00:00Hey guys, I just wanted to come on here to do another video to just basically say thank you genuinely so, so much from the bottom of my heart for just the outpour of support and beautiful messages for, you know, me and just so many other families that are dealing with this horrible diagnosis.
00:25Genuinely, I'm actually overwhelmed with the amount of support, you know, I just want to say thank you to everyone that shared it, to everyone that's just wanted to learn about it, that's taken the time to watch it and send me their beautiful messages, you know, thank you from me and also the SMA community, like we just appreciate it so, so much.
00:43Also, I just wanted to let you guys know that I am starting a petition to try and get the SMA on the newborn screening heel brick testing from birth and I just need you to know that I am so determined to make this happen, so I'm going to fight as much as I can to, you know, make this part of the newborn screening.
01:07It's currently under review, so I will keep you updated with that one guys and also, I'm going to be on this morning tomorrow, which should be really fun, so yes, if you want to tune in to watch me on that, I will be on there just chatting about, you know, my experience with having two beautiful baby girls of SMA type 1 and what that's like and yeah, so if you want to tune in, amazing.
01:36Love you all so, so much and yeah, like I said, I just can't thank you enough for this, the, all the support, we've got a long way to go and I appreciate you all so much, thank you.
