00:00So I'm Serena, this is Chris and this is our little boy Tommy. He's four months old.
00:06When I was 20 weeks pregnant we went for our 20-week scan. Everything was fine, they were
00:12saying how well he was growing and he had fingers, toes, everything like that. At the end of the scan
00:18she said, oh I just need to send this to a more advanced, a more senior midwife and then she came
00:25back and said that there was a shape in his brain which was a banana shape and this symbolised that
00:33there was something not wrong but not right and so she sent him off and then we, as you do, googled
00:43it and then we saw that it was linked to spina bifida but there could have been other reasons
00:48for it. So we went away, we waited for a phone call and then they came back and said that they're
00:55looking at spina bifida. We didn't know if he was ever going to move his legs, we didn't know
01:01anything but we made the decision that we wanted to stick with the pregnancy and they offered us
01:08a chance to have this foetal surgery. You have to make sure that everything is correct and with
01:14you and baby for you to have this surgery because they can't have any risks. So we had that done at
01:2026 weeks and it was very successful, wasn't it? You had to wait while I was in surgery.
01:28They advised that you can have a preterm labour with the surgery but they were hoping that I'd
01:34get to about 36, 37 weeks but he came at 31 weeks and so we had the other challenge of him being
01:42nine weeks premature. So yeah we spent four weeks in hospital with him but he was absolutely, he
01:49hit every single goal when they wanted him to. He had this scar but we were cleaning it, we would
01:56dress it as well, they taught us how to do that. We have a lot of ongoing appointments for his
02:01spina bifida and we've just had his bladder urology. They said that his bladder is a bit small
02:07and it can't, it doesn't contain as much as a normal bladder at his age. So he's on medication
02:15for that, we have to do cathetering twice a day and we have more tests next month. So at the moment
02:22it's an ongoing thing, we know he has it, he's very cheeky and I knew this even when I was pregnant
02:29with him, I knew he'd be cheeky and that's why one of the reasons I fell in love with the name Tommy,
02:35I just felt like it was a really cheeky little name. But yeah he's funny, isn't he?
02:43He's very independent already, he does what he wants to do. He won't smile at you if he doesn't
02:48want to, like he will. But yeah he always wants cuddles though, doesn't he? He's always, he's very
02:56attached to us which is normal for his age anyway.
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