- 14 hours ago
One Day In My Body Season 1 Episode 5
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Short filmTranscript
00:00Blisters of skin are very fragile and delicate, and I get open wounds and blisters from very minimal friction.
00:07Unfortunately, this condition is deadly and life-threatening.
00:15Hi, I'm the girl that can only eat two foods.
00:20My name is Caroline Cray. I'm 26 years old.
00:23I'm super allergic to dogs, cats, fur, dander, dust, mold, pollen, certain fabrics, feathers.
00:34I have to filter all my water before I drink it.
00:38So pretty much I can't eat anything except for oats and hypoallergenic formula.
00:44It's just something I have to do to not go into anaphylaxis and to not die.
00:51I still live with my parents, and my house has definitely turned into my safety bubble.
01:04Morning. I'm in Boston. I'm going to be shooting with Caroline today.
01:11The clothes that we've had to bring with us have had to be vacuum packed.
01:16So vacuum packed clothes all the way from the UK.
01:19No allergens in there.
01:22Out of sort of 20 years or so of filming, I don't think I've ever had to think about this
01:27sort of stuff before.
01:28So yeah, this is going to be an interesting experience, and we've got to start trying to stay safe for
01:33us and for Caroline.
01:39We're here. We've arrived. Look at all that snow.
01:48Just going to sanitize all of our kit.
01:54One for you. One for you.
02:00Let's go.
02:01I have to be super careful about what I'm exposing myself to in terms of my food and my environment.
02:09Hello.
02:10Hi.
02:14Should I clap?
02:16Yes, please.
02:17I work remotely, so I just have to walk downstairs.
02:22This house had to become a safe zone, and everybody coming into this house had to be safe.
02:30It's impacted my family. I felt bad. I felt like a burden.
02:34We had to remove all of the cleaning supplies or all of the shampoos or the soaps.
02:39We put filter systems in the house that cleans as the air goes through the vents.
02:44Her whole entire life changed. Her freedom was stripped from her.
02:49I was born totally healthy. I lived a very normal life.
02:55Caroline was always a little ball of energy. She was a little spitfire.
03:03She used to love food. She used to love making food.
03:06We found out she was allergic to a lot of things when she was little.
03:10And as I grew up, I outgrew a lot of allergies.
03:13For such a long time, she lived a fairly normal life.
03:17And then when she went to college, everything took a turn for the worse.
03:23After having an anaphylactic reaction when I was 18 years old to nuts, it progressed into mass selectivation syndrome.
03:32It spiraled into reacting to more and more things until I was in the ICU for a couple weeks.
03:46In the most severe cases, it manifests as anaphylaxis.
03:50My throat closes, my airways shut down, my blood pressure drops, and I basically start dying.
03:58When you are going into anaphylaxis, it's the worst feeling that I've ever experienced.
04:11She was near death, like, several times.
04:15It was like this pit in my stomach.
04:18And every phone call that came, you're like, please don't be dying.
04:21Like, it's that scary.
04:24You really think that. By the time you get there, she might not be breathing.
04:29It's horrifying.
04:34I just woke up from, like, a 20-minute nap.
04:36My lungs still feel tight.
04:39My throat feels sore, but...
04:43I feel like the reaction has passed, which is good.
04:45It breaks my heart.
04:47It's not fair.
04:49She has so much life to live, and she still does it.
04:55Managing my fear has been one of the hardest things up to this point.
05:00But I'm determined to not let my life-threatening allergies get in my way.
05:05I want to push myself out of my comfort zone and to take careful risks.
05:15I'm going out tonight with friends.
05:18When I'm in the house, it's a safe space.
05:21But if I leave the house, I'm always thinking about risk.
05:26Seconds matter for my reactions.
05:44First, I wanted to clarify that I was not burned.
05:47I know my appearance may cause that assumption.
05:51I was born with a rare skin disorder called epidermolysis bullosa.
06:03My layers of skin are very fragile and delicate, and I get open wounds and blisters from very minimal friction
06:12and just daily activities.
06:16Every day that I wake up, I really don't know what my day is going to be like.
06:21Even sleeping can be very traumatic on my skin.
06:25So sometimes I'll wake up with my ear being stuck to my pillow because the whole skin will come off.
06:32Or I'll get blisters on my shoulders from just like laying down.
06:41This is what it's like to live with epidermolysis bullosa.
06:44This is what it's like to live with open wounds in most of your body.
06:50This is my room.
06:52Definitely spend a lot of time in bed or just in my room.
06:56You'll find the good and the bad here.
06:58I could definitely own like a little drugstore.
07:01If you're in pain, if your head hurts, if you're having a little stomach ache.
07:04You let me know what you're feeling like today.
07:06And I'll do my best to offer you many, many little things that I got here.
07:13I use hundreds of layers and different types of bandages.
07:17Seeing as there's no treatment, bandages is the only way we can cope.
07:25So every other day I have to change the bandages of my body.
07:29Usually the process is from 4 to 6 hours.
07:32But then of course I have to do my hair, put on clothing, lotion.
07:37What the typical person does.
07:39But everything is very exhausting by that point.
07:49I was given one year to live.
07:52One year.
07:53Today I graduated from university.
07:56God wanted me here 21 years later to achieve this.
08:00Unreal.
08:03Growing up with EB was very, very difficult.
08:06The bullying from other kids.
08:09Just the pain and not being able to do the things that other kids were doing.
08:13So I had to be at the doctors or stay resting at home.
08:17So it was definitely very isolating.
08:20It was hard for me to gain friendships.
08:24But I think as of growing up, my friends are like what keep me going
08:27and a big part of my support system.
08:30When I first met Ariana, I, it was like any other person.
08:34Like I just, she sat next to me and I sat next to her.
08:36And we just started talking about anything we were going through at school.
08:41She just treated me like any other person.
08:44I mean, she never really asked like any questions or I didn't,
08:46I never really felt like she was staring at me or looking at me weird.
08:50So, um, yeah, we stayed in touch on all these years.
08:53I'm always thinking about her, like how she is and stuff.
08:57I do get worried.
08:59Yeah, especially after she told me she had sepsis.
09:05One of the reasons why EB is deadly is because many folks with this condition become septic.
09:15From something that started as a wound infection.
09:24It was scary because it was an infection in my bloodstream, which is, of course, very severe and very serious.
09:33Because it could either go worse or get better in a matter of hours.
09:41She's in and out of the hospital.
09:43Uh, sometimes I'll notice she's MIA on social media and that she might be quite literally fighting for her life.
09:50It's not just a surface level skin condition that it affects her organs and the way she eats and the
09:58way she does daily routine.
09:59But, there's no cure.
10:10I think social media has given Alize a way for him to express himself for them times that people don't
10:20understand him.
10:35You ready now?
10:39Huh, apparently.
10:40I had an Alize a problem on 24 years old.
10:44And that's what you see.
10:45It's called Sit, Dear, Hide, Woman.
10:53Sit, Dear, Woman.
10:55It is, um, a tumor on that place in here.
10:59I had this big idea of the week where there was no cure to affect her living with it.
11:06It's how I feel myself in a movie where I normally myself, uh, this is amazing.
11:12You know, it's very important to tell you it's so cute.
11:17Because, you know, you have a 17.
11:20You want to learn the best any time that you walk out the door in the state.
11:25I've got my first tattoo, but I was 19 years old.
11:29And so, I like to Mama Mary to calculate in 319.
11:35We got the angel leads.
11:39Our mother said that he died on the table and they revived him.
11:46Um, and that the doctors had told her that there was a chance he wouldn't make it.
11:52But she decided to keep him going and keep him alive because she had faith in him.
12:02I look like a miracle baby because I got bleeding.
12:07Um, truly okay, cause I cannot bleed out of my mouth or no.
12:19As they resuscitate me, they, um, did, like, a little surgery.
12:24They, like, put a hole on my, in my neck and needed to bleed.
12:30So, like, the hole is basically a sensible treatment that they did to me when I was bleeding.
12:38This is actually right here.
12:41It is a dark alien.
12:56It Familie.
12:58It was absolutely terrible.
12:59It's a dark alien.
12:59Yeah, it was really the back there you become?
13:02Yeah, it's really the back of it actually.
13:03So, I know the back of my trouble, like, all the fights for your Trump Media Studies.
13:07Because, that was nothing.
13:09Iบ北 because I was driving learning.
13:11Lucas I was trying to spend a bit of hours doing something,
13:12so, I'm sure, we've got some places.
13:12And I was just kidding.
13:13I'm just kidding, I'll be opposed to help today,
13:14It's me again, and again, and again, and again.
13:17My tradition affect me daily.
13:20No, I'm a little bit, probably.
13:22So, I ain't made it too different.
13:24Grab some ice cream, for sure.
13:27Yeah.
13:29What part of it?
13:30Um, I know, sorry.
13:32Oh, no, what's up?
13:35I do have to repeat my sound with your words
13:38because people are having it
13:40and probably can't even understand what I'm saying.
13:43Yeah, the ice cream's so good!
13:49I feel like I was most likely different
13:53from other children.
13:55When I was around six or seven,
14:00people felt bad to me because of what I looked like.
14:04You know, it always took my feelings
14:07when people call me a little kid,
14:10they inflate me, you know,
14:11how they're laughing at me or scared of me,
14:15like I'm a monster or something.
14:24I think social media has given Alize a way
14:28for him to express himself
14:31for them times that people don't understand him.
14:35Sorry, I talk to you, we post.
14:38Look at the videos.
14:47Alize has kind of had to grow a thick skin.
14:57He had had an issue with, like, some bullying online.
15:02If I see, like, a major comment, you know,
15:05how you were here,
15:06they just kind of aggravate me, you know, a little bit.
15:12I had to break my feelings.
15:16I want to apply to do public thinking,
15:20you know, on social media.
15:22I've never really done that.
15:24I'm kind of like a shy person.
15:27But I want to get out there
15:31and, like, use my voice, my actual voice.
15:40I want people to understand me.
15:45Hi.
15:46Hi.
15:47I'm Julia.
15:48Hi.
15:49Nice to meet you.
15:50Come on in.
15:51Have you ever given a speech
15:53in front of people before?
15:54Uh-huh.
15:55Yeah.
15:55How are you feeling about it?
15:58I'm really nervous.
16:06I've been eating oats and formula three times a day
16:09for seven years.
16:11I get through four pounds of oats in a week,
16:15about six or seven cans of formula.
16:19And I have had enough.
16:21It makes me nervous to be around people
16:23who are eating something I'm allergic to.
16:25I could go into anaphylaxis at any point.
16:27We're going to make some lunch.
16:29I'll probably make pancakes.
16:31So I have my own dedicated cabinet drawer.
16:34And this is my prep area.
16:35I keep it very clean.
16:37I wash my dishes separately.
16:39This is my separate dishware.
16:46While those cook, I'm going to help you out.
16:49We're going to make some for Ryan, too.
16:51Okay.
16:53He'll be here soon.
16:54Damn.
16:55Oh, sorry.
16:59Caroline and I have been dating
17:00for about a year and a half now.
17:02When I know I'm going to go see Caroline two days before,
17:05I just make sure I avoid all the foods
17:07that she's allergic to.
17:10I need to think about my meals
17:11and make sure that I don't eat three hours before then.
17:15I need to make sure that my clothes are completely clean
17:17and that I brush my teeth and that I mouthwash.
17:21When we were first starting our relationship,
17:24I definitely had a fear that something that I would bring in
17:27could cause a life-threatening reaction.
17:30I was extremely nervous that one kiss
17:33would send her to the hospital.
17:35Yes, he does have to follow some rules prior to kissing me.
17:40Hello.
17:40Hey.
17:41How are you?
17:42Good.
17:42How are you?
17:43Good to see you.
17:44Well, me and my mom made lunch.
17:46How are you?
17:47Good to see you.
17:48This is exactly how it started when you guys met.
17:51It was the three of us.
17:52I just remember being on the back of the ferry with Caroline
17:55and I just had to drum up conversation with them.
17:59And then I was like, this is Caroline.
18:03Carried on from there.
18:05Great wing woman.
18:06No, we'd have to wait three hours from the time
18:08that I take my last bite in order for us to kiss again.
18:11Well, hope it's good because that's three hours to kiss.
18:14Oh, it's worth it.
18:18Usually Ryan just eats my food if he wants to kiss me right after.
18:23Ryan, that is so sweet.
18:24It really is.
18:26It means the world that Ryan takes all these precautions
18:29and is so careful and cares so much about my health.
18:40So I've bought a camper van.
18:42I call her Hippo.
18:44The idea is that this is my safe bubble.
18:46You can go to places I haven't been before.
18:48So I stripped it down bare, completely cleaned it,
18:51and made sure that there was nothing that could trigger me.
18:54The rules are going to be strict for the van.
18:56Same as the house.
18:57Nobody comes in here unless they have clean clothes,
19:01they've freshly showered,
19:02and they haven't eaten any of my airborne allergens.
19:06This is opening my world up so much
19:08and I'm really excited for it.
19:11I think that fear can isolate me,
19:14but I refuse to let my allergies stop me from living a full and happy life.
19:29So I'm grabbing lunch with my friends today, but that means I need to bring my own food.
19:35So we're going to make oat waffles with formula syrup.
19:38Part of tackling the fear is also preparation.
19:43Perfect.
19:44I mean, that looks pretty good.
19:48Does the camera crew want some?
19:50Alright, let's try.
19:52Okay, great.
19:55Mmm.
19:56Are you ready to have the most beige meal of your entire life?
20:08Wow, it's pretty dense, isn't it?
20:10Okay.
20:13It's got a nice crunchy outside, right?
20:17Mmm.
20:18Yeah.
20:19It's kind of more savoury.
20:21Yeah.
20:22It's more savoury than I thought.
20:24That's probably because I added too much salt.
20:25Yeah.
20:26I don't have anything else to flavour.
20:28I actually imagine that would push everything down.
20:33We are packing this up.
20:35I'm going to bring a disposable fork.
20:38There's a risk with using the communal utensils at the restaurant.
20:41It's just not safe and I'm not willing to risk it.
20:43I guess the biggest fear is to be back in the ICU.
20:46I'm always living in fear of anaphylaxis,
20:49of simply not being able to breathe.
20:51You are actively dying.
20:55Everyone says,
20:56Oh, love will come when you least expect it.
21:02Until...
21:02You have a body that makes you feel like you're running out of time.
21:13I wish I could go out more with friends.
21:16I tried to push the pain for the pleasure.
21:19You've got to live.
21:20Yeah, I got to live and at the end of the day, I'm still 26.
21:24I'm still a woman.
21:25I still like to go out and just like enjoy life in general just like anyone else.
21:30I am very protective over her.
21:32So whenever I'm with her, I just tell everybody,
21:34excuse me, excuse me.
21:35They don't always see her.
21:36They're not always paying attention.
21:39I'm currently getting ready for a quick brunch with some of my friends
21:42and I'm just finishing some of my makeup routine.
21:46Obviously, I still have ED on my face.
21:49I have it everywhere.
21:50But despite that, I'm able to use all types of beauty products and I'm very grateful for that.
21:57Usually to get ready whenever I need to go out, it's a very tiring process.
22:08Can I just go?
22:10Yeah.
22:10Some of my fears or worries when I go out would be just being bumped into like the risk of
22:18blisters or getting open wounds.
22:20And people don't know that they may be around someone that's very fragile.
22:24So it's something to worry about when I go out.
22:26Let me help you with it.
22:28We should all get like a drink or something.
22:30Yeah, you want to drink from the food?
22:33Well, it's hot when you're cold off.
22:43There was a summer, like three summers ago,
22:45and we were supposed to hang out and she canceled because she got sepsis.
22:56Because of ED, we get blisters internally and which results to the esophagus becoming very narrow and closed.
23:04And so they do a procedure that's called esophageal dilation.
23:12Unfortunately, it didn't go as planned.
23:15They did some blood work and they showed that I had sepsis.
23:19I was in the ICU.
23:21It was a very scary time for me and my family.
23:32Hey.
23:34Hi.
23:34Hey, bestie.
23:36Oh my gosh.
23:37You look great.
23:39Good.
23:40You look so beautiful.
23:41Is that right on you?
23:43Hey.
23:44Hey.
23:44Hey.
23:46There you go.
23:48Friendships is something that can be very difficult with ED.
23:53Sometimes the individual may not be comfortable with the idea of being around someone that's so fragile.
23:59And yes, I have a condition.
23:59But at the end of the day, I'm still a woman.
24:01I still like enjoy dating, talking to men.
24:04No, but I miss it.
24:05Yeah, of course.
24:06Yeah.
24:06The social life.
24:07Because now it's like what?
24:09I'm just at home.
24:10Just like talking to people.
24:11The boys, I can't lie.
24:12The what?
24:13The boys.
24:14But yeah.
24:14Oh, boys you say?
24:16But what's going on with that right now?
24:18Nothing serious.
24:19I think at the beginning, it goes all like cool and whatever.
24:22But then I think once they like realize how like serious my lifestyle can be, they're
24:28like, you know, which I get it.
24:31Like, even for myself, like, I want out.
24:34I'm like, where's the quit button?
24:36Yeah.
24:36Yeah.
24:37Oh, that's for me.
24:37Ooh.
24:39Toast to Ari.
24:41Thanks for making it out today.
24:43And thanks for being friends with us.
24:45Thank you for being such a great friend.
24:52The activities that I really love can be frustrating.
24:56Coming to like restaurants and stuff, sometimes like too hard or too painful or something.
25:00Like I never know, you know, like what impact me.
25:03My body tends to often control my life and control what I do and don't do.
25:32So you are here to practice your speech and gain some techniques and some tools and hopefully
25:38feel a little bit more confident about projecting and breath control and articulation.
25:45Sound like a good plan?
25:47Good.
25:47Good.
25:47Absolutely.
25:52We're going to go into some breathing techniques.
25:55So we're going to breathe our shoulders up to our ears and then roll them back and drop them down
26:00on the exhale.
26:02Beautiful.
26:03Good.
26:04How does that feel?
26:05Yeah, that's good.
26:07Yeah.
26:07Good.
26:08So we're going to connect our breath to sound.
26:12Just kind of like exercising the kind of mechanisms that are responsible for articulation.
26:16So let's take a deep breath in.
26:20Me.
26:22Me.
26:23Good.
26:23My turn.
26:25May.
26:28May.
26:29Beautiful.
26:31What I sometimes like to do when I perform is just say a little mantra.
26:34So I breathe in and I think I am calm and I breathe out and I say I am confident.
26:43I am calm.
26:48I am calm.
26:51Yeah.
26:52I am calm.
26:54Yeah.
26:54Good.
26:55So simple, but it's so effective.
26:57Would you be up for standing up and trying to speak something out loud?
27:03Yeah.
27:04Just like practice.
27:05So we're not rushing.
27:07We're kind of taking our time.
27:08We're remembering those deep breaths.
27:11Mm-hmm.
27:11Mm-hmm.
27:12Just like that.
27:15Yeah.
27:16Just like that.
27:17It gives me some really good advice about, you know, taking my time, blowing down, when
27:24I cough and fade.
27:35Yeah.
27:36It's been a pleasure.
27:37Sure.
27:39Oh.
27:40I'm falling out.
27:40Yeah.
27:41We'll walk this way.
27:43Yeah.
27:44He spoke today about facing fears.
27:47So I believe if he takes these risks and he's just going to continue to gain confidence
27:51and it's a beautiful thing.
28:04I see.
28:05Okay.
28:06Yeah.
28:07I'll see you.
28:07Oh my god.
28:08OK.
28:13He's not good at all.
28:14I think he's not good at all.
28:14I think he's not bad.
28:15I'm probably too bad.
28:19All the other.
28:21Oh my god.
28:22Oh.
28:36I've worked really hard on expanding my life and doing more things.
28:40Fear could have kept me as the girl in the bubble.
28:44So if I leave the house, we have my big fat medical bag.
28:48And if you start going into anaphylaxis, take one of these EpiPens and stab yourself in
28:55the thigh because it opens up your airways and it gives you at least 15 minutes of life.
28:59And I carry four.
29:00It gives me an hour to get to the hospital.
29:07I'm going out to lunch with my friends.
29:11It's important for me to push myself to do things a little bit out of my comfort zone,
29:14even if it is a bit of a risk to my life.
29:17Hi guys, how are you?
29:19Okay, so looking at the menu, you guys know the drill.
29:21Yes, ma'am.
29:22So take a look.
29:23Let me know what you guys want to get and then I can sign off on it.
29:27There's always fear and anxiety when I go into a restaurant.
29:30I can't be sure that I won't react.
29:43I can't be sure that I can't be in a restaurant.
29:57Thank you so much.
30:12I've never seen Alizé do a speech before like we did today.
30:16I could tell he was a little nervous, but he gathered himself,
30:18he was able to compose himself, and really come together.
30:36I am so proud of Alizé, and seeing how confident he is,
30:40and just being more in tune with himself.
30:46I am happy that y'all looked up to me.
30:51You might be a clown every day.
30:54Can I sit first?
30:56My role model.
30:59My hero.
31:01And my number one amazing favorite person to my life.
31:06I'm not good, I'm not good.
31:11Can you cry?
31:15I think he did a wonderful job of speaking from the heart to everybody and to me.
31:23So I'm very proud of him.
31:28Alizé's speech was heartwarming.
31:30It's nice to know how all of us have played a part in his life in different ways.
31:36I feel late.
31:38I feel like the tools that I met Julia helped me with.
31:44It really helped.
31:46I tried to nervousness, no matter what I look from your skills.
31:51Or sometimes, or what I look from your skills.
31:54Like that again?
31:56You know what I want to do again?
31:58And again.
32:06Is it weird to have to like check the food that you're getting when we're together eating?
32:10I feel like we've never had an issue where it's like only, you really want fish.
32:14It's because I'm only friends with people who don't eat my allergies.
32:17Yeah, exactly.
32:19Everybody that I see has to put in effort and forethought before they see me.
32:23And I know that's like an emotional tax, you know?
32:27That used to really upset me.
32:29I used to have been to a restaurant.
32:30There's a danger aspect.
32:32But obviously, you know, everyone's careful and you know, we're aware of it.
32:35It's just like having a normal friend.
32:36I feel like I don't think about it that much because we've been friends for so long.
32:41Fresh guys, any questions?
32:43Um, yeah, we were thinking the potato gnocchi.
32:46So, we were doing four of them?
32:48Uh, no.
32:49I have a ton of allergies.
32:50No worries.
32:51You get it.
32:51You might have got bread on the table or?
32:53I think we'll skip it because they'll have to check all the ingredients for that.
32:57Yeah.
32:57If that's right.
32:59She has her challenges.
33:01There's a little bit more to consider.
33:02But she has such a great time.
33:04And honestly, her condition is, and her allergies are such a small part of who she is.
33:10You guys have never ever made me feel like it's been an issue.
33:13I think I just personally, like, assume.
33:16I get why you would feel like it's a transition.
33:19But it's really not.
33:19Yeah.
33:20Yeah.
33:22That's really, really sweet.
33:23Very lucky to have you guys.
33:25Oh, thank you.
33:28Oh, yum.
33:29That smells so good.
33:30That smells really good.
33:31Wait, so what's on the menu for you today?
33:32We have oat waffles, and then I have the formula powder.
33:37And I'll add a little bit of water, and then I'll make it like a syrup, if that makes sense.
33:42Caroline has the best attitude out of anyone I've ever met.
33:45I know she struggles internally with it a lot, but she doesn't let that show.
33:49She'll know.
33:49So I think it's important that I include myself in those spaces, even if I'm not participating in eating or
33:56drinking.
33:57And those little moments of pain are overshadowed completely by the laughs and the memories and, you know, the good
34:06times.
34:07Right.
34:07The goal is to get off oats and formula, because I don't want to be eating that for the rest
34:14of my life.
34:15I am hoping to try lots of foods.
34:18And I am so excited to see what works.
34:31Thank you for being such a great friend.
34:35Oh, thank you.
34:36You know, in recent years, I've always tried my best to, like, you know, I guess, share awareness or, like,
34:43you know, how to improve your self-esteem or self-confidence.
34:47And so I want to do it for the younger generation, because I was once that person, too.
34:55You guys, I'll never not hate my body.
34:59And if I had the ideal body, not bleed out of most of my body parts, I could do these
35:06outfits would be bomb.
35:09Cherish your body.
35:11Trust me.
35:11Cherish it.
35:12Try to incorporate more, like, photo shoots where I, like, show, like, my scars and my medical devices and just
35:20how I look.
35:21In hopes that, like, people accept themselves and a lot of healthy people take things for granted.
35:28Yeah, you're right.
35:28I think having ED has taught me that the smallest things are what mostly matter in life.
35:36Yeah, I just really appreciate you guys, like, always supporting me.
35:39You know, I always grew up pretty isolated and I never really envisioned having friends.
35:44Oh my god, don't cry.
35:45I'm sorry.
35:46I'm getting teary.
35:47No, we're not crying.
35:47I'm sorry.
35:48I'm excited for, like, more memories.
35:50Ten more years of friendship.
35:52I know, ten more years.
35:53I know, ten more years.
35:54I know.
36:04I would say that my story is, I guess, an example that you are able to conquer a lot of
36:12things even when challenges are put against you constantly.
36:15All right, and your girl is ready.
36:18All right, now, wish me luck.
36:20It's kind of hard to see myself as a fighter sometimes, but I know I can be, or that I
36:26am.
36:26Yeah, it's been my friend, I think.
36:38Yeah, it's been my friend Alexia, and everybody keep asking people what's wrong with his mouth and all that.
36:41Alexia is going to talk to y'all about it.
36:47Thanks a lot for Alizé, y'all.
37:27So now that I've been stable for several years and I haven't been in the hospital, me and
37:31my doctors have decided that it's a good time for me to expand my diet.
37:34So I am food trial and carrots.
37:38I've been craving them, and I think that's a good sign.
37:42A little tiny piece.
37:47And now I wait by 10-15 minutes to see if there's a reaction.
37:54It is a very long process, it's very tedious and it takes a lot of patience.
38:00If I have a pre-anaphylactic symptom, we have to stop the food trial.
38:06It's been about 10 minutes and I feel perfectly fine, so that's good.
38:09I'm afraid to hope for too much, but I really, really hope that we can get this under control
38:14and she can start to live a normal life.
38:15Yeah.
38:17It's been about an hour and I feel good, so yay!
38:27It cuts to perfection.
38:31It has gone very well.
38:35I'm just like honestly savoring the flavor and thinking about how far I've come.
38:39It's taken almost a year to get to these chunks, but I think it's definitely been worth it.
38:48It's going to be so rewarding when I can finally fully incorporate it into my diet.
38:52I'm so excited to see what else works.
38:54I have so much hope for where I'm going health-wise.
38:58Hope is the reason why I kept dating.
39:02Hope is the reason why I finished school.
39:04I think hope and optimism is some of my superpowers.
39:09Bye!
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