00:00So when it rains my body has a reaction to the water, I get hives, I can't bath my son
00:07which gets us upset, I can't drink water because it hurts my throat.
00:14So I'm pregnant at the minute and it's really hard to find the right medication with me
00:20being pregnant because there's only so much medication I can have.
00:23When I'm not pregnant I still can't find the right medication.
00:27So it's a really rare condition, there's only 32 people in the world with it and I've never
00:31ever met anyone else with this condition that I have got.
00:35So hopefully this raises awareness for people who might have this condition who don't know
00:40the habit and hopefully someone reaches out who might know a bit more about this that
00:46could maybe help.
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