- 7 weeks ago
A Brave Heart (2015) is an inspiring documentary that follows the life of Lizzie Velásquez, a woman born with a rare thing that prevents her from gaining weight. Despite facing years of challenges , Lizzie becomes a motivational speaker and advocate, spreading a message of resilience, positivity, and kindness. This uplifting film highlights the power of courage and determination to overcome obstacles and inspire others.
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00:00:00Transcription by CastingWords
00:00:30CastingWords
00:01:00CastingWords
00:01:29CastingWords
00:01:59CastingWords
00:02:29and I couldn't run that fast or I would get tired really quickly or I would start coughing
00:02:34and I would get frustrated and to avoid it I just stayed sitting there which secluded me even more
00:02:41I would look at everyone and just wish I could be them
00:02:49I would just wish that they could understand me
00:02:59I never thought it was ever possible for me to be accepted
00:03:07and to just think that 20 years later the world knows who I am and it's for something good
00:03:29it was just a normal pregnancy
00:03:36everything was fine every time I went in there was no sign of anything different or wrong
00:03:42I didn't feel different I wasn't sick nothing I was gaining weight and my stomach was growing
00:03:48so everything was meeting where I was supposed to be at each month
00:03:52things were going well during a pregnancy and no big red flags
00:03:57Rita's ultrasound done around 12 weeks had no real indication of problems early on in the pregnancy
00:04:05I was way too early to deliver
00:04:08we were here at the house and we had just spent the day at Silver Park walking
00:04:13and that night I started having contractions
00:04:16I thought I just overdid myself at the park
00:04:20but through the whole night it was just the contractions over and over and over
00:04:23then the scary part started
00:04:25I was a little nervous
00:04:27I remember driving about 6.30 in the morning on the highway
00:04:31still dark going to the hospital
00:04:33silence really other than your pains
00:04:35we went into the emergency room and that's when I was admitted
00:04:39because I was having contractions
00:04:41and I was dilated
00:04:43I remember them saying we're going to get the superman of sonogram
00:04:49and so I remember him sitting there
00:04:52and he was saying he just kind of looked and he says
00:04:54we got to get this baby out tonight
00:04:56the doctors had said they had never seen a child like that
00:05:02and they didn't know exactly what was going on with her
00:05:05Lizzie was small
00:05:09and had the appearance of size 4 skin
00:05:15around a size 2 baby
00:05:17but Lizzie did not have a specific chromosomal disorder
00:05:22and I can't think of any baby that has essentially had no diagnosis
00:05:29when I woke up Lupe was next to me
00:05:34and he started telling me
00:05:36she's very small
00:05:37she's in ICU
00:05:40and we don't know what's going to happen
00:05:43so
00:05:44the doctors took a Polaroid picture of me
00:05:50and showed it to mom
00:05:51because they thought she was going to be too scared to see me in person
00:05:55I had a giant forehead
00:06:04and I still do
00:06:05if I had bangs
00:06:06I'd do the side bang
00:06:07when I was a baby too
00:06:08this picture makes me happy
00:06:16I loved her
00:06:22I was just excited
00:06:23it didn't matter
00:06:24I mean to me
00:06:25she was already Lizzie
00:06:26she was our daughter
00:06:27she's tiny
00:06:28it doesn't matter
00:06:29she's our baby
00:06:30and there was never a sense of
00:06:33I can't believe this is happening to us
00:06:35or why did this happen to us
00:06:36it's just like
00:06:37I can't wait to get her home
00:06:38oh two pounds
00:06:43ten ounces
00:06:43I was a real big baby
00:06:46that's funny
00:06:48did they write this
00:06:49when I wasn't named yet
00:06:51since it says
00:06:52baby girl Velasquez
00:06:53what if that's what my parents named me
00:06:57baby girl
00:06:59but it's funny to think
00:07:04like this little card
00:07:05is what like started
00:07:06this is how I started
00:07:10through this card
00:07:11here she comes
00:07:12Elizabeth
00:07:16hi honey
00:07:18basically all we had known
00:07:20all my life
00:07:21was that I had a syndrome
00:07:22where I can't gain weight
00:07:24hi Lizzie
00:07:26she's too busy
00:07:29hi Lizzie
00:07:29it's delicious
00:07:31the doctor's main focus
00:07:33was getting weight onto her
00:07:35and it was always
00:07:36a dietitian
00:07:37a nutritionist
00:07:38coming in
00:07:39saying she needs to drink
00:07:40these shakes
00:07:41add this to her food
00:07:42you know
00:07:43we went through that whole thing
00:07:44with them
00:07:45and she still wouldn't gain weight
00:07:46Elizabeth
00:07:52I would get scared
00:07:54but we tried not to show her
00:07:56that we were scared
00:07:57and a lot of it was
00:07:59when she would be put in the hospital
00:08:00for different surgeries
00:08:01growing up
00:08:03there was always
00:08:05something wrong with me
00:08:06I was in and out
00:08:08of the hospitals
00:08:08it was one thing
00:08:10after the next
00:08:11I used to be able
00:08:13to count how many surgeries
00:08:14I had on one hand
00:08:16appendix
00:08:18intestines
00:08:19foot surgery
00:08:20eye surgery
00:08:21ear surgery
00:08:23studies
00:08:24panels
00:08:25MRIs
00:08:26bone density scans
00:08:28DEXA scans
00:08:29of my whole body
00:08:30it's like a whole other language
00:08:32a lot of blood work
00:08:33tests
00:08:34a lot of
00:08:35having to start IVs
00:08:37over and over and over
00:08:38because my veins collapse
00:08:39I had total reconstruction
00:08:42on my foot
00:08:43because all of these toes
00:08:44were stuck
00:08:45like this
00:08:47so my doctor
00:08:48put metal plates
00:08:49back here
00:08:50he cut
00:08:51whatever this is called
00:08:52back here
00:08:53and I had pins
00:08:55that stuck
00:08:56out of every toe
00:08:57to keep them straight
00:08:59and we went back
00:09:00into the doctor
00:09:01and he pulled out
00:09:02the pins
00:09:03from my toes
00:09:04one by one
00:09:05to this day
00:09:08I'm still being tested
00:09:09until they find
00:09:12a diagnosis
00:09:12I have to keep going
00:09:14I would always
00:09:17convince myself
00:09:18one more thing
00:09:19is done
00:09:19it sucked
00:09:20but now we're
00:09:22going to do
00:09:22something fun
00:09:23just get through it
00:09:31I wanted to make
00:09:37this video today
00:09:38to speak out
00:09:38about an issue
00:09:39that has gotten
00:09:40completely out of control
00:09:41bullying
00:09:42and no
00:09:44it's not something new
00:09:45that we're just now
00:09:45learning about
00:09:46our grandparents
00:09:47our parents
00:09:48our friends
00:09:49our siblings
00:09:50even the cool kids
00:09:51who you think
00:09:52have the perfect life
00:09:53they've been bullied too
00:09:54that's not the same
00:10:04that was my classroom
00:10:09right there
00:10:10you know every child
00:10:15comes in with their parents
00:10:16when Lizzie first
00:10:17entered my classroom
00:10:18of course she was early
00:10:20because her dad
00:10:20was also a teacher
00:10:21so Rita walked her in
00:10:23and I remember that
00:10:25you know
00:10:25she went to find her desk
00:10:26and as the class
00:10:28starts to fill up
00:10:29other kids came in
00:10:30and would stare at her
00:10:32at the time
00:10:34I thought everyone
00:10:34looked like me
00:10:35I couldn't recognize
00:10:37or tell that
00:10:38they didn't look like me
00:10:40I was most worried
00:10:43about her making friends
00:10:44if people were going
00:10:44to be mean to her
00:10:45or not want to play
00:10:47with her
00:10:48or just asking her
00:10:50a lot of questions
00:10:51that she's young
00:10:52and probably can't answer
00:10:53like why you look like that
00:10:55or what's wrong with you
00:10:55no one's ever really
00:10:58asked her that
00:10:59and I thought
00:10:59we're not there
00:11:00I remember
00:11:02going up to
00:11:04groups of kids
00:11:05that were playing
00:11:05and they would just
00:11:06walk away
00:11:08and not
00:11:09like as if I wasn't there
00:11:10you know me as a teacher
00:11:12and if I'd be walking
00:11:14down the hall
00:11:15with my class
00:11:16and we'd happen to
00:11:17their walk
00:11:18her class was walking down
00:11:19I'd be watching her
00:11:21just to kind of see
00:11:22when other kids
00:11:23would be transitioning
00:11:24all of them would be
00:11:25like poking
00:11:26and looking
00:11:26and talking
00:11:27and you know
00:11:28my choices are
00:11:29you go tell them
00:11:30stop
00:11:30you know
00:11:31she's just like you
00:11:31or I mean
00:11:32I had to be professional
00:11:33and I couldn't say anything
00:11:35and in my mind
00:11:36I'm just
00:11:36it's breaking my heart
00:11:38they weren't actually
00:11:40saying something
00:11:41so I couldn't
00:11:42understand them
00:11:43I was just going off
00:11:44of their stare
00:11:45or their
00:11:45I could see their mouth
00:11:47moving and I couldn't
00:11:48hear them
00:11:48or I could see them
00:11:50pointing and I didn't know
00:11:51are they pointing at me
00:11:52or are they not
00:11:52and I think that was
00:11:53always the worst
00:11:54because it was when
00:11:56I was making up
00:11:58the thoughts
00:11:59in my own head
00:11:59because they weren't
00:12:01actually saying it
00:12:02to my face
00:12:03I'm scared to open this
00:12:07I'm sad when somebody
00:12:09stares at me
00:12:11because I'm so
00:12:12I don't like that word
00:12:14I hate that word
00:12:17I'm sad when somebody
00:12:19stares at me
00:12:19because I'm so skinny
00:12:20and when some of my friends
00:12:22are not my friends
00:12:23and when people
00:12:24and when people
00:12:27make me mad
00:12:28my dad and I
00:12:33started having a routine
00:12:34as I got older
00:12:35to where
00:12:36on the first day of school
00:12:37he would go to my classroom
00:12:38and we would stand
00:12:40in front of the class
00:12:40and he'd introduce me
00:12:42and tell them about my syndrome
00:12:43and that started helping
00:12:45a whole lot
00:12:46and making a huge difference
00:12:47with the kids
00:12:48that were in my class
00:12:49who saw me every day
00:12:50but as soon as we walked
00:12:52out of the classroom doors
00:12:53it was back to
00:12:55the stairs
00:12:56and the points
00:12:57and the whispers
00:12:57and so I did it
00:12:59for a couple of years
00:13:00because kindergarten
00:13:00was real hard
00:13:01as a start
00:13:02second grade
00:13:03she told me
00:13:03daddy you don't have
00:13:04to do that anymore
00:13:05I can take care of it
00:13:07if I knew something
00:13:09was going on
00:13:09I could tell the teacher
00:13:10and just say
00:13:11a little heads up
00:13:12I don't want to get
00:13:12anyone in trouble
00:13:13but how can we make
00:13:14it a teaching moment
00:13:15middle school
00:13:16I couldn't do that
00:13:17and I was sick
00:13:19and almost throwing up
00:13:20on the first day of school
00:13:21because I couldn't be there
00:13:23and I was at my own school
00:13:24and here she was
00:13:24going on to middle school
00:13:25and I think I called Rita
00:13:28like every 30 minutes
00:13:29have you heard anything
00:13:30have they called from school
00:13:31have you heard anything
00:13:31I had an administrator
00:13:35come in
00:13:35and tell me that
00:13:36I was going to receive
00:13:38a student
00:13:38who had some special needs
00:13:40I was not told
00:13:42of anything other than
00:13:43she was visually impaired
00:13:44and so
00:13:45when she walked
00:13:46into my classroom
00:13:47I immediately
00:13:48noticed the reaction
00:13:50of others
00:13:51making weird faces
00:13:53you could just see
00:13:54the questions
00:13:55going on in their heads
00:13:56and so
00:13:57Lizzie being as special
00:13:58as she is
00:13:59walked right in
00:14:01walked right up to me
00:14:03and said
00:14:04my name is Lizzie
00:14:05I can't take credit
00:14:06for that though
00:14:07I have to credit
00:14:07my parents for that
00:14:08because it wasn't
00:14:09my idea
00:14:10at all
00:14:11I thought it was
00:14:11the worst idea ever
00:14:12to stand in front
00:14:14of the classroom
00:14:14and introduce myself
00:14:16because again
00:14:17that would be something
00:14:17that would be
00:14:18making me stand out
00:14:19as different
00:14:20which is weird now
00:14:21because it's something
00:14:22that I fully embrace
00:14:23after a while
00:14:24there was a line
00:14:25to sit by Lizzie
00:14:26people wanted to be
00:14:28next to Lizzie
00:14:28Lizzie began to open up
00:14:30she became more
00:14:32of who she is today
00:14:33so as tough as middle school
00:14:34was for her
00:14:36I think it really
00:14:37was a turning point
00:14:39cheerleading came about
00:14:47in seventh grade
00:14:48where she wanted
00:14:49to try out
00:14:50and I was
00:14:51no
00:14:51no
00:14:52it's not gonna work
00:14:53Lizzie
00:14:53you can't do
00:14:53any of the stunts
00:14:54you can't do this
00:14:55you can't do that
00:14:55she just was
00:14:56questioning me
00:14:57and saying
00:14:59do you think
00:14:59it's the right thing
00:15:00and that frustrated me
00:15:01because I was like
00:15:03I'm gonna do it
00:15:04stop asking me questions
00:15:05I know what I'm doing
00:15:06I know what I'm signing up for
00:15:07I got her everything she needed and she practiced outside in the backyard constantly and I just
00:15:14knew she wasn't gonna make it they were gonna pick her then I finally said she's gonna have
00:15:19to face not getting what she wants all the time I tried out without any of my friends so I didn't
00:15:29know anyone going in what am I doing I'm terrified but I did it I look back now and everyone made it
00:15:42but whatever I felt like I accomplished something
00:15:44before we begin tonight I would like to thank everyone for coming and help me fight
00:15:52it was two years after my sweet 15 and around that time was the best time because I had all my
00:16:13friends around me all my family around me I was on the high road when I was 17 everything changed
00:16:22it was afternoon and I was supposed to be doing homework and I decided to go look for music
00:16:33on YouTube instead and that's when I found it
00:16:37I don't even know why I clicked on it but I did and
00:16:46my heart dropped my stomach just seeing my face
00:16:53and then after I saw the picture then I looked at the title then I looked at the views then I looked
00:17:02at the comments I didn't cry while I was reading them I didn't cry when I saw the title I didn't cry
00:17:08when I saw four million views I cried when I looked to my right my mom saw it and that's when I lost it
00:17:16Rita called and was just crying and she said you have to come
00:17:24there's something really ugly on the internet and they're calling her the ugliest woman in the world
00:17:31I'm like how can people be like that I'm like you don't even know the person you're talking about
00:17:40I wanted to just protect her and defend her and you know get rid of it for her and take care of it
00:17:50I'd say I read hundreds of comments I just went page by page by page by page
00:17:57you would think one would stop reading them after the first one or two but I didn't I just read all of them
00:18:05calling me a monster or asking why my parents didn't abort me
00:18:11I wish you would just pick up a gun and in my life
00:18:15I've been born
00:18:16I'm never going to find anything
00:18:17why didn't your parents abort you
00:18:18why are you still blind
00:18:20because other people see your face in public and you're going to go blind
00:18:23I didn't talk to anybody about it
00:18:33I didn't tell my friends I found it I didn't tell anyone
00:18:35and I'm pretty sure I cried myself to sleep a few nights after that
00:18:40just being so shocked that that actually happened
00:18:46she goes mom they're saying such mean things
00:18:48so I made her shut it
00:18:50I said you need to get out and not read that anymore
00:18:54but she would not get off the floor
00:18:57she was so so hurt and so sad
00:19:00we tried taking it down and I think he got an alert
00:19:05that it was flagged or that someone was trying to take it down
00:19:09and then he contacted me
00:19:11the subject had in all capital letters
00:19:16I won't give up
00:19:17are you happy now that my video has been removed
00:19:21I'll reload it again and again and again
00:19:24it's just information
00:19:27that's when I went from being sad to being really really angry
00:19:33when they bully Lizzie
00:19:36they're also bullying our family
00:19:38because we have to watch Lizzie go through the pain
00:19:39and you can say that about every family that has a child that's getting bullied
00:19:42I want to just ask those people what is wrong with your life
00:19:47that you have to sit here and search through videos like this
00:19:51and make this ugly comment
00:19:53you called me the world's ugliest woman to be hateful
00:19:59and I was going to message him back
00:20:02but my dad right away was like you have to forgive him
00:20:05how in the world could I forgive this person
00:20:09how in the world can I forgive the people who told me to kill myself
00:20:13and I didn't ever think I would see the reason for it
00:20:16how in the world can I forgive him
00:20:20I'm gonna Irish
00:20:21if I had a little help
00:20:22and I don't do that
00:20:23I would see the truth
00:20:25no matter what If I was wrong
00:20:26I'm gonna give up
00:20:26you saw a little child
00:20:27and I'm gonna lose
00:20:28and whenever I walk over
00:20:29that little society
00:20:32I wanna do it
00:20:34no matter what
00:20:35I don't expect
00:20:38I'm gonna lose
00:20:39I'm gonna have a little Man
00:20:42and I don't know
00:20:43to who's wrong
00:20:44I started my YouTube channel a few years after finding the bad video and in
00:21:14my mind having control of my own channel being able to put out what I want was the best way that I could show people that they're not holding me back it was the quickest way that I could do it it took many years for me to really realize that this is what I want to keep doing it was just a side hobby at the beginning and the numbers didn't matter to me my content is what mattered to me it has become so easy for people to sit behind their computers and
00:21:44send hate to other people when in reality all of us could kind of use that easy route and sit behind our computers and send out love and positivity
00:21:55I started my channel as a response to being bullied I don't block anybody I do it for the bullies too as my dad always says they might be going through something worse than what I'm going through
00:22:08it took a while to get into a majority of the comments being nice but over time I felt comfortable enough to be able to leave the comments and comfortable enough with myself and strong enough with myself to know that if I read something bad I was going to let it roll off my shoulders
00:22:25My plan is to work as hard as my little body will work with me so that I can help make this amazing incredible place that we call the internet a happier more supportive and more positive community for all of us to hang out
00:22:45and I started realizing that the majority of the comments started being a whole lot positive and very little negative there are some youtubers that have a specific group that they do beauty bloggers daily bloggers I'm all of the above
00:23:01listen this is gonna be real talk if I wear high heels out I look like a newborn deer learning how to walk so today's recipe is going to be a recipe for curing a bad day
00:23:15yay yay first question is do you have a boyfriend
00:23:21I guess I'm not gonna tell you
00:23:25when I told my parents I wanted to write a book my dad was like oh that's so nice but you should probably have a boyfriend
00:23:29oh that's so nice but you should probably have a backup plan and the first thing I told him was I'm not dedicating the first book to you
00:23:35I'm happy that you guys are getting to know me as me not me as the ugliest girl in the world
00:23:43bye
00:23:44whatever I feel like filming or talking about when I press record is what I put up on my channel
00:23:51okay we're gonna introduce you to my youtube people
00:23:57sit right there
00:23:59okay I need to make I need to make it look pretty
00:24:03behind you
00:24:09you've never seen me do this have you
00:24:11nope
00:24:12put it all together
00:24:13mm-mm
00:24:14you're in for a real treat
00:24:15daddy-o
00:24:16you gonna center it
00:24:18this is gonna become an argument
00:24:20don't
00:24:22no you have to look at the camera
00:24:24okay ready
00:24:25dad
00:24:26don't look at me
00:24:27look at the lens
00:24:28not and don't look at yourself
00:24:29I need to listen to you ask questions
00:24:31I like to make eye contact
00:24:32we're doing
00:24:33we're doing
00:24:34I have to start
00:24:35you're looking at me look over there
00:24:36it's so difficult
00:24:37I have to start the video
00:24:39so to start it you have to look at the lens
00:24:41okay
00:24:42don't look at me
00:24:43do you want
00:24:45why don't you open it the way I open it
00:24:47just say
00:24:48hey everyone
00:24:49say that
00:24:50that's what I say
00:24:51say hi everyone
00:24:52hi everyone
00:24:53oh my god
00:24:54there
00:24:55okay
00:24:56I love making you
00:24:57okay
00:24:58so for today's video
00:24:59I wanted to introduce
00:25:00all of you
00:25:02to my
00:25:03dad
00:25:04okay
00:25:05stop spinning
00:25:06stop spinning
00:25:08stop spinning
00:25:09why do you have a spinning chair
00:25:10if you don't know when to spin
00:25:11go
00:25:12you're going to make it nauseous
00:25:13because you're spinning so much
00:25:14sorry
00:25:15I like it like that
00:25:16okay
00:25:17so come on
00:25:18let's dance
00:25:19so we like to dance together
00:25:21okay I want to say some things about my good old dad
00:25:24he's all about social media
00:25:26Facebook
00:25:27oh yeah
00:25:28you love Facebook don't you
00:25:29yeah I do love Facebook
00:25:30I like everything
00:25:32he likes everything
00:25:33and he likes to actually say
00:25:35that he's liking everything
00:25:37I like it
00:25:38I liked it
00:25:39I liked it
00:25:40I liked it
00:25:41what else do you want to say
00:25:42I have five Twitter accounts
00:25:44he does
00:25:45he has five
00:25:46because he keeps forgetting
00:25:47because I lost the password so
00:25:48have you never tried clicking
00:25:49forgot password
00:25:51no because then I asked you for the email
00:25:53and I don't know what one I put in there
00:25:54it was nice joining you today
00:25:56so I think we should do
00:25:58an interview with mom
00:26:00and all the things that she gets mad at me about
00:26:03ew
00:26:04that would be good right
00:26:05that would be a long one
00:26:06we'll need some extra time for that one
00:26:07yeah
00:26:08okay
00:26:09we're gonna wrap this up
00:26:10at the end of every video
00:26:11I have to tell them to write something in the comments
00:26:13mhm
00:26:14so what do you want them to write in the comments
00:26:15uh
00:26:16you pick a song you want me to dance to
00:26:19but it has to be a beat
00:26:21that's a good one
00:26:22I prefer like
00:26:23wrap it like it's hot
00:26:24or talk dirty to me
00:26:26or
00:26:27baby got bad
00:26:28so
00:26:29put in the comments below
00:26:30what song you want
00:26:31our family of five to dance to
00:26:32and we'll dance to it
00:26:33mhm
00:26:34and thanks for meeting my dad
00:26:35thank you
00:26:36thank you
00:26:37thank you
00:26:38thank you
00:26:39for one
00:26:40stop spinning
00:26:41okay
00:26:42you wanna count to three and say bye
00:26:43mhm
00:26:44yeah it's gonna take another two
00:26:45okay ready
00:26:46wait at three
00:26:47right
00:26:48yes
00:26:49okay go
00:26:50okay one two three
00:26:51bye
00:26:52bye
00:26:53bye
00:26:54i'm gonna go ahead and start my own youtube channel
00:26:58the youtube channel built my confidence
00:27:01i noticed that people were starting to listen
00:27:04then i got a call that put me on a new kind of stage
00:27:08i'm in a really really good mood right now
00:27:12because i just finished my rehearsal for my big ted talk
00:27:15and i'm excited and at least you got to go with me say hi
00:27:18hi
00:27:19i can't say anything right now about what's gonna happen but let me tell you i'm excited
00:27:23look how pumped i am this is me being pumped i'm so happy
00:27:28hello i'm america carrera and i'm so sorry to not be there in person
00:27:33but i didn't want to miss out on this opportunity to introduce to you a very special person
00:27:39i was touched by her remarkable story and i am inspired by her endless courage
00:27:45please join me in welcoming lizzie velasquez
00:27:48my life was put into my hands just like your lives are put into yours
00:27:56you are the person in the front seat of your car
00:27:59you are the one who decides whether your car goes down a bad path or a good path
00:28:05you are the one that decides what defines you
00:28:09for so long i thought what defined me was my outer appearance
00:28:14going to middle school i hated when i would wake up in the morning and i was looking in the mirror getting ready and thinking
00:28:20can i just scrub this syndrome off
00:28:23it would make my life so much easier if i could just scrub it off
00:28:27but then i started realizing
00:28:30am i going to let the people who call me a monster define me
00:28:34am i going to let the people who said kill it with fire define me
00:28:38no
00:28:40i'm going to let my goals and my success and my accomplishments be the things that define me
00:28:46not my outer appearance
00:28:49the best way that i could get back at all those people who made fun of me
00:28:54who teased me
00:28:55who called me ugly
00:28:57who called me a monster
00:28:58was to make myself better
00:29:00and to show them you know what
00:29:02tell me those negative things
00:29:04i'm going to turn them around
00:29:06and i'm going to use them as a ladder to climb up to my goals
00:29:09use that negativity that you have in your life to make yourself better
00:29:14because i guarantee you
00:29:17you will win
00:29:21i want you to leave here
00:29:23but remember
00:29:25brave starts here
00:29:27thank you
00:29:32i'm not sure what it was about the ted talk and what i said in it but the energy in the room was different
00:29:39there was something special brewing but i didn't think that it was with me
00:29:43i thought it was just everyone that was there
00:29:46it absolutely changed everything
00:29:50in her first television interview since her incredibly moving ted talk please welcome lizzie valeskis
00:29:53almost five million people have watched it what is the response been
00:29:56i felt for about a week everyday
00:29:59In her first television interview since her incredibly moving TED Talk, please welcome Lizzie Valeskis.
00:30:18Almost five million people have watched it. What has the response been?
00:30:22I felt for about a week every day that I was dreaming.
00:30:29For many years I compared myself to absolutely everyone I saw.
00:30:34Know that you are meant to be in this world for a reason.
00:30:38Know that you have the power to not only help yourself and those around you,
00:30:42but potentially people around the world.
00:30:45I knew I had struggles, but I was able to make the best of it,
00:30:50and you absolutely could do the exact same thing.
00:30:59I just barely watched your video yesterday!
00:31:02Nice to meet you!
00:31:04Hi! Nice to meet you!
00:31:06Thank you so much!
00:31:08I just barely watched your video yesterday!
00:31:14Yeah!
00:31:14Nice to meet you!
00:31:16Nice to meet you!
00:31:16Welcome in!
00:31:18Hi! Nice to meet you!
00:31:20Thank you so much!
00:31:22Thank you so much!
00:31:27Remember knockin' a cross途 can have you.
00:31:27Have fun!
00:31:30Finally mine's not clear how to expand
00:31:32a circle before your breath.
00:31:33Look what you missed!
00:31:39Hi!
00:31:46Nice to meet you!
00:31:47I think it was very inspiring, I really appreciate it, it was very good.
00:32:02Thank you, it's so amazing.
00:32:06And actually it's really coffee, and you just use different intensities of the coffee to
00:32:12do the different shades.
00:32:14Thank you so much, I'm so happy to meet you.
00:32:26Don't let the negativity hold you back.
00:32:30Be yourself no matter what, embrace who you are.
00:32:44When you grow up, you know that there's so many different cultures and languages, but it's
00:33:02until you see it, and you hear it, and you smell it, and you're around it, you appreciate it more.
00:33:20I think I'm just off-struck by all of it.
00:33:23True, real beauty shines from within, and no one shines brighter than our next guest.
00:33:28She did a TED Talk that knocked me out.
00:33:30It made me stand up and cheer, and so I say please welcome Lizzie Velasquez.
00:33:35Hey girl!
00:33:36I have a choice.
00:33:39I can either sit here and sink down to their level, or I can fight back with my accomplishments
00:33:46and making myself better, and I've kind of decided to do that.
00:33:50And it clicked in my mind that even though the people who I was talking to don't have my
00:33:55syndrome, we can somehow relate.
00:33:57And in that moment, I had never felt more confident in my own skin, and I knew this is my purpose.
00:34:03This is what I meant to do for the rest of my life, because I like to think that I'm not
00:34:07only telling my story, I'm telling everyone's story.
00:34:27I'm telling you what I meant to do for the rest of my life.
00:34:33For so long, my face has been synonymous as a victim of bullying.
00:34:36But now, I'm ready to be synonymous with bullying in a new way.
00:34:40As an activist with a loud voice to make it better.
00:34:42With that, I'm going to Washington D.C. in hopes I can lobby for the Safe Schools Improvement Act.
00:34:48My voice isn't the only one that needs to be heard, because it's going to take all of ours.
00:34:53So let's be heard together.
00:34:55Lizzie?
00:34:59Yes.
00:35:00Hi, it's Tina Meyer. How are you?
00:35:02Hi, Tina. I absolutely have to tell you how excited I am to talk to you.
00:35:07I know, I sent you that email, and I can't even put into words how much I admire what you're doing.
00:35:13So I'm really, really, really appreciative for you working with us.
00:35:19Oh, well, thank you again. I think what you're doing is amazing.
00:35:22We had watched your TED Talks, and we're just so impressed. And I think what you're doing is amazing.
00:35:29Hearing from your experience is something that's really, really helping me.
00:35:33And I think one of my biggest questions is as I think about doing all these things, and of course, it's something that I really want to do, but at the same time, it can be intimidating.
00:35:45And I've always been, I've always ran away from conflict or controversy. Do you have any advice?
00:35:54You know, I think in the beginning, after Megan passed away, it was more of, I just wanted justice. I wanted something to be done.
00:36:04And there was a law in this place, and everybody wanted to just say, this happened, I'm really sorry, it's horrible, but let's move on to the point.
00:36:12Megan was born on November 6th of 1992. She had two huge dimples, brown curly hair, just adorable. And Megan was this girl that could be really goofy and laugh a lot. But then she also was different than the other kids.
00:36:41In kindergarten, she would come home and say, mom, my legs are bigger than the other girls' legs. Or mom, they say I'm a giant, because she was taller. Or mom, you know, they don't want me to sit next to them, they said I'll crush them.
00:36:55As a mom, I would always say, honey, you're beautiful. From the inside and out, we're all different. But the older that she got, I could definitely see more of the struggles of trying to fit in and trying to be a part of what she thought everybody else was.
00:37:08Megan had switched from 7th grade to 8th grade to a new school because she was going through just horrendous bullying. And going into this new 8th grade, she was feeling better about herself and she started the volleyball team and making friends.
00:37:22So she was going to be turning 14. And she came home one day from school and said, mom, can I have a MySpace, please? And I was like, Meg, honey, no, sexual predators, no way. I was one of those crazy moms. And she's like, mom, please, everybody's got it, please. So I let her have a MySpace, but I had rules.
00:37:44She was befriended by this boy by the name of Josh Evans. So I said, okay, Meg, I will let you at him. But anything negative, anything sexual, he's deleted immediately.
00:37:56So Megan and Josh started talking. Josh told Megan she had a beautiful smile and Megan thought he was cute. And they talked back and forth and liked each other.
00:38:06It was a Sunday, October 15th, 2006. She said, mom, can I get into MySpace? So I signed her on. And when she saw this message, it was from Josh Evans. No one likes you. No one wants to be friends with you.
00:38:20Megan was like, what are you talking about? Who's saying this? Where are you getting this from? Now Josh got two other girls involved. And these messages that went back and forth were not just Megan, we don't like you. Megan, you're not very nice.
00:38:33Those escalated very quickly to Megan Myers, a fat ass, Megan Myers, a whore, all of these things. She took off running upstairs to her room. It was probably 20 minutes went by. And I just stopped in mid sentence and had this horrible feeling. It was like, all I heard was, it was complete silence. And I took off running upstairs to Megan's room. I opened the door and I found her hanging in her closet.
00:39:00It was like this whole entire feeling of like, this is it. I mean, there's no more chance. There's nothing. And she was gone. And I miss her every single minute of her day.
00:39:30I feel like I'm growing into this big role in front of so many. But at the end of the day, to me, it's just about helping one person at a time.
00:39:45Hi.
00:39:46Oh my gosh, I have read so much about you. Really?
00:39:50I've seen so much about you. It's an honor to teach you right now.
00:39:52How cool. It's so nice. Can I give you a hug?
00:39:53Yes.
00:39:54It's so nice to meet you.
00:39:55Oh my God.
00:39:56Your inspiration.
00:39:57Thank you so much.
00:39:58Look how cool these colors are. That's exciting.
00:40:02Can you say hi to her?
00:40:04No.
00:40:05That's okay.
00:40:06Her hair is so pretty.
00:40:08Hi. How cool. What a cool room.
00:40:10I saw you downstairs.
00:40:11Hi.
00:40:12Nice to meet you.
00:40:13Nice to meet you.
00:40:14Hi.
00:40:15Nice to meet you.
00:40:16He has a genetic blood issue called Factor V. It basically just gives him more of a risk for blood clotting.
00:40:24You know, as he gets older and has to advocate for himself, he needs to know.
00:40:28You know, we're in the same boat. My parents would do everything for me and do all the appointments for me.
00:40:34But now, I'm having to do it and ask my own questions at doctor's appointments and do all that stuff.
00:40:40So, it's good that you're starting to do it.
00:40:42It must feel good to start getting some answers.
00:40:45It's Princess.
00:40:46Hi.
00:40:47Nice to meet you.
00:40:49How are you?
00:40:50Hi.
00:40:51Nice to meet you.
00:40:52Hi.
00:40:53How are you?
00:40:54Can I sit here?
00:40:55Yes, please.
00:40:56It's so nice and comfortable.
00:40:58You have the coolest name.
00:41:00You, like, irradiate happiness.
00:41:02Like, I feel it.
00:41:04It's nice.
00:41:05You continue on.
00:41:06I wish you well and all your endeavors.
00:41:08Thank you so much.
00:41:09Yeah.
00:41:10Thank you so much.
00:41:11I know some days it can seem frustrating.
00:41:12Yes, yes.
00:41:13Like, ugh.
00:41:14Yes.
00:41:15But, it's a new day.
00:41:16That's right.
00:41:17God, keep going.
00:41:18That's right.
00:41:19The sun will come up again.
00:41:21I have sickle cell pneumonia and I was born with it.
00:41:26Then, I had two strokes.
00:41:29That was, like, horrible.
00:41:31Then, one when I was five, I had a repeat stroke at five.
00:41:34Then, I had brain surgery.
00:41:36I'm totally healthy.
00:41:38That is amazing.
00:41:40Yes.
00:41:41I'm so amazed by you.
00:41:43That's so inspiring.
00:41:45Like, you're so strong.
00:41:48We've been trying to solve the mystery around my health for a long, long time now.
00:42:03To me, it's just not as important anymore.
00:42:07But, it is important to the people I care about.
00:42:13Dr. Chopra and Houston said that he found, basically, my diagnosis.
00:42:19And, he's going to sit down with me and mom and dad and Dr. Cortez.
00:42:24And, after we find out, everything's going to change.
00:42:28You wouldn't be the undiagnosed syndrome?
00:42:30No.
00:42:31You'd have one?
00:42:32I won't be, like, one of three.
00:42:33Okay.
00:42:34I'll be one of whatever he tells us.
00:42:35Whatever they find.
00:42:36It's not going to change who I am.
00:42:37It's not going to change what I do.
00:42:39It's just...
00:42:40It's going to be different to you.
00:42:41But, to us, nothing's changing except you're just putting a name to it.
00:42:45You know?
00:42:46Yeah.
00:42:47I know, but...
00:42:48When you don't think you'll ever have a name for something for, like...
00:42:5225 years.
00:42:54And then you get a phone call that's like, now you have one.
00:42:58Which would be a good feeling, though.
00:43:00After all those tests.
00:43:02After all the blood work.
00:43:04After all the doctor visits.
00:43:06Do you think it might be something where, like, they tell us and then...
00:43:10He says, this could...
00:43:13This could happen.
00:43:14Do you want to know what could happen?
00:43:16Do I want to know or do I not want to know?
00:43:19I don't want you to live your life knowing that certain things will happen to you.
00:43:23Like, if you get there and you feel like you want to know what's going to happen, then do it.
00:43:27Yeah.
00:43:28I'm just...
00:43:29I'm not saying don't do it.
00:43:31I'm saying whatever you feel comfortable with at that time.
00:43:34Like, don't make your mind up now.
00:43:37It's for real this time.
00:43:40Dr. Chopra called.
00:43:41He is the doctor that was doing some genetics testing on Lizzie.
00:43:42Didn't really specifically go into everything.
00:43:43So we're going to be driving over there to see what he has to talk to us about.
00:43:44All right.
00:43:45Little young lady.
00:43:46Let me get the booster seat.
00:43:47Stop.
00:43:48So right now, it's just a matter of waiting to see what's going to happen.
00:43:49Have a safe trip.
00:43:50Okay.
00:43:51So, hello, you're going to text me today and she said good luck today.
00:43:53Remember that whatever happens doesn't change who you are in any way.
00:44:04You're still Lizzie no matter what.
00:44:05We're all in this together.
00:44:06Love you.
00:44:07That's great.
00:44:08I love you.
00:44:09Come on.
00:44:10I love you.
00:44:11I love you.
00:44:12I love you.
00:44:13I love you.
00:44:14I love you.
00:44:15I love you.
00:44:16I love you.
00:44:17I love you.
00:44:18I love you.
00:44:19I love you.
00:44:20A lot of things are going through my mind, at least, wondering what it could possibly be and what it means for the rest of her life.
00:44:31So what do you think?
00:44:33About what?
00:44:34About what they might say.
00:44:38I don't know.
00:44:40I've just been dreading this for so long, I just want to get it over with.
00:44:44And I want to know, if he does have a diagnosis, does that mean I'm done doing tests?
00:44:53Are you getting teary-eyed?
00:44:54Yeah.
00:44:55Why?
00:45:00Because you want to know something?
00:45:02Because you didn't think this day would come.
00:45:04Both.
00:45:06Are they happy tears or sad tears?
00:45:09It's worried.
00:45:10The scariest is finding out what is a lifespan.
00:45:14Just the meaning behind not being undiagnosed is scary.
00:45:24And until I hear it for myself, I can't say if it'll change my life or not.
00:45:30I would like to say it won't.
00:45:32It's not going to change who I am.
00:45:34It's not going to change my personality.
00:45:36It's not going to change my values.
00:45:39But at the same time, I can't put into words what it's like personally.
00:45:46Just to know.
00:45:47Hi, good to see you.
00:45:53It's been a while.
00:45:53I know.
00:45:54How are you?
00:45:54Good.
00:45:55Good.
00:45:55Have a seat.
00:45:57Hello, hello.
00:45:58How are you?
00:45:58Yeah.
00:45:59Good to see you.
00:45:59As you can imagine, with genetic diagnoses, things are complicated.
00:46:07So I'll use the whiteboard.
00:46:09So all of us have about 20,000 genes.
00:46:13All genes are made up of DNA.
00:46:14One of those genes, the name is FBN1, and that's the gene in question for Lizzie.
00:46:23So what we did was we sequenced all 20,000 genes, trying to look for what we call mutations,
00:46:30changes that shouldn't be there.
00:46:32And we compared Lizzie's genome, 20,000 genes that Lizzie has, with the 20,000 genes that you
00:46:38guys have.
00:46:39The change that we found was just in Lizzie.
00:46:41We did not find the change in the parents.
00:46:43So we don't have the gene?
00:46:45No, you guys all have the gene.
00:46:47All of us in this room have the gene.
00:46:49Lizzie has a bad copy of the FBN1 gene, and Lizzie is the only one in the family that has
00:46:54it.
00:46:55The condition that has been associated with this gene is Marfan syndrome.
00:47:00Marfan syndrome affects three systems.
00:47:02It affects the eyes, it affects the heart, and it affects the bones.
00:47:08But Lizzie has one additional feature, which is the inability to gain weight.
00:47:11And that is called lipodystrophy.
00:47:15And what it means is a reduction in fat.
00:47:18So Lizzie has these two things.
00:47:20And this thing has been called neonatal progeroid syndrome.
00:47:24I'm going to give you guys some reports, because these four or five other people have been described
00:47:32in the literature with mutations in the same region of FBN1, and that is actually the critical
00:47:36part here.
00:47:37They look like Lizzie.
00:47:38They're mutations in the same region of FBN1, to where I feel very confident that this
00:47:43is what is causing Lizzie's condition.
00:47:45So what Lizzie has is a combination.
00:47:47But I want you to take home this message that she has Marfan syndrome.
00:47:51Because it means we have some implications.
00:47:55So what we'll be doing is getting Lizzie to see a cardiologist.
00:48:00She would need to get imaging of her heart.
00:48:04And what we'll be looking at there is the aorta.
00:48:08That's the blood vessel, the big blood vessel that arises from the top of the heart and supplies
00:48:12blood to the rest of the body.
00:48:14There can be problems with rupture.
00:48:16What would happen if it ruptures?
00:48:19That would be a bad thing.
00:48:21You would need immediate surgery.
00:48:22And it can oftentimes be fatal before patients get to the hospital, because it's a very serious
00:48:30condition.
00:48:30Are there signs of it?
00:48:33Usually, by the time you're having signs of aortic dilatation, it's late.
00:48:37Too late.
00:48:38It's late in the process.
00:48:39There's still a possibility that it could happen.
00:48:42Well, the good thing is...
00:48:43Worst case scenario, that that would happen.
00:48:45They usually do medication to help make sure it stays...
00:48:48To help stabilize it?
00:48:49Yeah.
00:48:49So what we can do is try to reduce some of your blood pressure.
00:48:52Prevent the progression of the enlargement.
00:48:54Okay?
00:48:55Is Lizzie the oldest person that you know of?
00:48:58I think where you're going with this is life expectancy.
00:49:02This is a relatively unique condition, so I can't say anything with absolute certainty.
00:49:07But as long as we keep a close eye on dilatation of the aorta, life expectancy would be expected
00:49:13to be normal.
00:49:15Does that answer your question?
00:49:16Okay.
00:49:17For so long, I just let her deal with it.
00:49:19Right.
00:49:19And now that I know, I want to be more involved in the results of things.
00:49:27I think it was me pushing her to all these doctors and testing and all that other stuff,
00:49:35because I always thought it was my fault.
00:49:38It wasn't.
00:49:42How could you guys control any of it?
00:49:44How could anybody control any of it?
00:49:46It's a random process.
00:49:47None of us are in control of the genes that we pass along.
00:49:50And in your case, you didn't even pass on the...
00:49:53I didn't know that.
00:49:54...this copy.
00:49:56Does that make you feel relieved?
00:49:58No.
00:49:58I never knew you thought that.
00:50:03All of us are prisoners of the genes that we've inherited and the genes that we have.
00:50:08And your mutation makes you unique.
00:50:10Let's just call it my difference.
00:50:12We can call it that.
00:50:13Okay.
00:50:14It kind of makes me feel good.
00:50:16Like, I was really, really meant to have it, because y'all didn't give it to me.
00:50:25Thank you so much for everything.
00:50:27I really appreciate it, even when I wasn't nice.
00:50:30You were always nice.
00:50:32Thank you so much.
00:50:32My dad has always told me, when it's your time to go, it's your time to go.
00:50:35And so then, I'm just going to hope that my heart is as strong as I think it is.
00:50:44I want my heart to be strong, faithful, and I want it to be brave,
00:50:49because we're about to fight a whole new chapter,
00:50:54and I literally can't do this without my heart.
00:51:05I'm so excited at the fact that I'll be in a room with 10,000 people,
00:51:14but the fact that, like, maybe, I don't even know how many you, like,
00:51:18are going to be watching online is very exciting.
00:51:21All of the other events I've been doing have been, like, drinking water,
00:51:25and then this big one is going to be, like, drinking coffee,
00:51:28and it's going to make me, like, so pumped and excited.
00:51:35I just want to, like, feel the room tomorrow, like, with people in here.
00:51:56I'm going to look, like, this big.
00:52:05How do you feel this, like?
00:52:08I like it.
00:52:09I feel good.
00:52:10I'm ready.
00:52:11Right here.
00:52:13I'm glad the team's right here, because that's going to find where to stop.
00:52:18And it's going to start, and I'm going to say,
00:52:21Hola a todos.
00:52:22Bienvenidos.
00:52:25My mom was involved in church.
00:52:27She made sure we went.
00:52:29My dad went every so often.
00:52:31Lupe's parents went to church, but they didn't make Lupe go.
00:52:35He went on his own.
00:52:36It was his thing to do.
00:52:40When we had Lizzie, Lupe's promise was that he would continue to serve him as long as she stayed healthy.
00:52:48That's why he keeps doing religious aid.
00:52:54He won't leave it, because that was his promise.
00:53:00I've asked him before, do you want to take a break?
00:53:02Do you want to get away?
00:53:03But he says, I can't.
00:53:04That's the promise I made when Lizzie was born.
00:53:06And so he's kept it.
00:53:10And I've never asked him again.
00:53:12Do you want to go back home?
00:53:26Oh, no.
00:53:27Hi.
00:53:32He's all in the bathroom with us.
00:53:34All the shade.
00:53:36Very riveting stuff watching me do my hair.
00:53:38Okay, Chris.
00:53:39Okay, bye.
00:53:40Have a good day.
00:53:40Love you.
00:53:41Bye.
00:53:42Love you.
00:53:42Bye.
00:53:43Bye.
00:53:47Okay.
00:53:49Okay, great.
00:53:50How are people okay with, like, sending out such hate first thing in the morning?
00:54:06You know, not something a girl wants to hear while she's trying to get ready.
00:54:11They're trying to tell me that I still have a job to do.
00:54:16And there's people that are still needing to hear me.
00:54:20It's just making me want to, like, do really well today.
00:54:28As I was getting ready, I started realizing, like, how big of a deal this is.
00:54:33I've just been really thinking about how much of an honor it is for me to even just be in
00:54:45the same room as these people.
00:54:48How am I going to live up to that standard?
00:54:51How in the world do I even prep for something like this?
00:54:54How are you?
00:55:10Okay, that's when I get good.
00:55:15Hi.
00:55:16Nice to meet you.
00:55:17Hi.
00:55:18Hi.
00:55:19How are you?
00:55:19It's such an honor to meet you.
00:55:21And thank you for your wonderful work.
00:55:23Oh, thank you very much.
00:55:24Oh, it's so important.
00:55:26Oh, it's so nice to meet you.
00:55:27I'm going to D.C. tomorrow to lobby for the first anti-bullying bill.
00:55:32So you're going to D.C. tomorrow?
00:55:33Yes.
00:55:34And who are we going to be seeing?
00:55:36We're going to do briefings and one-on-one meetings with different congresspeople.
00:55:39That's great.
00:55:40I don't think anything works better than personal testimony.
00:55:45I think so, too.
00:55:46You're somebody who can tell the story and inspire others to develop it.
00:55:51Yeah, it makes all the hard days I've had worth it.
00:55:53It does.
00:55:54Because it's like, I know what you've been through.
00:55:55Now, together, let's make a difference.
00:55:58That's right.
00:55:59Good luck tomorrow.
00:55:59It was so nice meeting you.
00:56:00Thank you so much.
00:56:02Take care.
00:56:03Bye-bye.
00:56:11That was exciting.
00:56:46That's all the Spanish I know.
00:57:10We all have our own journey.
00:57:18My journey started in Texas.
00:57:22My journey started 25 years ago.
00:57:25The start to your journey might be positive.
00:57:29The start to your journey might be negative.
00:57:32But we were all meant to be put on this earth for a reason.
00:57:37People have called me the ugliest woman in the world, but am I going to believe them?
00:57:42No.
00:57:44Because I believe in my journey and my purpose.
00:57:47I am a girl from Texas who had a wild dream.
00:58:01A wild dream to inspire people.
00:58:04It's funny to say this now.
00:58:05I would say if I could speak to a room of 1,000 people and I change the life of one person, that's all that matters.
00:58:15You can decide right now, I'm going to be brave and I'm going to be brave and I'm going to find my purpose and I'm going to succeed.
00:58:29That's all you have to say.
00:58:31I decided I could do it and I learned that I am beautiful, I am smart, and I can do the things that I put my mind to because I believed it first.
00:58:45You are the biggest influence in your life, not anyone else.
00:58:52I want to leave you with a quote that I read recently.
00:59:05When you know who you are and what you stand for, you stand in wisdom.
00:59:17Gracias, Mexico.
00:59:22Gracias, Mexico.
00:59:52I wanted to meet you because being around somebody else who, out of something that's been hard, is trying to make it better.
01:00:02And knowing that it's really good to be able to be in the same place with somebody like that,
01:00:07that can understand the pressures of putting yourself out there every day.
01:00:11Yes, there's pressure of having to turn it on and turn it off and still trying to stay sane between everything and feeling like you have to be strong for everyone else.
01:00:23But knowing the truth is, you really have to be strong for yourself first.
01:00:27Right.
01:00:27And it can be hard sometimes.
01:00:29Oh, definitely.
01:00:30But it's still worth it.
01:00:31When you get done speaking afterwards, you many times have people that come up that are really struggling.
01:00:37You walk away and sometimes I'll, you know, sit in a plane and I'll, like, all of a sudden just have tears start rolling down my face.
01:00:44Right.
01:00:44It's a lot sometimes.
01:00:45And it'll just hit me all at once.
01:00:48Like, I have to, I feel like I put the pressure on myself to live up to everything and be the person that people are so inspired by and looking up to.
01:00:59And then it's like, I'm having a weak moment, but am I allowed to have that weak moment?
01:01:04When you have self-doubt, I think it's important for us to reset and then move forward.
01:01:11To be able to, like, connect with someone that knows exactly what it's like.
01:01:19Right.
01:01:20It is.
01:01:22Like I told you on the phone, there are times that we sit there and think, can I do this?
01:01:28Can I, is, what if I'm not that?
01:01:31What if, what if I can't live up to it?
01:01:33Right.
01:01:34What if you can't live up to that?
01:01:35Ugh.
01:01:36I just can't believe we're here.
01:01:38I know, but it's going to be you.
01:01:41I just need to not put so much pressure on myself.
01:01:44If you can just be you, just you, they will see through all of the other stuff to just see you.
01:01:54If you just show, I'm here because I want to make this difference.
01:01:59I want, I've gone through it.
01:02:01I've lived it.
01:02:02I want to be able to now help the kids that don't feel like they have a voice.
01:02:06And that's what we need your support.
01:02:08That we're trying to get bullying defined.
01:02:10Giving the schools the tools to be able to now know what they can do to help the students.
01:02:14Right.
01:02:14If you just go with your heart, I think you're going to be amazing.
01:02:19You're going to make a difference regardless.
01:02:20I read a comment yesterday.
01:02:26All I said was, you're unstoppable.
01:02:28And I thought, you know, we kind of are.
01:02:32This is really, like, surreal.
01:02:37And all I can do is eat bacon.
01:02:39That makes me very comfortable.
01:02:40I put a status on Facebook this morning for all my internet friends.
01:02:50I said, today I will take every story, every tear, every time someone was bullied with me into each meeting I have on Capitol Hill.
01:02:59I will proudly take my experiences in years to the people who can make a change and do my absolute best to show them that it's time to do more than just talk about bullying, but to do something about it.
01:03:21Here we go.
01:03:22I'm pleased to be here talking about the critical issue of bullying because when I was first elected to Congress, I held a series of meetings with local school superintendents and law enforcement leaders to learn more about the challenges that they face in keeping kids in school and on the right track to becoming productive citizens.
01:03:44And unfortunately, I heard a recurring theme during this series of meetings, and that was that bullying isn't a harmless prank or some kind of rite of passage.
01:03:54It's dangerous both physically and mentally for students.
01:03:57Bullying leads to things like poor school performance, absences from school, or even dropping out of school altogether.
01:04:04The prospect of assault and harassment can lead a child to join a gang for protection.
01:04:08That's why I've been working to change federal laws so that schools can use federal funds to address and prevent bullying and harassment.
01:04:16The Safe Schools Improvement Act is meant to provide national standard across every school district in every state that says that bullying will not be tolerated on school campuses.
01:04:25We may be in the midst of a culture of meanness.
01:04:38There's research that shows that if you ask kids to define what bullying means, they think it means getting beat up on the playground.
01:04:45They don't think of it as what's going on on Facebook.
01:04:48You know, at its heart, bullying is really intended to harm.
01:04:52There is that dynamic that prior generations experience that bullying is character building or, you know, it's important for the victim to stand up, you know, to the bully.
01:05:03And it's hard when you grew up with that mindset to understand that there's a new phenomenon going on.
01:05:10There are indications that online is often an extension of what's going on at school.
01:05:18And so when the kids come home, there's no break.
01:05:21They're still immersed in the drama, the cycle of drama amongst their classmates.
01:05:28Most of the members that are here who are of a certain generation don't understand how kids can be harassed 24-7 and how just devastating that can be for those kids.
01:05:42And I think if they were to understand that times have changed and that it's a far more pervasive problem now, probably their mindset might change.
01:05:53But it's hard to explain that to somebody who hasn't experienced that personally.
01:05:58And that's why sharing those personal stories with these members is really important.
01:06:02Well, I can't tell you how touched I am by your story and how amazed I am at the work that you do.
01:06:10And just keep going and keep up the great work.
01:06:13The legislative process is a slow one.
01:06:15But to see a bill like this not get the support that it deserves, despite eight years of advocacy and work on it, is a little bit frustrating.
01:06:24Congresswoman Sanchez is fighting the same fight that I am.
01:06:28We're in this together and knowing that it was meant for both of us to be sitting there side by side, which is something that was very, very powerful.
01:06:41Mom, I don't feel good.
01:06:44My body just doesn't feel right.
01:06:48Hello.
01:06:49Hi.
01:06:49Hi.
01:06:50How are you?
01:06:51Nice to meet you.
01:06:53Nice to meet you.
01:06:53Hi, I'm Rita Velasquez.
01:06:55Hello.
01:06:55Nice to meet you all.
01:06:56I want to come into the conference office.
01:06:58Myself doing the research, I found myself getting really angry that there's not enough support for it.
01:07:07Very proud of you for being so brave and positive.
01:07:12And I have to say, I saw your TED Talk maybe a year ago.
01:07:16Wow.
01:07:17Wow.
01:07:18And it kind of left an impact on me, so I just wanted to tell you that.
01:07:21Oh, thank you so much.
01:07:23We've sponsored a couple of anti-bullying programs in our district.
01:07:28Right.
01:07:29I'm hoping you can help us continue that impact for kids in every school.
01:07:34My story's only one.
01:07:38There's so many others.
01:07:40Hi, Lizzie.
01:07:41Nice to meet you.
01:07:42Hi.
01:07:42It's a nonpartisan issue because it affects constituents in every member's district.
01:07:47A little better.
01:07:55Wow.
01:07:56It's a big room.
01:07:57I wanted to come here because I feel like this is a place where change happens.
01:08:03And unfortunately, the change hasn't been made.
01:08:06We're fully aware that bullying is never going to stop.
01:08:09There's never going to be a cure.
01:08:11But we are just doing whatever we can to help get the support.
01:08:14It affects the whole family, not just the person being bullied.
01:08:18Exactly.
01:08:18It affects everybody.
01:08:20Exactly.
01:08:21Yeah.
01:08:26My stomach is too upset.
01:08:28Sitting in there, it just hit me like a wave of heat.
01:08:34And I had to run to the bathroom to throw up again.
01:08:37And I went back outside.
01:08:39And I just sat in the wheelchair.
01:08:40And he came out.
01:08:42And he looked at me.
01:08:43And I thought, okay, I have to turn it on.
01:08:45All right.
01:08:45Well, we're glad you're here.
01:08:46Thank you so much.
01:08:46And we're going to try to help you if we can.
01:08:50Stay in touch.
01:08:51And you can call me anytime.
01:08:52I really, really appreciate it.
01:08:54Good to see you.
01:08:54You too.
01:08:55Okay.
01:08:58I think you should call him.
01:09:07Huh?
01:09:07I think you should call him.
01:09:09Call home?
01:09:10No.
01:09:10What?
01:09:11Doctor.
01:09:11That is.
01:09:12Okay.
01:09:17I'm powering through.
01:09:18We're going to do it.
01:09:20I'm not getting sick.
01:09:22I'm not getting sick.
01:09:24Nope, I'm not.
01:09:26Coming here is a once-in-a-lifetime experience.
01:09:29As awful as I felt.
01:09:31There's no way in the world that I would let my body make me come home.
01:09:37There's no way.
01:09:39There's no way.
01:09:40400 Massachusetts Avenue.
01:09:44And plus my outfits have been really cute.
01:09:46Even though I was throwing up, there was people in the bathrooms every time I would go in there.
01:09:49So they would get to see the dress too.
01:09:52So it counted.
01:09:54Throw up, eat a mint, and then get back on the wheelchair and do it all over again.
01:10:01Just got to get through one more thing.
01:10:03One more thing.
01:10:03For those of you that don't know my story, I was born with a very rare syndrome that doesn't
01:10:26allow me to gain weight.
01:10:28And unfortunately, when I started school, I had to encounter bullying at a very early age.
01:10:37I will go back every single day and deal with every harsh word, every awful comment,
01:10:44whatever it takes, over and over again, because of the fact that the outcome is me being able
01:10:50to sit here and be the voice for every child that has been bullied.
01:10:53And the importance of this bill being passed can easily go without saying.
01:11:02We see so many stories in the media of children killing themselves.
01:11:09What's being done?
01:11:12Nothing.
01:11:14It's taken eight years, and it's still not passed.
01:11:19What is it going to take?
01:11:21What is it going to take?
01:11:24It blows my mind to think that there's adults here who have the power to simply co-sign their
01:11:31name.
01:11:33That's it.
01:11:34I don't think they realize how many lives they can save every single day.
01:11:45It has to stop.
01:11:47It has to stop.
01:11:49I'm 25 years old, and I still remember being picked on in elementary school.
01:11:57Those scars will never go away.
01:12:00I don't want you to leave here feeling sorry for me, because I've become much stronger than
01:12:06that.
01:12:07I want you to leave, and rather feeling like you need to stand up for me, I want you to
01:12:10stand beside me.
01:12:11And stand beside every child that's ever been bullied.
01:12:15If I ever, somehow, someway, meet the person who sent me that message, or who first posted
01:12:29it, I would thank him.
01:12:32Thank him for making me as strong as I am today.
01:12:35It's just crazy to look back and see the progression that I made.
01:12:41I think the biggest difference is having people just talk to me as a human being.
01:12:50If I hadn't been able to embrace the body that I'm in, there's no way that I could have been the champion
01:13:03for so many other people.
01:13:05I know good and well that bullying will never, ever, ever stop, but what can continue is someone
01:13:15being the leader to show the best way that we can deal with it.
01:13:19All I know is being knocked down and getting back up.
01:13:41I've been in and out of doctor's offices, in and out of hospitals, in and out of surgeries,
01:13:46but really, all I know is that you get better, and then you keep going, and if something else
01:13:53comes up, you pick yourself back up and you deal with it.
01:13:57I think I've realized that this is something that means a lot to me, and I'm not going to
01:14:00go away until they listen.
01:14:16I think I've realized that this is another story that I'm dreaming about.
01:14:19It's just a short time to see the anticipation of the Lord's side, but a long time to go away.
01:14:22I'm good.
01:14:23And I'm going to get to see the session tomorrow, and I'll be here today.
01:14:25Sorry, but now I'm going to take a moment.
01:14:29I'm still here.
01:14:30I'm in and out of this time.
01:14:33I got it.
01:14:34I'm in and out of this time.
01:14:36Why are you doing this?
01:14:38I'm out of this place.
01:14:41I'm here.
01:14:43I'm the one I've been 3-in-1-1-1.
01:14:46You wanna walk to the room like that other girl does
01:15:08The one that's always making everybody fall in love
01:15:12You see, girl, you're a lot like me
01:15:17She rearranges all the light in the room
01:15:22So you're always in the shadows
01:15:25Well, that's what it feels like to you
01:15:28Baby, I've been there too
01:15:33And I know how much it can sometimes hurt
01:15:40You feel like the whole world has made you the ugly girl
01:15:47But take it from me that you have to see it first
01:15:56So before you trade in your summer skin
01:16:01For those high-heeled shoes
01:16:04To make them wanna be with you
01:16:07Let me remind you one more time
01:16:13That just maybe you're beautiful
01:16:16But you just can't see
01:16:19So why don't you trust me
01:16:22They'll see it too, you beautiful girl
01:16:29And I know how much you've been dying to say
01:16:36And I know how much you've been dying to say
01:16:49Look how much everybody loves me
01:16:56But guess who gets left when everyone else fades away
01:17:04So before you trade in your summer skin
01:17:09For those high-heeled shoes
01:17:12To make them wanna be with you
01:17:18Let me remind you one more time
01:17:22That just maybe you're beautiful
01:17:25But you just can't see
01:17:29So why don't you trust me
01:17:33They'll see it too, you beautiful girl
01:17:39You beautiful girl, you
01:17:51You beautiful girl, you
01:17:55Ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh, ooh
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