00:00I am a mom of two children with albinism if you didn't know now you know with two different types
00:06of OCA. This comment says thank you for helping others understand. No I want to thank you guys
00:14for letting me explain it all to you because when I had my son at 21 I did not know what albinism
00:22was and I'm not gonna lie I reacted in a way that maybe I felt like I shouldn't have
00:31but looking back I didn't know nor did I understand but now being 35 knowing what I know
00:38if I would have knew that back then I would have never responded the way I did but I did because
00:45I didn't understand or I didn't know I wasn't educating myself. When we did our documentary
00:51on Truly a lot of people came for me like it was negative and positive a lot of people came for me
00:56because they were like oh you really responded to your baby like that but then on the flip side of
01:01that people are like well at least she's being honest and not being fake and lying for the camera
01:06I was never gonna lie for the camera I was gonna be real and I already knew people were gonna come
01:12for me for the way that I responded but how am I supposed to respond when I'm only 21 years old
01:18and I have a child that comes out looking way different than me it's one thing if the child has
01:26like some abnormalities and it's a whole nother thing when your child comes out with a total
01:31different skin complexion as you maybe I need to stop watching Lifetime movies but that's all I
01:36could think about and I'm like okay babies can be swapped like this doesn't happen based off a true
01:43story is this happening to me kid's dad was a lot older than me he's 20 years older than me so
01:51he's been around for a long time so it was kind of odd that I didn't see like no type of like
01:58expression like shock like far as me they had gave me like medication and like keep me calm because
02:07I was very emotional it's just I just wasn't understanding if I was educated by my parents
02:14or my family then it wouldn't have been such a surprise but since I wasn't educated or informed
02:22it was a shock a literally a state of shock it took a minute to just kind of come to terms with
02:29like everything and when I came to terms with everything and it was like just KD and I already
02:35had um our first son it was pretty cool like the doctor said it would never happen again you know
02:42it was straight I eventually adapted but my sadness and hurt turned to anger and it caused me to be
02:50put in a lot of situations like you know and I had to really uh calm my temper down my temper was so
02:59bad that you know I could have been facing some serious time because I had a situation and I
03:06reacted off of emotions because people just wanted to keep talking about my baby and they just felt
03:11like you know they were just so comfortable to just say the things bluntly to my face and I wasn't
03:19gonna respond and I will respond every time somebody came for my child when I had TT it
03:26wasn't as bad because I already had a son that was born with albinism I wasn't angry but I was
03:34hurt because I knew the different things that my son went through and I didn't want my daughter to
03:40go through those things but it was a blessing because KD wasn't alone and then I had a girl
03:47so a boy with albinism and a girl with albinism perfect
03:56you
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