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  • 2 days ago
Jesy Nelson doesn't think she will ever "accept" her twins' devastating health condition and wishes she could just be a "mum" not a "nurse".

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00:00I've been told, you know,
00:29that they will probably never walk.
00:31They'll probably never regain their neck strength.
00:33They are going to be in wheelchairs.
00:35But I, you know, listen,
00:37there's been so many stories where, you know,
00:40parents have been told this
00:41and then their children have gone on
00:42to do incredible things.
00:44So I believe that you've just got to manifest this
00:49into existence.
00:50They are still smiling.
00:51They're still happy.
00:52They have each other.
00:53And that's like the main thing
00:54that I'm like so grateful for
00:55because they could be doing this by themselves,
00:57but they're twins and they're going through this together.
00:58And I think that's beautiful.
01:00So I just, all I can do is just try my best
01:02to be there for them,
01:04give them positive energy,
01:05keep doing physio.
01:07And it took for my mum to be like,
01:09they don't move their legs
01:10how they should be moving.
01:12And, you know, bless my mum.
01:14She is a worrier.
01:15She worries about everything.
01:17And at the time,
01:18I always just thought that was just my mum being mum
01:19and worrying.
01:20But then I was like, you know what?
01:22They actually don't move them a lot.
01:25And that was when I was like,
01:26every day I'd start to gradually see it be less
01:28and less and less.
01:30And it makes me so sad
01:31when I watch back the videos now
01:33from when I watched them
01:34from when they came home from NICU to now.
01:37You literally,
01:37as I watch back the videos,
01:39they're moving their legs
01:39and then week two,
01:41week three,
01:41it gets less and less
01:42to like a month.
01:43It just stops.
01:44Yeah, you just see the deterioration.
01:46And that's how quick it is.
01:47And that is why it is so important
01:50and vital to get treatment from birth
01:53and it is detected from birth.
01:54吗 for the past.
01:59And have.
01:59You know what the hell.
02:00You would be right there for 20 years.
02:01We would be right there for 20 years.
02:02OK境wain.
02:02.
02:03I'm going to let you.
02:04We 10,000 tickets.
02:04I've got suitcases of schażers.
02:05But then we're gonna get ready for 20 years.
02:07We are going to get you
02:11to watch the video.
02:12Love you.
02:15I've got past 2 years from 2 years.
02:17We are going to get up here
02:19and there will get back in our Itís
02:20methodology.
02:21Let's see.
02:21Back in the EU.
02:22We are going to get out
02:23every night back to 25 years.
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