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It's not my fault I'm like this 😓
Clara Violet
Follow
1 week ago
Category
🦄
Creativity
Transcript
Display full video transcript
00:00
This is what advanced Lipoedema looks like.
00:02
It can grow in the arms, the breasts, the stomach, the buttocks, the legs.
00:06
Mine is primarily in my legs.
00:08
As you can see, they are very heavy and uncomfortable.
00:11
Lipoedema doesn't just affect your appearance.
00:13
It also has effects under the surface.
00:16
Your legs can feel heavier throughout the day,
00:18
and sometimes it can feel like there's insects crawling all up and down them.
00:22
Lipoedema can be really painful, and it can also affect your mobility.
00:26
A lot of people tend to focus on how Lipoedema looks,
00:28
when really it should be how it makes you feel.
00:31
Unfortunately, there are many causes for Lipoedema,
00:34
but her story points to some common causes.
00:36
Pregnancy, puberty, perimenopause, and menopause.
00:40
Trauma and stress also play quite a big part in this too.
00:43
I was diagnosed with 11,07, so a bigger kid anyway.
00:48
Then you're getting put on diets continuously.
00:49
So I'm constantly up and down with my weight,
00:52
and then that leads to binge eating,
00:54
also leads to other ways of trying to lose weight.
00:57
I'm destroying my body as time goes on.
00:59
Getting diagnosed while I was pregnant,
01:01
and pregnancy is a big thing that triggers Lipoedema.
01:04
And then my dad got ill and passed away,
01:07
and I was 30 weeks pregnant.
01:09
More stress on the body.
01:10
I had my son, and then got pregnant quite quickly again,
01:14
because my body's not going to recover.
01:15
I had my other son, and that was through emergency C-section,
01:18
where we both nearly...
01:19
So again, more stress on the body.
01:21
I can look back, and it's not so much like I let it progress.
01:24
It's that I was doing things, but probably not properly.
01:27
Many of her audience question if there's any surgery available for it to be removed,
01:31
but it's not as simple as it seems.
01:33
I did actually ask a surgeon in the UK,
01:35
sent some thoughts on my body,
01:37
and he was like,
01:38
no, you've got too much loose skin,
01:39
too overweight,
01:40
you need too many surgeries.
01:41
In the UK, I'm not eligible for liposuction,
01:44
as they don't do it anymore.
01:45
The only surgeon in the UK who did it
01:47
has actually retired now.
01:48
I'm aware that there are surgeons in the UK,
01:50
up and down the country,
01:51
who do provide liposuction for lipidemia as well.
01:54
However, it is costly.
01:57
There probably won't be a stage where
01:58
surgery is no longer an option for me.
02:00
Her application for surgery funding was declined by the NHS,
02:04
as it's seen as cosmetic.
02:05
That is still something that really irritates me now,
02:07
because it's not cosmetic.
02:08
I don't care what I look like.
02:09
I do not care what I look like.
02:11
It's all about the pain, mobility,
02:13
and the relief that that would bring.
02:14
But her journey with lipidemia
02:16
has empowered her to be more self-loving.
02:18
And now she's doing the most
02:20
to look after herself and her body.
02:22
And now I'm in a safe space.
02:24
I am doing lots of therapy, grounding.
02:28
I'm doing a lot to help my lipidemia.
02:32
And I'm never going to reverse it.
02:34
I'm going to be able to reverse it.
02:36
What I am able to do is help the inflammation,
02:38
make it more soft or wobbly,
02:40
and try and keep it at this level.
02:42
I will always say lipidemia is not your fault,
02:44
because it isn't.
02:44
Lipidemia is not your fault.
02:45
It's a medical condition.
02:47
And then some people are like,
02:48
oh, well, I should have done this.
02:49
I should have done that.
02:49
It's a chronic illness.
02:50
It lives with you.
02:52
And you never know what's going on in people's lives.
02:53
You never know what people are dealing with.
02:55
You never know what people are doing.
02:56
I didn't let it progress.
02:58
There was just a lot going on.
03:00
I don't know.
03:01
I'm looking at that in people's lives.
03:05
I find out someone you never know what people are doing.
03:08
You never know what people are doing.
03:09
I wanna know what people are doing.
03:11
Are you trying to find out who's also trying to get something to do?
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