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Category
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Short filmTranscript
00:00how are you feeling about the weekend is Stacey a winner or a loser
00:11I'm Stacey Dooley and I'm packing my bags for some more sleepovers
00:27I'll be coming out of my comfort zone actually if I fall to my death in Scotland
00:32to spend the weekend in the homes of Britain's more extraordinary families
00:38you leave I follow you've likened feminism to cancer
00:43this is Hebrew oh my goodness I'm so sorry imagine owning an island
00:53do you worry about having a criminal record my name is Stacey
01:03ready go
01:04what's the best thing about being a model
01:09no one
01:10pumas don't belong in the UK
01:17oh my god I really didn't anticipate
01:20this weekend we are in Wales I very nearly did the accent then but stopped myself
01:36I'm on my way to meet a family that have two children with disabilities
01:42one with cerebral palsy the other with Down syndrome
01:46I mean my knowledge when it comes to Down syndrome and cerebral palsy is very very very basic
01:54and you know I don't have kids so I can't imagine how fulfilling daunting
02:03it must be so to be able to sort of pull back the curtain and ask ask the family
02:12you know show us what what's involved show us what life's like
02:16you know I'm really up for it
02:19hello everyone
02:21the oldest daughter Isabella has become an internet sensation
02:26educating her followers about Makaton
02:28a language system designed to help communicate with people with learning difficulties
02:33today's sign of the day is ice cream
02:40and I've been putting in some practice
02:44it's very basic you're not going to be impressed in any way
02:48it's around 6 p.m. by the time I reach the family home in Bridge End South Wales
03:14I'm trying to remember my Makaton let me impress you
03:26um okay
03:28hello
03:31my name is Stacey
03:35my name is Lucas
03:40and how old are you Lucas?
03:42you're 8
03:44you are 8 too
03:46I'm not going to tell you my age
03:48I haven't got enough fingers
03:50your house is lovely
03:53parents Dom and Kelly have 4 children in total
03:57as well as Lucas there's 14 year old Isabella
04:0010 year old Alexander
04:02hello darling
04:04and Indiana who's 7
04:06so Indy's kind of the shyest one of us all
04:10but actually she's not shy at all
04:12so
04:13just takes a little while
04:14she's a slow burner
04:15yeah
04:16yeah yeah yeah yeah
04:17are you okay?
04:18yeah
04:19how are you feeling about the weekend?
04:21is Stacey a winner or a loser?
04:26um
04:27half
04:28Lola
04:29Lola
04:30Lola
04:31Lucas do you want to show me your bedroom?
04:33yeah
04:34come on then
04:35I'll follow you
04:36show her
04:37come on then
04:38can you come with me?
04:39it's just in case I need your expertise
04:42this is where Stacey's sleeping
04:45oh
04:46is this not one of your bedroom?
04:48yeah
04:49I'm so sorry I've turfed you out for a couple of nights
04:51I'll keep it immaculate I'll keep it lovely for you
04:53great
05:00this is Lucas's room
05:02wow
05:03oh my
05:06what?
05:07wow
05:08what?
05:09so cool
05:10for my family
05:11uh huh
05:12that's for your TV
05:13for my dad
05:14that's for your game
05:15for your game yeah
05:16for my family
05:18your fan
05:19my watching
05:20really?
05:21your
05:22yeah
05:23radiator
05:24I'm so lovely
05:25Lucas you're lovely
05:26lovely
05:28I
05:29don't want to get carried away because clearly I'm a total beginner
05:33and I'm
05:34pretty useless
05:35but
05:36Lucas definitely understood some of what I was saying innit
05:40like
05:41when I introduced myself
05:42that made sense to him
05:44yeah that's good enough for me
05:46I'm gonna keep trying you know over the weekend I'll pick up bits when I
05:49that's your
05:51am I right to quickly get changed in there?
05:53yeah do what you want
05:54yeah yeah yeah
05:55oh it's your bedroom
05:56that I've hijacked
05:58I'm on dinner delivery
06:01I've got curry coming
06:06five minutes
06:07but my arrival has meant dinner time is running late
06:18Lucas
06:21Lucas
06:22do you want some popcorn while you wait and then have this after?
06:27come on you
06:28I
06:30suppose food is everything with your eggs
06:32that's me
06:33when I'm hungry
06:34I
06:35am
06:36like a bear with a sore head
06:39it's just that much more accentuated for
06:41that kiddie with down syndrome you know
06:43really?
06:44yeah they just don't seem to understand as much you know
06:47but he generally knows when he should be having it so this is the
06:51this is the outcome
06:53you can't have it
06:54isn't Isabella lovely with him?
06:57she's really good
06:58really good with her
06:59she seems to be quite maternal
07:00yeah
07:01yeah she is very maternal
07:02Lucas
07:10are you happy now?
07:12Lucas
07:13look
07:14you're too good
07:15so is this fairly standard for Friday night?
07:22whole family together, takeaway
07:25Friday night we try and set the table
07:27but it's so hard when Lucas likes
07:30his own little space and to watch TV and
07:33the boys get on quite well
07:35erm they do
07:37considering they're either ends of the spectrum
07:40Alexander's quite neat
07:41tidy
07:42Lucas likes the
07:43he likes the
07:44he likes the chaos
07:45he drives the chaos
07:46yeah
07:47is there anything I need to be mindful of
07:49when
07:50sort of
07:51interacting with Lucas and
07:52Alexander?
07:53we try and treat them as
07:55typical as possible
07:56yes
07:57you know like any other child
07:58I mean obviously you've got to make adjustments
08:00sometimes he'll be your best friend
08:01other times he'll be like
08:02wait
08:03I've had enough of you
08:04are you strong?
08:05whoa
08:06look at this
08:07oh
08:09this one
08:10this one yeah
08:11and how did Lucas learn Makaton?
08:15we taught him the basics at the beginning
08:17but I would say the main bulk of it has been Isabella
08:20which is so impressive
08:22so your Makaton is
08:24probably the best in the family
08:26mmm
08:28yeah I would say
08:29yeah
08:30you're being modest
08:31Dom's probably the worst
08:32you're the worst
08:33you're the worst
08:34just because
08:35we're lucky for you
08:36I've arrived
08:41Dom thanks mate
08:42thank you very much
08:43oh it's okay
08:44where's the bitch like
08:45oh I'll sort
08:46just leave it on the side
08:47you sure?
08:48yeah
08:49one two three go
08:50jazz hands
08:51I love that hair
08:53I love that hair
08:56you've got red hair like me
08:58we love that hair
09:01good
09:02such a good boy
09:03hi Dada
09:04Santa just getting changed
09:05see if we can beat it
09:06see if we can beat it
09:07quick
09:08quick come on
09:09quick
09:10see if we can beat it
09:11so when it comes to
09:13getting dressed
09:14erm
09:15Lucas needs assistance
09:16or sometimes he can manage
09:17on his own
09:18yeah
09:19we say he wants to get himself dressed
09:20you put his t-shirt on himself
09:21and you've got to adjust
09:23put everything on back to front
09:24you know that type of thing
09:25so
09:26do you imagine Lucas will always
09:28require assistance
09:29when getting dressed or
09:30erm
09:31I hope not
09:32I hope he will erm
09:34be able to do it all independently
09:36I think he will to be honest
09:37because he seems to be going
09:39in that direction
09:40you know
09:43spin round
09:49I'm surprised he's not bowing
09:50he normally bows
09:54and does he have to wear nappies
09:55the entire time?
09:56yeah we try him
09:57every couple of weeks
09:58on the toilet
10:00leave a nappy off
10:01if you've got half a day
10:02where you know you can try him
10:03and so
10:05it's really difficult
10:06because he does know
10:07when he needs to go to toilet
10:08but he just won't at the moment
10:09thank you for today
10:11thank you for today
10:12thank you for today
10:13thank you
10:14you're welcome
10:15I see you tomorrow
10:16thank you
10:18alright
10:25I'm off
10:26see you bye bye
10:27thank you
10:29your kids are lovely
10:30they are such sweethearts aren't they
10:32well you're always biased for your own
10:33yeah they're
10:34like we think they are
10:35but obviously they're super biased
10:36for a child with Down syndrome like Lucas the presence of an extra chromosome means that they
10:44have some level of learning disability I'm curious to know what effect this has had on Dom and Kelly
10:50I wonder if you would tell me a bit more about how you found out that actually our Lucas has
10:59Down syndrome during my c-section I remember them passing me Lucas and then this doctor came in he
11:06was just kind of like down syndrome and I looked at him and I thought it's because they've given me
11:15drugs what did he just say I must be hearing it and then I looked at Dom and the minute I looked
11:21at Dom's face like I knew that what I'd heard was was what I heard and from that moment I was just
11:27kind of like inconsolable and we literally had Alexander diagnosed two weeks later we kind of
11:34effectively went from no children disabilities to two and I did think like why us try and describe
11:41what goes like through your mind and I was I was thinking about Lucas I was also thinking about
11:49what people might think for me it was the the initial shock was the aspiration job for your
11:56children that they could achieve anything and they can be footballer or you know fireman astronaut but Lucas had
12:05limitations because he had down syndrome already he's gonna he's gonna be at a disadvantage because the way
12:11society's rigged up I suppose because you know the intelligence is never going to be as high and so I think for me that was the initial shock and we talked about it and said that we were really like disappointed and I think for me that was the initial shock and we talked about it and said that we were really
12:24like disappointed in ourselves that we cried and I think it was not being prepared regret we would have
12:31times even probably up to I'd say about a year and a half you suddenly well up kind of it just catches you
12:38when did you stop crying when did you stop is mourning the the right I suppose we discussed that is like morning you kind of mourn for the child you expected to get and didn't get
12:52what I think is really admirable about the pair of them actually is they're quite frank they're quite
13:00matter-of-fact I think sometimes there's a temptation to everything's fine we are great this was never
13:08a problem that's just it's not true I mean he's not at the stage yet where he can dress himself he still has to wear
13:16nappies and Dom saying we don't know what to expect going forward but we'll take each day as it comes
13:23I yeah I wonder if in the back of their minds they're thinking will this continue through his teens
13:33into when he becomes an adult
13:35morning
13:50yeah you yeah good it's my first morning sleeping over with the evans family and i'm noticing how much care
13:57and attention lucas needs from his siblings do you want a brioche because you have to go in the car
14:04particularly 14 year old isabella who's a registered young carer
14:10what does the role of being a young carer look like what does she have to do because we kind of
14:16have to watch lucas you know 24 7 if you know dom's doing the recycling and i'm washing the dishes and
14:24and lucas is in the lounge it'll be a case of you know keeping on lucas watching with indy
14:30she's like a third parent at times she is like a third parent and that's something to look at on
14:34paper you wouldn't really want but actually it's made isabella into a really patient caring young
14:43person mature she's super mature yeah um so you're izzy as a young carer you and dom are your full-time
14:52carers we are yeah so um i always worked dom was a store manager he always worked um but then we
15:01found ourselves in the situation where just not long after the boys were born one october we had 31
15:06appointments just for the boys that's before you add in anything for myself and dom or you know
15:13isabella um an indie um so i've got fibromyalgia what's that you're kind of tired a lot you
15:22aches and pains and and that kind of thing but um it can be brought on by stress and i didn't have it
15:29until after having the boys diagnosed um so that's kind of another reason isabella probably does more
15:35than she should for her age
15:42oh here we go no no no no no listen listen listen listen listen
15:53you know what's so impressive is how calm and how lovely you all are with him even when he's
16:01really angry and really if you got um angry yourself it's not a very good like lesson to teach
16:08other kids for us it's just a couple of times a day we'll have these little things and really that
16:13yeah yeah yeah we can't imagine how frustrating it must feel to not be able to articulate yourself
16:33and tell people what you want to do it's like being in a foreign country and you can't speak the lingo
16:37and you're trying to get your point across and show pictures and you know drag people over to
16:42what you want you know it's really frustrating
16:53to help communicate with lucas isabella started learning makaton when she was just eight years old
16:59she began filming the videos for social media and she now has a combined 350 000 followers across her
17:14various platforms hello everyone so today's sign of the day is friends
17:24friends and lucas where's your friend she over there hello my name is stacy it's stacy your friend
17:39stacy are you gonna sign friends yeah say bye-bye good job mate hello everyone
17:53despite her success i can't help but think she's had to grow up faster than an average teenager
17:59you're a 14 year old girl who you know you've got a lot going on you know hormones etc you should really
18:06be locked in your room you know kicking off and you are just so selfless but you are i think you
18:16know what's really tough about being a young carer i think it's just maybe like not all the time but
18:23when you kind of do want your own space because maybe you've been around lucas and the indie all day
18:28you kind of just want that chill time and you're sat there you're like five minutes and then knocking on
18:32the door izzy can you help me i'm like i just sat down but even when you do chill you still have that
18:38you want to be around him because you don't know what he's doing like he's in he's in the kitchen
18:43waters everywhere like you just have that in the back of your mind that you don't know what he's
18:47doing and that kind of panics you a little bit so i kind of feel like i always have to be there just
18:51for me to feel a lot more chill because i know what he's doing yeah so you feel responsible for him
18:57yeah and it's like 24 hours right yeah yeah i mean it sounds like your your platform isabella signs
19:05feels quite empowering and sort of overall quite positive but the internet itself can be horrendous
19:14it can be a really toxic place do you experience any of that side of it well we have been quite lucky
19:20that i don't think we've really experienced it but even though we haven't so far you never know what
19:26someone's going to type overnight like when i go to bed i have that worry and as soon as i wake up i
19:30have to check my phone to make sure that there's nothing on there that i can just quickly delete
19:34because in my mind i'm like oh what is someone going to say because you have no control of what
19:38people are going to say you know what teenage boys are like they say stuff without even thinking
19:42and they don't necessarily mean it at lucas but they would just say something i'd overhear it and i'd have
19:46to go over and say to them like i know you love lucas and so i know that you don't mean any harm but
19:52saying that is kind of even if you weren't directing it at lucas it is still quite offensive and straight
19:57away they'd be like oh i'm so sorry i didn't i wasn't thinking i didn't mean it so you do have that
20:01like you you're always listening out as well when you're out in public for people to say stuff
20:05because you're ready to like be like why why would you say that isabella's motivations behind the
20:20videos is to tackle misconceptions about living with disabilities something the family are still
20:26doing even within their closest circles so steve sunday was requested and that is santa claus and
20:34here's my uncle mike who's going to do it as well aren't you
20:40so you're um kelly's uncle kelly's uncle yeah right and what was kelly like when she was little oh she
20:47was terrible no money joking give us the dirt she was all right she's all right what were your thoughts
20:53surrounding down syndrome pre lucas to be honest i wouldn't sort of associate with them at all really
21:02because it's like you think you've got that thing that you think that they're trouble you know they're
21:08sort of you know hard work you know i've been people sort of try to keep their distance because
21:14when you see somebody just handicapping this walking around or something and then and they're
21:19shouting or whatever you get a little you get a little bit worried that you don't want to get
21:22involved in you feel that you know that you get involved in it sort of it might cause a problem you
21:30know was that problematic for you have you two ever clashed no but i'd say we've like educated
21:38mike a lot yeah yeah along the way and even you know even now i'm not gonna lie you know
21:44some of the way he he tells it is kind of the terminology is different than what i would use
21:50and i think he knows like he probably has a long way to go you know yeah i'm really proud of the
21:57progress uncle mike has made but i have had times when i've tried to kind of pull something to the
22:02side and just say you know i'm not sure if you realize that that's not you know it's not really a
22:07great way to be using that's something you've had to do personally yeah yeah and some take it really
22:11well and like oh i'm so sorry i just didn't even think or i don't associate with that so it just
22:16didn't cross my mind but there has been people that have got really funny like well i didn't mean
22:20it about lucas and it's like it doesn't matter if it's not intended to be about lucas the fact that
22:27you've said it you said it and and tell me what your first impressions were when you found out that
22:34lucas had down syndrome oh you know i just took him as a normal person to me i'm i'm i'm just like that
22:40really to be honest i'm like he's no different to any other person as far as i'm concerned but
22:44you've got to treat him in a different way you know because you think they understand like a normal
22:49person but they don't so you have to try and work it you know um yeah a little bit different i think
22:55you've kind of learned from lucas as well though yeah i've learned a lot from lucas and alexander
22:59he can do so many things yeah he's not he's not useless you know two different forms of disability
23:04you know with um alexander and lucas you know and yeah but they're both you know got their own
23:10problems but you have to have a lot of patience you've got like i said you've got to take two
23:14steps backwards you know and sort of um listen to them and um yeah yeah just deal with it you know
23:23i think mike really was quite exposed and he was quite honest and there's real misconception when
23:31it comes to what people who have down syndrome are like but i think instead of ridiculing people
23:38you have to sit down with them and calmly try and educate them and i think how he's learned is
23:44he's fallen in love with a little boy who has down syndrome
24:06it's my second morning with the evans family and it's already an energetic start to the day for
24:11eight-year-old lucas who has down syndrome i like to be woken up by dance it's a lovely way to start
24:23the day isn't it having seen from myself how much support lucas needs i want to find out what impact
24:29it's had on the family hello mate i like your outfit including lucas's 10 year old brother alexander
24:39alexander how are you mate good what's it like having a brother who's non-verbal
24:49annoying for him but we got signing so it doesn't matter we learned it and so did i and now i know
24:58what he's saying i think the trouble you have alexander is um because he's got limited use of the one hand
25:05he can't articulate the signs properly when alexander was three years old he was diagnosed
25:11with cerebral palsy a brain condition that affects movement and coordination and has varying levels
25:17of impact on each person i wondered if um i could ask you a little bit about your condition
25:23it's cerebral palsy is that right are you happy to talk me through what that means
25:28um not exactly what it fully means well you don't but what does it mean to you though half my brain
25:36don't work half your brain don't work to which side does it affect can you tell stacy it's your right
25:43side i think he's right-handed alexander so he's you've had to teach yourself to write via left hand
25:50haven't you yeah oh so he's adapted really well i mean he's surpassed our expectations where we
25:58thought he would be at this age how does it affect you day to day are there things that you can't do
26:03are there things that you're really great at day to day i notice um shoelaces stuff like that you know
26:10it's the simple little things because it affects your coordination and movement there's one law it says
26:16but i'm not gonna say it one law what's the law you know well no drinks upstairs yeah
26:24uh-oh that's my fault completely i'm really sorry i'll take it down as soon as we're finished
26:30i'm walking around like i own the place sorry mate
26:33it seems like you take a lot from looking after your family and providing for your
27:03family and you just want everyone to be happy a quiet life essentially so in order for me to have
27:09a quiet life everyone's got to be happy and not alone did you always want a family i never envisaged
27:15myself with any kids i never envisioned myself yeah yeah but you know things happen and it happened for
27:23a reason i know you're a dad to four yeah what's the toughest thing about being a parent to two boys
27:34who both have additional needs
27:40to be honest it's um i don't find anything tough about it to be honest i think it's quite a privilege
27:45to be their father and i'm glad they've come to us because if they went to somebody you couldn't
27:51properly parent them you know that's i'm glad they've come to me i'm more than happy to do it wow
27:58don that's pretty selfless thank you
28:04how old are you indeed i know so you're a year younger than lucas do you like being lucas's little
28:14sister what's the plan for today then we're going to the beach and we're going to meet up with some of
28:20our friends be excited for the beach
28:22the family have brought me to the nearby beach in porthcool
28:36there's your name no lucas lucas no
28:43oh mate you're killing me henry's coming soon so don't worry
28:47we're here to meet one of lucas's best friends henry and his mum tanya hello my name is stacy
29:04henry henry great to meet you you're cold cold isn't it chilly so how um how long have henry and lucas
29:15been pals so they've probably known each other for a couple of years now did you know that your henry
29:22was going to have down syndrome no no so um we didn't know in pregnancy and um it was it was quite
29:29a surprise when um he was born and and i'm i'm not going to lie we were we were pretty flawed for a
29:36while there do you worry that if the um medical experts etc if they had a known that henry was going
29:44to have down syndrome they might have given you legit information that would have made you and
29:51your partner think actually maybe he can't have a fulfilled life and so maybe we should terminate
29:57yeah and that is what happens you know it's been there was a survey done not so long ago that women
30:03um when they had a conversation about a prenatal diagnosis within the same conversation of being given
30:08that news they're offered a termination and termination is often offered at every single
30:13appointment if you decide to keep your baby right up to birth and that's quite a pressure to be put on
30:20you and you must wonder what on earth your life is going to look like when you're offered that
30:26continuously the reality is that we are living it and and everything's quite great thanks so it's just
30:33making sure that people get every side before they make that decision you're having a nice time yeah
30:44do you like the beach yeah is it nice to see um lucas yeah
30:50come in now thank you
31:04what do you want me to look at these stones
31:11back at home communication with my new pal lucas is going from strength to strength from the beach
31:17the family have been so open with me over our weekend together with all the kids tucked up in bed
31:35i want to hear from kelly and dom if they could ever fathom a life without lucas
31:39in the uk if a baby has a disability such as down syndrome a termination is legal right up until birth
31:59i think what really surprised me when i first started looking at this
32:05was that nine out of ten women decide to have an abortion when it becomes clear that the baby they're
32:15carrying uh may have down syndrome
32:21how how does that make you feel as a mother of a boy who has down syndrome i think it's really sad
32:29nine out of ten you know i respect whatever decision somebody comes up with for their personal
32:34circumstances um i think all that we ask and the dancing community is is balanced really objective
32:42yeah but you didn't know that your lucas was going to have down syndrome if you'd have known and
32:49hindsight's a great thing and you love him so much so it might be difficult but
32:52if you're completely honest in your heart of hearts do you think there's a possibility that you
32:58may have decided to have an abortion we've often talked about it but um i'd like to think that i
33:04wouldn't because um i'd had miscarriages before and so i'd like to think that at that point you you
33:12kind of understand how precious life is i think um the pressure you and the people get from doctors
33:19and health professionals um it's it's hard to say whether you would have felt that pressure and
33:24buckled to the pressure and as much as we'd like to think we wouldn't have um and knowing lucas now if
33:31you know it doesn't worth thinking about when you were pregnant it was um invasive so they would have
33:41to sort of stick something in you through the placenta to determine whether or not your child
33:48would have down syndrome yeah we're now there's been medical advancements etc and we're now in a
33:54position where it's looking like women will be offered a blood test which is a lot less intrusive
34:00more people are going to do that which means more people are going to have abortions which means
34:05we're going to end up eliminating yeah babies with with down syndrome yeah it is worrying definitely
34:12there's been some countries that have tried to pass a bill for the people that don't so people like us
34:19that found out after birth that they were trying to pass a bill that you could terminate even once
34:26you've had your baby because they felt they felt that you should be given the same choice as somebody who
34:33was pregnant and found out so how could you terminate after birth well it would be an infant sign
34:41and we we were amazed absolutely amazed i just i couldn't imagine my dad picking us up from hospital
34:48and saying you know where's the baby oh well he had down so we left him you know like like i was so in
34:55love with him just when he was in my belly i couldn't they could have told me he had six heads when he came
35:00out and it literally i would still want to take him home because he he was mine he was ours you know
35:06it's to me it's just madness but there's so much to think about isn't there because i hear everything
35:14you're saying but i also know there will be doctors for example watching this who would say we we have to
35:23be direct and we have to be really forthcoming and some people with down syndrome can suffer and
35:30life can be unbearably difficult at times but i think we need to hear from everyone don't we not
35:35just we can't just hear one side of the story one-sided coin almost you know and that's why you know we
35:43feel this our mission almost to try and spread all the positive things that lucas does and lucas can do
35:50and another child with down syndrome can do what they can offer to society maybe i wouldn't have
35:56shed those tears if i'd have seen other children um with down syndrome just smashing life life's not
36:04perfect for anybody including us you know there's ups and downs but the joy that lucas gives us and
36:11gives his siblings is like you can't put a price on that the truth is you never know what life is
36:20going to throw at you and you never know what situation you're going to find yourself in
36:26so you have to do what you think is is right at that moment i've i've no idea
36:32what i would do if i found myself in kelly's situation couldn't tell you
36:45it's monday and my last day with the evans family so we're gonna do our show
36:57show me five song eyes are lovely ears are listening
37:08dom has brought me to see what school life is like for lucas
37:11so this isn't a mainstream school it's a bit more specialized yeah this is um school for
37:24children with additional needs but it gets lucas ready for the world after school you know prepares
37:34him for work and if he wants any chance of living independently this is the place he needs to be
37:41in kelly's side who would have to do you know and then help him be able to DRAM
37:45hello hello oh my god did you see lucas
37:54he went to his mate that's my friend oh isn't it lovely to see him at school oh
37:58hi
38:01despite the support lucas is getting i can't help but wonder how worried kelly and dom are
38:13for his future what do you hope for what what do you think is possible realistically for your
38:19lucas when he becomes when he's in his 30s um it's hard to tell really i mean yeah at the end
38:27of the day you want him to be happy whether he's living independently or living with us to get a
38:32job it'd be nice for him to have a little job and there's definitely a potential for him to you know
38:38have a good life on life expectancy are you worried about what's going to happen with lucas when
38:45you're not around anymore like all our children we hope he lives a long and happy life but i kind
38:52of feel safe in the knowledge that he's loved by all his siblings and i feel that you know goodness
39:00forbid that we went around overall lucas is very loved and he loves his siblings so i think yeah i
39:07think it's okay as it stands now he's always safe and he's always loved and he's always protected
39:13does it riddle you with nerves the idea of him being independent and taking the bus
39:20yeah it terrifies me i've got to be honest yeah i think not because we don't think he could manage
39:25it but just i guess other people um you know not everybody's nice in this world is it realistic
39:31to hope that he may someday be able to have his own family and children boys dancing dream are
39:39typically infertile ask about this is that yeah how much truth is there in there um generally there's
39:45a couple of occasions where people with dancing room have had babies but they're very few and far
39:52between but there's no reason that you know lucas you know can't find somebody down the line but do you
39:59worry because he is so innocent and he has been so loved and so adored and so sheltered about things like
40:06genuine consent for example yeah i suppose it's one of those it's not something we've had to think
40:13about it's one of those things we'll tackle more when the time comes i think i'd like to think that
40:19you wouldn't let anyone get the better of him um but that's not to say that somebody couldn't
40:24manipulate him down the line but for me it's just about lucas being happy yeah um and just so he's got
40:31a little partner in life really oh i know a little companion yeah it'd be fancies yeah and he can
40:36have a snog every now and then i know yeah and you know we're not experts we just we're just doing
40:43what we can as we go along and you know it might always be right but it's just it's just how we're
40:50getting by you know yeah i think that's probably every parent in the uk yeah i would i'd have a clue
40:58i don't have children i think you're brilliant what are you doing stop it right dad you ready so the
41:07only thing i've got to tell you is you've got to do your dice roll okay ready yeah are you ready
41:15i'm going home i think it's been massively worthwhile i've learnt loads it's forced me to
41:30think about something i wouldn't have thought about otherwise we've heard from kelly and dom that there
41:38have been really dark times where they were inconsolable but there have also been moments of
41:47total euphoria and excitement and pride and love and i think you know there will be other parents
41:57with kids who have down syndrome cerebral palsy and they might feel completely overwhelmed or terrified
42:04or confused and i think that's what drives them to be so candid thank you so much no likewise i've
42:15had the loveliest weekend yeah it's been awesome if you're ever in wells there's a bedroom free for
42:21you izzy will move out anytime so long safe travels stay safe thank you so much bye
42:51you
42:52you
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