00:00My whole life has just completely changed. If you came to my house, it looks like a hospital.
00:05My whole hallway is filled up with medical stuff, and it's just crazy how you can go from one extreme to the next.
00:12Like, blessed little story, she has to be on a breathing machine at night because she isn't strong enough to breathe by herself at night.
00:18They have to have cough assist machines to help them cough.
00:21I have to put feeding tubes down their nose to, like, get out secretions off their chest.
00:24And I've had to learn this within, like, literally the space of a few days of getting their diagnosis.
00:30And it's just so much to, like, deal with whilst you're also trying to deal with this, like, horrendous thing that's just happened.
00:36And still be a mum.
00:38And a first-time mum as well.
00:41Yeah, that's the part that I really... I'm still struggling with it, I won't lie, but that is the part that, like, really gets me.
00:46I just want to be their mum. Like, I don't want to be a nurse.
00:50You're not always feeling.
00:52So it's just... It's hard.
00:54Yeah.
00:54But, yeah, it's just... I just want to reiterate that if this is caught from birth, like, it's just life-changing.
01:04Yeah, and it's... That was one of the things that when I started...
01:08...I mean...
01:08...you know...
01:09...you know...
01:09...and then...
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