00:00Who is disability for? I have a chronic illness called psychical vomiting syndrome. Psychical vomiting syndrome is a chronic nausea and vomiting condition. Basically, anytime I get nauseous, I am going to throw up. When I do throw up, I can't stop. This can last anywhere from like six hours to days. My longest episode was four days straight of nonstop vomiting. Couldn't even keep down a sip of water. This can come on very suddenly without any warning at all. I have woken up at three o'clock in the morning, didn't have time to make it to the
00:29bathroom. I've thrown up in my own hands. Yesterday, I was driving to my niece's Halloween parade at her preschool. She's three years old. She's adorable. And I was throwing up in an empty coffee cup my entire ride there. Once I got there, I had to actually run out of the yard where they were doing the parade to throw up in the parking lot. And I applied for disability and got denied. My condition makes me such an unreliable employee because it's so unpredictable. Sometimes I will only have an hour to call out of my shift a day. Sometimes it'll be moments before because it comes on
00:59and I don't know when it's going to come on. Difficult time finding work. When I do have a job, I have a difficult time maintaining it because I am so unreliable. And I actually completely under because like, why would you want to hire someone that you can't count on? The problem is I also have anxiety, endometriosis, ADHD, and autism. I have medical records dating back to 2007. I had a packet this thick with medical records, everything that you could possibly need to prove that this has been happening.
01:29Because of this condition. I got denied. I got a letter that said that I didn't send in the necessary information. However, I actually like handed it in in person because I was afraid of that happening if I sent it through the mail. Um, and I still got denied. So I'm going to have to appeal it. I just don't understand like if I can't get approved for disability that I am literally like an unreliable, like non-functioning person in the workforce. Like who was it for?
01:53Sure. Hi, I'm Erica. I'm 36 years old. And this is a day in the life of a girly with cyclic vomiting syndrome. Cyclic vomiting are episodes of extreme nausea and vomiting that can last anywhere from a couple hours to a couple days. During one of these episodes, I'm lucky to keep down a sip of water and almost always end up in the ER due to extreme dehydration. Finally in the recovery stages. So I haven't thrown up in like six hours.
02:22Um, literally, um, literally, I don't know why, but it's like the only thing that like brings life back into my soul. This was a bad one. Lasted two and a half days. I couldn't keep down any food or any water the entire time. I couldn't keep down my medications that I take daily like my psychiatric medications.
02:49So I woke up today and I was like withdrawing from meds. So that's fun. I literally have met maybe two other people in my entire life who suffer from this. And I want to know if there's anyone else out there. Like, what do you do? What helps you? What helps you recover? What triggers it? Like, why are we like this? I can't go on like this. I can't.
03:19I can't.
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