- 18 hours ago
One Day in My Body - Season 1 Episode 5 - TBA
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00:05In most cases, my allergies manifest as anaphylaxis.
00:09My throat closes, my airways shut down,
00:11and I basically start dying.
00:30My two layers of skin are very fragile and delicate,
00:33and I get open wounds and blisters from very minimal friction.
00:38Unfortunately, this condition is deadly and life-threatening.
00:47Hi, I'm the girl that can only eat two foods.
00:52My name is Caroline Cray.
00:54I'm 26 years old.
00:55If I'm super allergic to dogs, cats, fur, dander, dust, mold, pollen,
01:04certain fabrics, feathers,
01:06I have to filter all my water before I drink it.
01:10So pretty much I can't eat anything except for oats and hypoallergenic formula.
01:16It's just something I have to do to not go into anaphylaxis and to not die.
01:24I still live with my parents, and my house has definitely turned into my safety bubble.
01:38Morning. I'm in Boston. I'm going to be shooting with Caroline today.
01:45The clothes that we've had to bring with us have had to be vacuum packs.
01:50So, vacuum packs, clothes all the way from the UK.
01:54No allergies in there.
01:56Out of sort of 20 years or so of filming,
01:58I don't think I've ever had to think about this sort of stuff before.
02:03So, yeah, this is going to be an interesting experience,
02:04and we've got to start trying to stay safe for us and for Caroline.
02:15We're here. We've arrived.
02:17Look at all that snow.
02:23Just going to sanitise all of our kit.
02:30One for you.
02:36Let's go.
02:38I have to be super careful about what I'm exposing myself to
02:43in terms of my food and my environment.
02:46Hello.
02:47Hi.
02:52Should I clap?
02:53Yes, please.
02:55I work remotely, so I just have to walk downstairs.
02:59This house had to become a safe zone,
03:04and everybody coming into this house had to be safe.
03:07It's impacted my family.
03:09I felt bad. I felt like a burden.
03:12We had to remove all of the cleaning supplies
03:16or all of the shampoos and the soaps.
03:18We put filter systems in the house
03:20that cleans as the air goes through the vents.
03:23Her whole entire life changed.
03:25Her freedom was stripped from her.
03:28I was born totally healthy.
03:31I lived a very normal life.
03:35Caroline was always a little ball of energy.
03:38She was a little spitfire.
03:42She used to love food.
03:44She used to love making food.
03:45We found out she was allergic to a lot of things
03:48when she was little.
03:50And as I grew up, I outgrew a lot of allergies.
03:53For such a long time, she lived a fairly normal life.
03:57And then when she went to college,
04:00everything took a turn for the worse.
04:04After having an anaphylactic reaction
04:07when I was 18 years old to nuts,
04:10it progressed into mass cell activation syndrome.
04:13It spiraled into reacting to more and more things
04:16until I was in the ICU for a couple weeks.
04:28In the most severe cases, it manifests as anaphylaxis.
04:31My throat closes, my airways shut down,
04:34my blood pressure drops, and I basically start dying.
04:40When you are going into anaphylaxis,
04:44it's the worst feeling that I've ever experienced.
04:54She was near death, like, several times.
04:58It was like this pit in my stomach.
05:01And every phone call that came, you're like,
05:03please don't be dying.
05:04Like, it's that scary.
05:07You really think that.
05:08By the time you get there,
05:11she might not be breathing.
05:13It's horrifying.
05:18I just woke up from, like, a 20-minute nap.
05:21My lungs still feel tight.
05:24My throat feels sore, but...
05:27I feel like the reaction has passed, which is good.
05:30It breaks my heart.
05:31It's not fair.
05:33She has so much life to live,
05:36and she still does it.
05:40Managing my fear has been
05:42one of the hardest things up to this point.
05:45But I'm determined to not let
05:47my life-threatening allergies get in my way.
05:51I want to push myself out of my comfort zone
05:53and to take careful risks.
06:01I'm going out tonight with friends.
06:05When I'm in the house, it's a safe space.
06:08But if I leave the house,
06:10I'm always thinking about risk.
06:13Seconds matter for my reactions.
06:22Get as comfy as you need to.
06:24Oh, this is comfortable.
06:25My name is Ariana Covadrubias.
06:27I am 26 years old,
06:29and I am from Los Angeles, California.
06:32First, I wanted to clarify that I was not burned.
06:35I know my appearance may cause that assumption.
06:39I was born with a rare skin disorder
06:42called epidermolysis bullosa.
06:52My layers of skin are very fragile and delicate,
06:56and I get open wounds and blisters from very minimal friction
07:01and just daily activities.
07:05Every day that I wake up,
07:08I really don't know what my day is going to be like.
07:11Even sleeping can be very traumatic on my skin.
07:14So sometimes I'll wake up with my ear being stuck to my pillow
07:19because the whole skin will come off,
07:22or I'll get blisters on my shoulders from just like laying down.
07:31This is what it's like to live with epidermolysis bullosa.
07:35This is what it's like to live with open wounds in most of your body.
07:41This is my room.
07:43Definitely spend a lot of time in bed or just in my room.
07:47You'll find the good and the bad here.
07:50I could definitely own like a little drugstore.
07:52If you're in pain, if your head hurts,
07:54if you're having a little stomach ache,
07:56you let me know what you're feeling like today,
07:58and I'll do my best to offer you many,
08:01many little things that I got here.
08:05I use hundreds of layers and different types of bandages.
08:09Seeing as there's no treatment,
08:11bandages is the only way we can cope.
08:17So every other day I have to change the bandages of my body.
08:22Usually the process is from 4 to 6 hours,
08:26but then of course I have to do my hair,
08:28put on clothing, lotion,
08:30what the typical person does,
08:32but everything is very exhausting by that point.
08:43I was given one year to live.
08:46One year. Today I graduated from university.
08:50God wanted me here 21 years later to achieve this.
08:54Unreal.
08:57Growing up with EB was very, very difficult.
09:01The bullying from other kids,
09:03just the pain and not being able to do the things that other kids were doing.
09:08So I had to be at the doctors or stay resting at home.
09:12So it was definitely a very isolating.
09:16It was hard for me to gain friendships.
09:19But I think as I've grown up,
09:21my friends are like what keep me going and a big part of my support system.
09:27When I first met Ariana, I, it was like any other person.
09:31Like I just, she sat next to me and I sat next to her and we just started talking about
09:35anything we were going through at school.
09:38She just treated me like any other person.
09:40I mean, she never really asked like any questions or I didn't,
09:43I never really felt like she was staring at me or looking at me weird.
09:46So, um, yeah, we stayed in touch all these years.
09:50I'm always thinking about her, like how she is and stuff.
09:54I do get worried.
09:56Yeah. Especially after she told me she had sepsis.
10:03One of the reasons why EB is deadly is because many folks with this condition become septic.
10:13From something that started as a wound infection.
10:23It was scary because it was an infection in my bloodstream.
10:28Which is of course very severe and, uh, very serious.
10:33Because it could either go worse or get better in a matter of hours.
10:40She's in and out of the hospital.
10:43Uh, sometimes I'll notice she's MIA on social media.
10:46And that she might be quite literally fighting for her life.
10:50It's not just a surface level skin condition that it affects her organs
10:56and the way she eats and the way she does daily routine.
11:00But, there's no cure.
11:11I think social media has given Alize a way for him to express himself for them times that people don't
11:21understand him.
11:37You ready now?
11:39He he he he.
11:41He he he.
11:42Okay, I'm late.
11:43I had an allergic problem on Plain Plain Hill.
11:46And that's what you said.
11:48It's all sick to hide women.
11:56.
11:57Stupid type woman.
11:58There is a curulean on Plain Plain Hill.
12:02I have the...
12:03Because I know it wasn't really a notion that I had to talk to a little bit.
12:10And it's how I feel like I'm talking to a little bit.
12:13I...
12:13I don't mind myself, but I think this is where I am.
12:17I know it's very important to tell you it's so true.
12:22Because, you know, you have a certain thing, you want to look at this.
12:26And you're trying to walk out the door, you know what I'm saying.
12:29I got my first tattoo, but I was 19 years old.
12:34Instead, I like to Mama Mary to translate in 2019.
12:40We got good injuries.
12:44Our mother said that he died on the table and they revived him.
12:52And that the doctors had told her that there was a chance he wouldn't make it.
12:58But she decided to keep him going and keep him alive because she had faith in him.
13:08I look like a miracle baby because I got bleeding.
13:14I'm trying to tell you that I cannot bleed out of my mouth or no.
13:17.
13:26How you then vegetating me, they, um, did like a little surgery.
13:32So I put a hole on my cat helplessly.
13:38Like the hole in my headquarters recently said that Christie
13:43I give her to go like the hole in the net kinda needle in my house.
13:47This is actually right here.
13:50It is a good feeling.
14:01When it comes to beats, my tone is not like everybody else.
14:07No, it's up, actually not get the out, actually not with the up, or, you know, like that.
14:13Sometimes it's a little bit talented to beat, clearly.
14:17What's up, everybody? It's your team, Megan L.S.A.
14:22And I'm ready to talk to you.
14:24It's me again. And again. And again. And again.
14:28My tradition ends me daily.
14:31You know, I'm a little deaf, probably, so I made it to you, but...
14:35Grab some ice cream, for sure.
14:38Hey, girl.
14:39What part?
14:40Um, about...
14:43Oh, no, I'm a cup.
14:47I do have to repeat my sound more than once,
14:50because people haven't told you to understand what I'm saying.
14:56The ice cream sucking!
15:01I started to realize that I was most likely to get with one of my other children.
15:07When I was around six or seven, people fell back to me because of what I looked like.
15:37I think social media has given Alize a way for him to express himself.
15:46For them times that people don't understand him.
15:49Sorry, I talk and we post.
15:52That's the videos.
16:01Alize has kind of had to grow a thick skin.
16:13He had had an issue with, like, some bullying online.
16:18If I see, like, a major comment, you know, out really here,
16:22that kind of...
16:24activate me, you know, a little bit.
16:28I had to...
16:30break my face.
16:32I want to try to do public speaking.
16:37You know, on social media.
16:39I never really know that.
16:41I'm kind of like a side person.
16:44I want to...
16:46get out there and, like, you...
16:49my voice.
16:50My actual voice.
16:56Cut my face there.
16:58It's a little bit nerve-wracking.
17:00I want people to understand me.
17:03Hi!
17:04Hi!
17:05I'm Julia.
17:06Hi!
17:07Nice to meet you.
17:08Come on in!
17:09Have you ever given a speech in front of people before?
17:12Uh-huh, yeah.
17:13How are you feeling about it?
17:16I'm really nervous.
17:24I've been eating oats and formula three times a day
17:27for seven years.
17:30I get through four pounds of oats in a week,
17:34about six or seven cans of formula.
17:38And I have had enough.
17:41It makes me nervous to be around people who are eating
17:44something I'm allergic to.
17:45I could go into anaphylaxis at any point.
17:47We're gonna make some lunch.
17:49I'll probably make pancakes.
17:51So I have my own dedicated cabinet drawer.
17:54And this is my prep area.
17:55I keep it very clean.
17:57I wash my dishes separately.
17:59This is my separate dishware.
18:07While those cook, I'm gonna help you out.
18:10We're gonna make some for Ryan, too.
18:12Okay.
18:14He'll be here soon.
18:16Get in here.
18:16Oh, sorry.
18:20Caroline and I have been dating for about a year and a half now.
18:24When I know I'm gonna go see Caroline two days before,
18:27I just make sure I avoid all the foods that she's allergic to.
18:31I need to think about my meals and make sure that I don't eat three hours before then.
18:37I need to make sure that my clothes are completely clean and that I brush my teeth and that I
18:43mouthwash.
18:44When we were first starting our relationship, I definitely had a fear that something that I would bring in could
18:50cause a life-threatening reaction.
18:53I was extremely nervous that one kiss would send her to the hospital.
18:58Yes, he does have to follow some rules prior to kissing me.
19:03Hello.
19:04Hey.
19:05How are you?
19:05Good.
19:06How are you?
19:07Good to see you.
19:08Well, me and my mom made lunch.
19:10Ooh.
19:10How are you?
19:11Good to see you.
19:12This is exactly how it started when you guys met.
19:15Yeah, it is.
19:15It was the three of us.
19:16Yeah.
19:16I just remember being on the back of the ferry with Caroline.
19:19And I just had to drum up conversation with them.
19:23Yeah.
19:23And then I was like, this is Caroline.
19:28Carried on from there.
19:29Great wing woman.
19:30No, we'd have to wait three hours from the time that I take my last bite in order for us
19:34to kiss again.
19:36Well, hope it's good because that's three hours to kiss.
19:40Hope it's worth it.
19:43Usually Ryan just eats my food if he wants to kiss me right after.
19:48Ryan, that is so sweet.
19:49It really is.
19:52It means the world that Ryan takes all these precautions and is so careful and cares so much about my
19:59health.
20:07So I've bought a camper van.
20:09I call her Hippo.
20:11The idea is that this is my safe bubble.
20:13You can go to places I haven't been before.
20:15So I stripped it down bare, completely cleaned it, and made sure that there was nothing that could trigger me.
20:21The rules are going to be strict for the van.
20:23Same as the house.
20:25Nobody comes in here unless they have clean clothes, they freshly showered, and they haven't eaten any of my airborne
20:31allergens.
20:34This is opening my world up so much, and I'm really excited for it.
20:38I think that fear can isolate me, but I refuse to let my allergies stop me from living a full
20:48and happy life.
20:58So I'm grabbing lunch with my friends today, but that means I need to bring my own food.
21:04So we're going to make oat waffles with formula syrup.
21:07Part of tackling the fear is also preparation.
21:12Perfect.
21:14I mean, that looks pretty good.
21:18Does the camera crew want some?
21:21All right, let's try.
21:22Okay, great.
21:25Mmm.
21:26Are you ready to have the most beige meal of your entire life?
21:38Oh, it's pretty dense, isn't it?
21:41Okay.
21:44It's got a nice crunchy outside, right?
21:48Mmm.
21:49Yeah.
21:51It's kind of more savory.
21:53Yeah.
21:53It's more savory than I thought.
21:55That's probably because I added too much salt.
21:57Salt?
21:57Yeah.
21:58I don't have anything else to flavor.
22:00I should imagine that would push everything down.
22:05We are packing this up.
22:07I'm going to bring a disposable fork.
22:10There's a risk with using the communal utensils at the restaurant.
22:13It's just not safe and I'm not willing to risk it.
22:16I guess the biggest fear is to be back in the ICU.
22:19I'm always living in fear of anaphylaxis, of simply not being able to breathe.
22:24You are actively dying.
22:28Everyone says, oh, love will come when you least expect it until you have a body that makes you feel
22:39like you're running out of time.
22:47I wish I could go out more with friends.
22:50I tried to push the pain for the pleasure.
22:53Got to live.
22:54Yeah, I got to live and at the end of the day I'm still 26.
22:58I'm still a woman.
22:59I still like to go out and just like enjoy life in general just like anyone else.
23:05I am very protective over her.
23:07So whenever I'm with her, I just tell everybody, excuse me, excuse me.
23:10They don't always see her.
23:12They're not always paying attention.
23:14I'm currently getting ready for a quick brunch with some of my friends and I'm just finishing some of my
23:20makeup routine.
23:22Obviously, I still have EB on my face.
23:25I have it everywhere.
23:26But despite that, I'm able to use all types of beauty products and I'm very grateful for that.
23:33Usually to get ready whenever I need to go out.
23:37It's a very tiring process.
23:47Some of my fears or worries when I go out would be just being bumped into like the risk of
23:55blisters or getting open wounds.
23:57And people don't know that they may be around someone that's very fragile.
24:01So it's something to worry about when I go out.
24:04Let me help you with this.
24:06We should all get like a drink or something.
24:08Yeah, you want to change for the food?
24:11Well, it's hot. We need to cool off.
24:21There was a summer like three summers ago and we were supposed to hang out and she cancelled because she
24:28got sepsis.
24:35Because of EB, we get blisters internally and which results to the esophagus become very narrow and closed.
24:44And so they do a procedure that's called esophageal dilation.
24:52Unfortunately, it didn't go as planned.
24:55They did some blood work and they issued that I had sepsis.
24:59I was in the ICU.
25:01It was a very scary time for me and my family.
25:13Hey!
25:15Hey!
25:16Hey, bestie!
25:17Oh my gosh! You look great!
25:20How are you?
25:21You look so beautiful.
25:22Good. How are you?
25:22Good. How are you?
25:22You look so beautiful!
25:23How are you?
25:23That red on you.
25:24Hey!
25:25Hey!
25:26Hey!
25:26Hey!
25:27And air hug.
25:28There you go.
25:30Friendships is something that can be very difficult with EB.
25:35Sometimes the individual may not be comfortable with the idea of being around someone that's so fragile.
25:41And yes, I have a condition, but at the end of the day, I'm still a woman.
25:44I still, like, enjoy dating, talking to men.
25:47No, but I miss it. Yeah, of course.
25:49Yeah, the social life.
25:50Because now it's like, what? I'm just at home.
25:52Just, like, talking to people.
25:54The boys, I can't lie.
25:55The what?
25:56The boys.
25:57But, yeah.
25:57Ooh, boys, you say?
25:59So, what's going on with that right now?
26:02Nothing serious.
26:03I think at the beginning, it goes all, like, cool and whatever.
26:06But then I think once they, like, realize how, like, serious my lifestyle can be, they're like,
26:13like, you know, which I get it.
26:15Like, even for myself, like, I want out.
26:18I'm like, where's the quit button?
26:20Yeah.
26:21Oh, that's for me.
26:22Ooh.
26:24Toast to Ari.
26:26Thanks for making it out today.
26:27Aw.
26:28Thanks for being friends with us.
26:30Aw.
26:30Thank you for being such a great friend.
26:32Period.
26:38The activities that I really love can be frustrating.
26:41Coming to, like, restaurants and stuff, sometimes, like, too hard or too painful or something.
26:46Like, I never know, you know, like, what's impacting me.
26:48Like, my body tends to often control my life and control what I do and don't do.
27:18So you are here to practice your speech and gain some techniques.
27:23And some tools and hopefully feel a little bit more confident about projecting and breath
27:30control and articulation.
27:33Sound like a good, good plan?
27:34Uh-uh.
27:35Accurately.
27:40We're going to go into some breathing techniques.
27:43So we're going to breathe our shoulders up to our ears and then roll them back and drop
27:48them down on the exhale.
27:50Beautiful.
27:52Good.
27:52How does that feel?
27:54Yeah.
27:56Good.
27:57So we're going to connect our breath to sound.
28:01Just kind of like exercising the kind of mechanisms that are responsible for articulation.
28:05So let's take a deep breath in.
28:09Me.
28:12Good.
28:13My turn.
28:14May.
28:19Beautiful.
28:20What I sometimes like to do when I perform is just say a little mantra.
28:24So I breathe in and I think I am calm and I breathe out and I say I am confident.
28:42Yeah.
28:44Yeah.
28:45Good.
28:46So simple but it's so effective.
28:48Would you be up for standing up and trying to speak something out loud?
28:55Yeah.
28:56Yeah.
28:56Just like practice.
28:57So we're not rushing.
28:59We're kind of taking our time.
29:00We're remembering those deep breaths.
29:03Mm-hmm.
29:04Yeah.
29:08Just like that.
29:10Yeah.
29:10It gives me some really good advice about, you know, taking my time, blowing down, um,
29:17where I cough and pain.
29:28Yeah.
29:29It's been a pleasure.
29:30Sure.
29:32Oh, I'm feeling right.
29:34Yeah.
29:35We'll walk this way.
29:37Yeah.
29:38He spoke today about facing fears.
29:40So I believe if he takes these risks and he's just going to continue to gain confidence
29:45and it's a beautiful thing.
30:00I know.
30:03He's doing so much.
30:07I know.
30:07I know.
30:07I know.
30:08I know.
30:11I know.
30:14I know.
30:16Hi.
30:17My name.
30:18I know.
30:19I know.
30:23You were 45.
30:25How are you?
30:32I've worked really hard on expanding my life and doing more things.
30:37Fear could have kept me as the girl in the bubble.
30:41So if I leave the house, we have my big fat medical bag.
30:45And if you start going into anaphylaxis, take one of these EpiPens and stab yourself
30:51in the thigh because it opens up your airways and it gives you at least 15 minutes of life.
30:56And I carry four. It gives me an hour to get to the hospital.
31:05I'm going out to lunch with my friends.
31:08It's important for me to push myself to do things a little bit out of my comfort zone,
31:12even if it is a bit of a risk to my life.
31:15Hi guys, how are you?
31:17Okay, so looking at the menu, you guys know the drill.
31:20Yes, ma'am.
31:21So take a look, let me know what you guys want to get and then I can sign off on
31:25it.
31:25There's always fear and anxiety when I go into a restaurant.
31:29I can't be sure that I won't react.
31:50But for the last few days, I'll be looking at something on each of you.
32:13I've never seen Alizé do a speech before like we did today.
32:17I could tell he was a little nervous, but he gathered himself.
32:19He was able to compose himself and really come together.
32:38I am so proud of Alizé and seeing how confident he is and just being more in tune with himself.
32:49To my nephew, I'm happy that you all looked up to me.
32:54You make me cry every day.
32:57Can I get this?
33:00My role model, my hero, and my number one amazing favorite person to my life.
33:09I'm not drunk. I'm not dead.
33:15Can you make me cry?
33:19I think he did a wonderful job of speaking from the heart to everybody and to me.
33:28So I'm very proud of him.
33:33Alizé's speech was heartwarming.
33:35It's nice to know how all of us have played a part in his life in different ways.
33:41I feel late.
33:43I feel like the tools I met Julia helped me with.
33:49It really helped.
33:51It's hard to know if you're not to overcome your skills or so.
33:58I want to overcome your skills.
34:00Right back again.
34:02You don't want to do it again, through again.
34:05Turn it down.
34:12Is it weird to have to like check the food that you're getting when we're together eating?
34:17I feel like we've never had an issue where you're like, only do you really want fish?
34:21It's because I'm only friends with people who don't eat my allergies.
34:25Exactly.
34:25Yeah, exactly.
34:25Yeah.
34:27Everybody that I see has to put in effort and forethought before they see me.
34:31And I know that's like an emotional tax, you know?
34:35That used to really upset me.
34:37I used to have been to a restaurant.
34:38There's a dangerous aspect.
34:40But obviously, you know, everyone's careful and, you know, we're aware of it.
34:43It's just like having a normal friend.
34:45And I feel like I don't think about it that much because we've been friends for so long.
34:48Awesome.
34:49What's that, guys?
34:50Any questions?
34:52Um, yeah, we were thinking the potato gnocchi.
34:55Okay.
34:55So we were doing four of them?
34:57Uh, no.
34:57I have a ton of allergies.
34:59No worries.
34:59We get it.
35:00Do you guys want bread from the table or?
35:02I think we'll skip it because they'll have to check all the ingredients for that.
35:06Yeah.
35:06If that's right.
35:09She has her challenges.
35:10There's a little bit more to consider.
35:12But she has such a great time.
35:13And honestly, her condition is and her allergies are such a small part of who she is.
35:20You guys have never, ever made me feel like it's been an issue.
35:23I think I just personally, like, assume.
35:26I get why you would feel like it's been a transition, but it's really not.
35:30Yeah.
35:30Like, I've never even think twice about it.
35:32Yeah.
35:32That's really, really sweet.
35:33Very lucky to have you guys.
35:36That's a leaflet soup.
35:37Oh, thank you.
35:39Oh, yum.
35:40That smells so good.
35:40That smells really good.
35:42Wait, so what's on the menu for you today?
35:44We have oat waffles.
35:46And then I have the formula, powder.
35:49And I'll add a little bit of water and then I'll make it like a syrup, if that makes sense.
35:52Ooh, yummy.
35:53Caroline has the best attitude out of anyone I've ever met.
35:57I know she struggles internally with it a lot, but she doesn't let that show.
36:02So I think it's important that I include myself in those spaces, even if I'm not participating in eating or
36:08drinking.
36:09And those little moments of pain are overshadowed completely by the, the laughs and the memories and, you know, the
36:18good times.
36:20Right.
36:20The goal is to get off oats and formula because I don't want to be eating that for the rest
36:27of my life.
36:28I am hoping to try lots of foods and I am so excited to see what works.
36:45Thank you for being such a great friend.
36:49Oh, thank you.
36:51You know, in recent years, I've always tried my best to like, you know, I guess, share awareness or like,
36:57you know, how to improve your self-esteem or self-confidence.
37:01And so I want to do it for the younger generation because I was once that person too.
37:11You guys, I'll never not hate my body.
37:14And if I had the ideal body, not the lead out of most of my body parts, I could, these
37:22outfits would be bomb.
37:25Cherish your body.
37:27Cherish your body.
37:27Trust me.
37:27Cherish it.
37:28Try to incorporate more like photo shoots where I like show like my scars and my medical devices and just
37:36how I look in hopes that like people accept themselves and a lot of healthy people take things for granted.
37:45I think having EB has taught me that the smallest things are what mostly matter in life.
37:53Yeah, I just really appreciate you guys always supporting me.
37:56You know, I always grew up pretty isolated and I never really envisioned having friends.
38:01Oh my God, don't cry.
38:02I'm sorry.
38:04I'm getting teary.
38:04No, we're not crying.
38:05I'm sorry.
38:06I'm excited for like more memories.
38:09Ten more years of friendship.
38:10I know, ten more years.
38:23I would say that my story is, I guess, an example that you are able to conquer a lot of
38:31things even when challenges are put against you constantly.
38:35All right, and your girl is ready.
38:37All right, now wish me luck.
38:39It's kind of hard to see myself as a fighter sometimes, but I know I can be or that I
38:46am.
38:57It's my friend Alexander.
38:59Everybody keep asking me, but what's wrong with his mouth and all that?
39:01Alize is going to talk to y'all about it.
39:08Thanks a lot for Alize, y'all.
39:11Hey, how y'all doing?
39:14I just want to come up here right quick and say that, you know, bullying is not okay.
39:19You know, it do hurt.
39:21And when you say why, I know you're in a traffic bully a lot.
39:26You know, you are your own person and you have to show people that you won't give up.
39:49So now that I've been stable for several years and I haven't been in the hospital, me and my doctors
39:54have decided that it's a good time for me to expand my diet.
39:57So I am food trailing carrots.
40:01I've been craving them and I think that's a good sign.
40:05A little tiny piece.
40:11And now I wait 5, 10, 15 minutes to see if there's a reaction.
40:18It is a very long process.
40:20It's very tedious and it takes a lot of patience.
40:24If I have a pre-anaphylactic symptom, we have to stop the food trial.
40:30It's been about 10 minutes and I feel perfectly fine.
40:34So that's good.
40:35I'm afraid to hope for too much, but I really, really hope that we can get this under control and
40:39she can start to live a normal life.
40:41Yeah.
40:42It's been about an hour and I feel good.
40:45So, yay!
40:53Cooked to perfection.
40:57It has gone very well.
41:01I'm just like honestly savoring the flavor and thinking about how far I've come.
41:06It's taken almost a year to get to these chunks, but I think it's definitely been worth it.
41:15It's going to be so rewarding when I can finally fully incorporate it into my diet.
41:19I'm so excited to see what else works.
41:21I have so much hope for where I'm going health-wise.
41:26Hope is the reason why I kept dating.
41:30Hope is the reason why I finished school.
41:32I think hope and optimism is some of my superpowers.
41:37Bye!
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