say exactly?

10:46Love always.

10:47Always.

10:48So she would always sign, like, birthday cards, Christmas cards, off with that.

10:52So, yeah, it's just like a look down and remember, mum.

10:57Like, we have a really close bond.

10:59They always, before they put the phone down, say, love you loads.

11:02Like, we've been through something together that I think, unless you have lived it, no one can understand that, like,

11:08no one has walked in those footsteps.

11:12I kind of just had to take a second.

11:15Their story is just so, so much, you know, to take in.

11:20There's a big sense of responsibility to capture their story, to capture their legacy.

11:26Lost kind of, it can push people apart, but they've used it as a kind of excuse to kind of

11:32come together even more.

11:34Just have a conversation, just laugh, tell jokes.

11:39Hooey!

11:41That's it, that's the portrait.

11:44Talking to them now, having an initial idea of what I want to do, I know that it has to

11:48be kind of something very natural.

11:51I kind of want to get them in their element.

11:53Can I ask one of you to put the arm around, like...

11:56Shall we do what anyone's doing now and see ya?

12:03After meeting the family, Unza now faces a difficult choice.

12:07Do I kind of want to take the painting in a positive, amazing direction, or do I want it to

12:13depict the tragedies they've gone through and that they're still going through?

12:17I think I'm going to try and catch Jordan tomorrow on his run.

12:23And see if he can kind of give me more insight.

12:42How are you?

12:43I'm all right, how are you?

12:44Yeah, good, thank you.

12:48My mum's friend paid for this bench to be put here for my mum and her sister who also died

12:52from frontotemporal dementia.

12:54And I am biased, but I do think that it's the best view of the lake.

12:58Oh, that really is.

12:59Yes.

13:00That's amazing.

13:00I spend a lot of time here, so...

13:01If you ever want to be alone, is this where you go?

13:04Yeah, I think that's it.

13:05I think if I want to switch off from kind of the chaos of the world, I come and sit

13:10here and it's a really peaceful, kind of quiet spot.

13:12I hear the birds tweeting.

13:14So what worries you about the future the most?

13:16The biggest worries come from the people that I leave behind, you know, the burden that it places on my

13:22wife, my dad and my siblings who are having to relive basically the experience we went through with my mum

13:28all over again.

13:28And it's that that worries me most.

13:31I've got some sort of contentment about, you know, ultimately my fate is one that I'm going to lose my

13:36life early and that is more than likely going to be to frontotemporal dementia.

13:39You worry about everyone else but yourself?

13:42I definitely think, you know, that all the work we're doing can take us closer to a world without dementia.

13:49Do I think that the cure will come in time for me and my brother? Probably not.

13:56I've got a couple more miles to do so I'm going to get off and...

13:59Yeah, no worries.

14:00OK.

14:00Nice to meet you again.

14:01All right, cool.

14:01See ya.

14:17Unza's paintings tell a story through hidden clues and messages, so they require more than just a perfect shot to

14:24capture what she needs.

14:25You guys just kind of talking, doing what you normally would do on the bench.

14:29Candid.

14:30Candid.

14:30There you are.

14:34Brilliant. Let's go.

14:35Let's go.

14:36Can you come just a tiny bit closer?

14:40Yeah, yeah, yeah, yeah.

14:41Talk to each other. How would you guys talk to each other?

14:47I'm trying to get them to feel at home but in a place that's significant to both of them.

15:02How do you guys feel being here?

15:05I think it just offers somewhere other than the cemetery ultimately that I can feel a bit closer to mum.

15:12What I'm trying to achieve is the perfect composition with the perfect kind of balances of colour, contrast.

15:19Everything has to be balanced out.

15:28This is literally changing the whole idea of the painting for me.

15:34And smile.

15:35Perfect.

15:40You guys are gonna come down from there.

15:42OK.

15:42And then she's gonna kind of capture you running this way.

15:49Brilliant.

15:50Can you get a bit closer though?

15:52Now.

15:57One more time for me, yeah?

15:58Ready?

16:04That's brilliant.

16:06That's the one!

16:08If I was a bluebird, I would fly to you.

16:16Unza's taken hundreds of pictures for reference, hoping she'll find inspiration for the composition and mood of her piece.

16:25Hey Unza.

16:26Hello Ben.

16:27How's it going?

16:27How are you?

16:28Very good.

16:30How have you been?

16:32Very good, thanks.

16:33Yeah.

16:34How about you?

16:35I haven't had my eureka moment yet.

16:37That's what you're after.

16:38That's what I'm after.

16:39So what's the plan today?

16:40So the plan today is to develop pictures that I haven't even seen and I'm hoping that they give me

16:45something to work with.

16:47All right.

16:48Let's get to work.

16:48Let's do it.

16:51Okay, so I just drop it in, yeah?

16:53On your marks, get set, go!

16:57Okay, slosh it around a bit so it gets covered and then I just leave it.

17:01Oh, it's already starting to develop, look at that.

17:03I can see an image of somebody sitting on a bench in the park.

17:06It's like a magic trick, isn't it?

17:07It just sort of appears.

17:09Don't want to mess it up.

17:10Right, okay, this is going in here, yeah?

17:11Yep.

17:12Okay, there we go.

17:13That's amazing, you're an actor.

17:14Have you done this before?

17:15No, but I have moved things around with tongs.

17:27Gosh, they really came out well.

17:29Amazing, aren't they?

17:30For me, I would prefer to capture the emotion rather than the aesthetic and I feel like what

17:37isn't being captured in this picture is how Jordan is an elder brother to Kian and how

17:42he takes care of him and how despite his own issues, he's always there for Kian, you

17:48know?

17:48And they both have that energy and they both have that light.

17:51I would say that goes a long way to telling their story.

17:55Do you know, surprisingly, I feel like my mind just decluttered a little bit.

18:03Just as she was getting to grips with the painting, Unza's had her own family emergency.

18:09Her mother's been rushed to hospital.

18:11I've just landed in Pakistan.

18:13I'm on my way to see my mum.

18:14She's not been doing so well.

18:17It's a really stressful time for me right now.

18:19What I've done is I've shipped the painting from London to Lahore now.

18:25So I'm just going to wait for it to arrive and see if I can finish it while I'm here.

18:31I've just been really, really stressed because now there's just so much going on at one time.

18:45The heat and humidity of Lahore brings its own issues.

18:49I've run into a few challenges.

18:51I used the wrong medium to prime the canvas and now the oils just will not dry.

18:58It's too late for me now to order a new canvas and start from scratch.

19:03I'm panicking a bit, so fingers crossed.

19:13While painting this, I think I was thinking about the boys and their mum a lot

19:16and kind of drawing parallels into their lives and mine.

19:19It's definitely kind of helped me connect to them in a way.

19:24And that's kind of helped me connect to the painting.

19:34The reveal day is looming, but Unze won't be there as her mum is still unwell.

19:40So the painting is finished and it has been packed up.

19:44It's on its way to them right now.

19:46And I'm not going to lie, I am very sad.

19:51Just because I thought I would be there.

19:57In an extraordinary portraits first, I'll be doing the reveal on Unze's behalf.

20:02Hey, Caroline.

20:03Hi, Bill.

20:04How you doing? All right?

20:05Yeah, good.

20:06This is it. This is Unze's portrait.

20:08It is indeed, in one piece.

20:10Thank goodness for that.

20:11Yeah.

20:11Been on a bit of a mission, isn't it?

20:16Jordan and Kian have brought their family along for the big day.

20:31Looking forward to seeing the painting?

20:33Yeah.

20:34Exciting?

20:36Nervous.

20:36Hello.

20:37Hi, Bill. How are you?

20:39Hey, Unze.

20:40How's your mum doing?

20:42She's doing much better. Thank you, Bill.

20:44Oh, good to hear.

20:45Going through what you're going through with your mum, it must have been...

20:48There's a lot of... a lot of emotions attached to this now.

20:51A hundred percent.

20:52I feel like I've really connected to the boys and their story.

20:55I feel like somehow, somewhere, we drew parallels.

20:58That kind of really helped me see things from their perspective

21:02and how they were kind of going through life.

21:04It's a shame that you can't be with us, but I understand you've got to be there.

21:07Yeah, it's definitely been tough, but...

21:10You know, I'm glad we made it here.

21:12It's also so incredible to have a portrait done, like...

21:14Yeah.

21:15Yeah.

21:15Are you feeling celebs?

21:17It's manless.

21:17It just feels weird.

21:18So surreal.

21:19I just hope that it's captured in a way that it's kind of uplifting

21:24rather than, like, overwhelmingly sad.

21:26I'm going to do the reveal for you, okay?

21:29So...

21:30I hope I'm... I'm not going to mess this up.

21:33All right, speak to you later, Bill. Thank you.

21:36Everyone, if you'd like to come through, there's a portrait viewing.

21:39Wow.

21:46Well, firstly, welcome, everyone.

21:48How are you feeling about today?

21:51It's a bit of a surreal feeling.

21:52I think there's some nerves there.

21:54There's a lot of excitement, too.

21:55Yeah, just excited to see what she's created.

21:58I'm very, very, very scared.

22:00Looking at you guys there, I can feel my heart pounding.

22:04I just really hope you like it.

22:06So, okay, so this is it, the moment.

22:09Moment of truth.

22:11You ready?

22:12Yeah.

22:13Okay.

22:36Wow.

22:37That's fast.

22:38That's really beautiful.

22:39I wasn't expecting that.

22:41I think it's fantastic.

22:42Yeah, it's brilliant.

22:44They got your smiles.

22:45Yeah.

22:45Just, uh, quite blown away, to be honest.

22:53Really good.

22:53We care.

22:56We care.

22:57Oh, don't care.

22:57It's going to set me up.

22:59Sorry.

23:00It's fine.

23:02One day I'm not going to have them.

23:05No, I want to remember them like that.

23:11I'm just pleased that Unza's been able to encapsulate,

23:14as I say, that moment in time, and to see us just laughing.

23:18Because I think a lot of the things that we do can be often quite

23:21serious and quite sad because of the topic and the circumstances.

23:24And people forget that we're just two normal lads who take the mick out

23:29of each other and have a laugh and enjoy good times as well.

23:32We didn't want it to be dark and negative.

23:35We wanted it to be optimistic and capture our, hopefully, good energy.

23:41I feel shocked.

23:42That's how I know them.

23:44Mm.

23:44Like, she's captured them as my brothers.

23:47Yeah.

23:47You know, having a laugh and how they are as people,

23:50because it's very easy for people to see them as, like,

23:55really inspiring, really resilient, really strong.

24:00But they're my little brothers.

24:03And I see the down days and the hard days and the good days.

24:08I see them live and breathe this.

24:13And I think there's so many things that Unza could have captured,

24:16but she's captured then.

24:21That's showing you today that although it's a dark future,

24:25that you're living for today, life is worth living in,

24:28that you're happy and you're smiling.

24:32In the future, when we maybe don't have Jordan and Kian as we have them today,

24:40it's a moment in time that, um, we've shared together

24:45and Unza has managed to capture that wonderfully.

24:48They just, like, bring light into a room

24:51and I think that that picture captures it perfectly.

24:53It's so nice to have something that you love just there forever.

24:57Yeah.

24:59Would appear to everybody else as a small detail.

25:02It's hugely significant.

25:04Jordan's tattoo says love always.

25:07In Gerry's handwriting.

25:09And each of them have that tattoo in the same place.

25:11That's very significant.

25:14It's a nod to my mum straight away.

25:17It's something that has binded us together even closer

25:22because there's a story behind that as well.

25:23And to capture Gerry's name and her date of birth on the bench

25:27is also a small detail to other people but hugely significant to all of us.

25:37It's in a place of huge significance for us as a family.

25:41We lost our mum over a six-year period and every day she became less and less of the person

25:46and the mum and the wife that we all knew her as.

25:50It's somewhere where I go quite regularly if I'm struggling.

25:54To have us captured in that moment, in that spot that means so much is an absolute privilege.

26:01We know that dementia's our future if nothing changes

26:04and sadly that only ends with us being taken away day by day when we become symptomatic.

26:11And that's incredibly difficult for both me and Cian, you know.

26:13I think we very much live in the present.

26:15And so to see kind of the emotion from my sister, you know,

26:18and it really does hit home that ultimately one day we're going to leave these guys behind.

26:26I feel very privileged that Unz has been able to create something that can live on long after us hopefully.

26:33So what I'm going to do now is I'm just going to step out for a minute and let all

26:37of you come a bit closer and really take in the painting.

26:43OK.

26:49God, it looks so, like, you two. It's weird.

26:53The detail on the T-shirts is incredible as well.

26:56Yeah.

26:56The closer you get, like, the more you see the detail.

26:59Incredible, really.

27:00Brilliant piece of art.

27:08Hello.

27:08Hi, guys.

27:10We just want to say it's absolutely incredible.

27:13It's been very emotional.

27:14The details and the effort that you've put in to encapsulate the energy and who we are as people.

27:19Yeah, just really grateful. It's incredible.

27:21The first day I met you guys to the last time I saw you guys, you guys were laughing and

27:26just such happy people.

27:27Your smiles are the first things that need to be captured in this painting. Thank you, honestly. You guys are

27:33amazing.

27:39It was very moving to see the reaction of the family. It shows just how important, how significant this portrait

27:48is going to be to them and to the family, particularly in the future.

27:52She's captured them in a moment. It's a moment between two brothers.

27:59Kian and Jordan, they teach us all kinds of lessons about life, you know, and that is that life is

28:06fleeting. It's precious. And we should seize every moment with both hands and live it to the fullest.

28:17I understood that.

28:31Not Agencies

28:33You know, the backstories

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