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  • 2 weeks ago
Transcript
00:00Are you really fighting Mama Dallas? Are you serious right now?
00:09I don't feel like doing this. I don't feel like doing this.
00:13Dallas lives with a rare genetic disorder called CDKL5.
00:17You got your snacks. You got your cup. Dallas, no.
00:21Ma'am, you stop. No, no. Mama's got to do your hair.
00:25Keeping braids in her hair. She's been so long with me not doing her hair.
00:29So she's not used to not getting her hair done because she has this protective hairstyle in.
00:34You can do all that, but you can't get out.
00:36When they go out in public, people often tend to stare.
00:39I'm a little nervous because she's very vocal right now.
00:44So, you know, you go out in public and your kid is vocal.
00:47People are looking at you. But that's not going to stop me.
00:51And I'm here to encourage you to still go out in public with your special child.
00:54We're here, y'all. We're going. We're doing it.
00:57Ready, Molly? We're going to spit in the back.
00:59What's wrong? What's wrong? What's going? What's wrong?
01:05Is it too loud in here?
01:10It's too loud in here.
01:14Kind of loud in here. I'm shaking.
01:17We're going to say eat our food.
01:20Good job, dad.
01:21She's being so brave, but people keep staring at them.
01:25Good girl. Good job, Dallas.
01:29You know, people are looking at us right now, and that's okay.
01:35That's okay.
01:36My tickets to go. We're going to eat in the car.
01:38She's just so excited right now.
01:40Can we get it to go?
01:43Good job.
01:43It was very loud.
01:44If you heard the music, it was very loud in there.
01:46So I could see how she would be overstimulated.
01:48Now it's time for her bedtime routine.
01:55Say it, Mommy.
01:57Mommy, you're going to pick you up on me, too.
02:02I'm just fixing it, Dallas.
02:04No mail.
02:11I'm going to go to night-night, okay?
02:15Dallas, you already know what time it is, Mommy.
02:23For this blessed day, we thank you for your favor.
02:26We thank you for your grace and your mercy.
02:29Bubbles with the blood of Jesus.
02:30We're born against the...
02:32She is zipped into her bed at night to keep her safe.
02:41Daily life can be difficult and exhausting
02:44for families living with special needs.
02:49Fortunately, Dallas has the love and support
02:52of her amazing family,
02:53as well as her school and her doctors and nurses.
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