00:00People assume that he's with me for my money or he's only with me because he feels bad for me
00:05I don't have a job and I can't blocks my airway from their mouth
00:09At first negative comments got in really really hard. I remember at first you
00:14You would you would be very emotional. What filter is this? How did this happen to a person?
00:22This right here
00:24It's my airway, I don't have a job and I can't blocks my airway from their mouth
00:29So having a tray helps it support me breathing a lot more better. I need to be careful how I clean it
00:35I usually clean it like once a week. True to color syndrome is a genetic condition that I was born with
00:41It's a bone feature where I was born without no jaw
00:45No ears. I had a hearing aid because I don't have ears
00:48Obviously, it's hard for me to chew and breathe on my own
00:52There's certain things I can't do like swim in water or chew proper food
00:57I have to be careful what I eat or else I'll choke
01:02Hey babe
01:04Want some coffee? Yes, please. My dating life
01:08I never dated anybody like an actual relationship. I remember being so so scared
01:16We met in August
01:18Back in 2022
01:21At first I was very scared of dating because I never knew what to expect
01:26I've never dated anybody with this condition which made me more interested about what the condition is because I never knew what it was
01:33But uh, I wasn't nervous about it only because how you look doesn't really bother me at all
01:39You know, I've always told you this
01:41You never judge a book by its cover until you actually read the book
01:48I love you. I love you too
01:50The relationship that I have now
01:52It makes me feel good. I don't feel like I have a condition. I don't feel like I'm any different
01:57I don't feel any less of a human. I don't feel any just I just feel good around him and I never met a guy like that
02:06You know, I'm a cameraman I got to get her recording every time she dancing because she's so good with it
02:11You know what I'm saying?
02:13When did you first discover you had a talent for dancing?
02:15I
02:19Was Ken and my dad and notice I was like moving my body around he's like, yeah, what are you doing?
02:27I said, oh I like the music, you know, my dad was smiling
02:30You know how to dance. I'm like, okay
02:35Dancing makes me feel
02:37stressed relieved
02:38It helps me get my mind off the things
02:41Dancing is my way of letting things go and letting things out of my system instead of, you know screaming
02:49Put your lungs when I see Kayla dancing how I feel about that. I feel like she's living her best life
02:58I started posting on TikTok on August of 2023. My boyfriend actually is the one that told me to like
03:05Post like hey, you should show off your talent like imagine how many people you would
03:09Live with your condition or like disability in general and it's not they're like, hmm
03:15You know, like I was kind of scared because of the heat. There's a lot of hate comments in the world right now
03:21Okay, you know it screw it. I'll do it. Why not? I never thought my videos were gonna be viral
03:26It was unexpected and it's just crazy this dance that it was going viral for a while
03:32So I did the dance it went viral overnight. It was it hit 11.5 million views. Oh, yeah
03:39Overnight everybody was commenting like girl you could dance like I think there were more more shots that people with condition like me
03:47can
03:49Do something like that and I saw all the nice comments. I saw all the negative comments
03:54I was like, okay at first negative comments got in really really hard. I remember at first you would
03:59You would you would be very emotional and that's understandable who's not emotional everybody she would ask me that
04:06Why are they talking to me like this? What filter is this?
04:11They're assuming that
04:13My disability or my face is a filter which I'm like, okay, you're trying to X. Oh, I don't know
04:18How did this happen to a person?
04:22And I'm like
04:25Some of y'all ain't smart or you're just trying to be funny and it's not funny. It's
04:31Stupid the next one. It's a frog emoji
04:37Or that it's literally the same comments every single day or every time I post so it's nothing that bothers me
04:44Anymore, at least I feel like they got too much time on their hand where they feel probably miserable themselves
04:50Again really hurt and if they do they need help. We kind of just kind of like
04:55Shrug it shrug it look at it like, okay, you want to be negative? Okay. Is there anything better you can do with your life?
05:02Besides being negative. I
05:04Sometimes look at it as a boost to play. Okay, since you want to be that negative
05:09I'm gonna keep doing what I'm doing
05:10You're boosting me as to be a better person if you can make a negative to a positive
05:14Then what can break you it's kind of like hate me some more you making me happier than ever
05:20Basically
05:22Basically, yeah people assume that he's with me for my money or he's only with me because he feels bad for me
05:29Not understanding that a lot of the times is not about looks when people say or he's just doing it for the money
05:36You don't know that you don't it's not true. And it's not true. I make my money. She makes her money
05:42We we stick together as long as you can be truthful and stick by my side and be yourself
05:49That's all I need and I'm with her because I feel safe with him I
05:54Feel safe. I feel myself. I don't have to pretend to be somebody. They're not as well
06:00Looking back my confidence was a girl now. It's more like I would say like an eight
06:05I'm not gonna say 10 because I'm having a sickness that I'm perfect. I'm not I'm a human being I had emotions
06:11I have feelings I have bad days, which is normal. Everyone has bad days. I feel so bad, but people not feeling
06:17Confident about themselves, you know people always say like hey you're confident. How do you feel so confident?
06:23I wish I had that I wish I had that and I always tell them you need to build it
06:27But I hope what people learn from this story is never give up on yourself
06:32Never give up on your passion your dreams your goals your life goals
06:36My visions and my goals for the future are just keep going push hard
06:41I will never stop doing what I love to do and it's just me being me me being myself
06:47surrounded by love
06:48Positivity you can't change the past
06:51But you can't change the future. What's gonna come after what's gonna come up with your neck?
06:55I have a message for the people that trying to bring me down
07:00You can keep trying I'm in my own place I'm in my
07:04Doing what I gotta do. You're not you're worried about what I do. You're worried about what I do
07:08Keep watching
07:17You
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