When Doctors dismissed me, I listened to my gut ❤️

John Black Smith

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00:00Does your head hurt? Where does your head hurt?

00:04From the back of your head.

00:07This is my daughter, Gracelyn, and this is her story.

00:10This mom wouldn't stop until her daughter had answers.

00:14She had been dealing with headaches for a month and a half.

00:17We had constantly been taking her to a pediatrician,

00:20but they kept saying that there was nothing wrong with her.

00:23For a month and a half, my daughter has acted like this.

00:26She was very uncomfortable.

00:28Everyone around her could tell that something was wrong.

00:31I finally decided to bring her to the ER

00:33and demand that they give her a CT scan

00:35to figure out why she's having headaches.

00:38When the results came back,

00:40they found two cystic lesions on her brain.

00:43We were immediately transferred to a children's hospital.

00:46Although I was very scared, look at how brave my mom was.

00:50Every parent's worst nightmare

00:51is discovering your child needs medical attention.

00:54We were immediately transferred to a bigger hospital

00:56an hour and a half away.

00:58When the MRI came and it showed that it was a brain tumor

01:01and not cystic lesions,

01:04I prayed for a sign that we would have a successful surgery.

01:07On the morning of her surgery,

01:09the fire alarm was going off.

01:11I took that as my sign.

01:13When the doctor started coming in,

01:14Gracelyn was so scared.

01:15She could tell something was happening,

01:17but she didn't know exactly what.

01:18They were so sweet and they let her die comfort her.

01:21He held her and her tablet

01:23and rolled with her all the way to the double doors

01:26where they would go back to surgery.

01:28After nine hours of surgery,

01:30she was finally rolled back into the room.

01:33She was completely sedated,

01:35but she was still fighting them.

01:37It can take up to a year to recover from brain surgery.

01:41After she was rolled in,

01:42it was time to take all the tubes out

01:44and wake her from sedation.

01:46We wanted to see how strong her coordination was

01:48and if she was able to breathe on her own.

01:53They did leave the drain in her head

01:55for an additional five days.

01:57She did really good, all things considered.

02:00A chest x-ray showed that she had

02:02leftover fluid in her lungs

02:03and unfortunately, she had spiked a fever.

02:06Thanksgiving morning,

02:07her doctor came in and told us

02:09her tumor was a grade two ependymoma,

02:11which is cancerous.

02:12He also said we were accepted into St. Jude

02:15and we would be leaving Monday morning.

02:17The family spent months in medical housing,

02:19supporting Gracelyn through her surgeries.

02:22Surgery day is here.

02:23We go and get her checked in

02:25and she walks back like a boss.

02:27She does her vital checks like a boss.

02:30There is less than 1% chance

02:32of someone developing a malignant tumor.

02:34We get back there and it's time to change.

02:36At this point, she did get side,

02:38but she powered through it.

02:39Her dad and I left to go get lunch

02:41when we got the call, she was in recovery.

02:43Thankfully, it was best case scenario.

02:46It took them 14 minutes to take the screw out

02:48and thankfully, we didn't have to stay as inpatient.

02:51We were released to go back to our room at St. Jude.

02:54After a year of surgeries,

02:56Gracelyn found light at the end

02:58of this long, enduring medical tunnel.

03:00We went to jail,

03:00in her house and family.

03:01We talked about not yetальных

03:02evidence for the flowers,

03:03but we were also wearing children.

03:03She was held in very often,

03:04going up to the room.

03:05listening to her room,

03:05and she raised her hand at that.

03:05I was able to say,

03:06can you see which is supposed to be

03:07waiting for them to try?

03:07She does.

03:07And since then,

03:08the room,

03:08when,

03:22look at me was supposed to be,

03:22and I went up to the door.

03:24The point in 24 hours.

03:24And in the back of the house,

03:25she was able to let them

03:26going up to just yet to go out here.

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