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  • 2 days ago

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00:00How has it been for you personally to watch this moment someone you have shared, you know,
00:06much of your life with and children with suffer from this disease?
00:12I find it's difficult. It's hard to see somebody who was so, you know, vibrant and strong and so
00:21directed shift into this this other parts of themselves. But, you know, my particular
00:30perspective is one. I really always say it's so important just to meet them where they're at.
00:37Yeah. Don't have an expectation of them needing to be who they were or who you want them to be.
00:44And when you do that, I find that there is an incredible sweetness and something that's soft
00:52and tender and loving. And perhaps it is more playful and childlike in certain sense because of,
01:02you know, how much more caretaking they need. And really the
01:09the most important place for me is showing up and being present, just being present.
01:19Because if you project where it's going, it only creates anxiety. If you replay where it was and
01:25what you've lost, it only creates, you know, anxiety and grief. And so when you stay present,
01:34there is so much and there's still so much of him there. And it may not always be verbal, but it is,
01:40it is, it is beautiful given the givens.

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