00:00RFK Jr. faces backlash over plan to create autism registry and track diagnoses.
00:07RFK Jr. is criticized for seeking private medical records and launching an autism registry, claiming autism is preventable.
00:16He announced a global research effort, promising results by September to eliminate autism causes.
00:22The NIH aims to collect private medical records from diverse sources for a comprehensive analysis.
00:32Dr. J. Bhattacharya notes the challenge of fragmented data.
00:37Sources include pharmacy chains, genetic data, smartwatches, and private insurers.
00:43While researchers will access the data confidentially, they can't download it.
00:47An autism registry for real-time monitoring is also planned, despite opposition from autism communities and families concerned about privacy and discrimination risks.
01:01Mothers of autistic children disapprove, fearing privacy breaches and ineffective studies.
01:08Bhattacharya insists the NIH aims for quick study results to benefit the public soon.
01:14Privacy advocates criticize the register, fearing discrimination and data misuse.
01:20They urge halting the initiative, promoting services for neurodivergent people, over-treating autism as preventable or problematic.
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