'We’re not alone', Amanda’s parents moved by NGO's visit ahead of surgery

Free Malaysia Today

As Malaysians rally behind the six-year-old girl suffering from a rare condition, a visit from Suriana Welfare Society reminds her family they are not alone.   Read More:  https://www.freemalaysiatoday.com/category/nation/2025/12/13/were-not-alone-amandas-parents-moved-by-ngos-visit-ahead-of-surgery   Free Malaysia Today is an independent, bi-lingual news portal with a focus on Malaysian current affairs.    Subscribe to our channel - http://bit.ly/2Qo08ry   ------------------------------------------------------------------------------------------------------------------------------------------------------  Check us out at https://www.freemalaysiatoday.com  Follow FMT on Facebook: https://bit.ly/49JJoo5  Follow FMT on Dailymotion: https://bit.ly/2WGITHM  Follow FMT on X: https://bit.ly/48zARSW  Follow FMT on Instagram: https://bit.ly/48Cq76h  Follow FMT on TikTok : https://bit.ly/3uKuQFp  Follow FMT Berita on TikTok: https://bit.ly/48vpnQG  Follow FMT Telegram - https://bit.ly/42VyzMX  Follow FMT LinkedIn - https://bit.ly/42YytEb  Follow FMT Lifestyle on Instagram: https://bit.ly/42WrsUj  Follow FMT on WhatsApp: https://bit.ly/49GMbxW  ------------------------------------------------------------------------------------------------------------------------------------------------------  Download FMT News App:  Google Play – http://bit.ly/2YSuV46  App Store – https://apple.co/2HNH7gZ  Huawei AppGallery - https://bit.ly/2D2OpNP   #FMTLifestyle

Transcript

00:00As six-year-old Dia Amanda prepares for a life-changing brain surgery on Tuesday,

00:11her parents say they are holding on to hope and unexpected kindness of strangers who have shown

00:17up for their little girl. Amanda will be admitted to University Malaya Medical Center on Monday

00:24with her operations set for Tuesday, a daunting prospect for her parents.

00:54She is able to accept the treatment of her parents, which is why I say that it is 50-50.

01:04We are in the mirror and at the same time, we also pray for the risks that are not

01:12concerned with the plan that the doctor wants to take care of.

01:16Yet, just days before the surgery, a visit from Suriana Welfare Society accompanied by a

01:23group of children brought a wave of joy reminding the family they are not alone.

01:28Her father said the visit reminded them that though they were drowning, there are still people

01:34holding their hands.

01:35We are not alone.

01:37We are not alone.

01:39So, we have a support system that we feel that the feeling is that we are in the air but

01:52there are still people who want to hold our hands together.

02:01We are entangled for you that we has interest to Amanda.

02:05We are some family for the children of Suriana Welfare.

02:06So, our relatives friends, our families and their children are good at the end of your life.

02:12We are blessed to have a generous strength, good and good each other they are on their life.

02:24It's the end of the world.

02:26How?

02:28When Amanda's story was first shared, it touched Malaysians nationwide.

02:33And within 48 hours, more than RM241,000 was raised,

02:38enough to secure the device that could calm the violent dystonic storms in her brain.

02:45With earlier donations, the total has reached RM301,197,

02:51a powerful show of compassion for a child many have never met.

02:55The visit by the children reminded Amanda's parents of the journey their family has endured

03:00since she was diagnosed with the rare GNA-01 disorder.

03:06Still, they remain grateful to Malaysians, to FMT, and to every welfare group that has stood by them,

03:12and hopeful that Amanda's journey will be eased.

03:15Narmatha Raja, FMT.

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