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The emotional terrains of palliative care
Free Malaysia Today
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2 years ago
The field requires the lines of professional boundaries to be blurred in order for nurses to build rapport and trust with their patients.
Read More: https://www.freemalaysiatoday.com/category/nation/2024/01/10/the-emotional-terrain-of-palliative-care/
Free Malaysia Today is an independent, bi-lingual news portal with a focus on Malaysian current affairs.
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Transcript
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00:00
Palliative care is about making sure that patients, the family members, the caregivers
00:08
and whoever is involved with the care will be comfortable, will have good quality of
00:16
life.
00:17
The most important thing is for us to hear what is important to them, what is valuable
00:25
to them, preserve their dignity.
00:29
Home-based palliative care nurse Nadia's daily routine revolves around visiting and
00:33
providing care to different patients at their homes.
00:36
We do look after patients with cancer and other types of illnesses like kidney failure,
00:48
lung failure, nerve issues like motor neuron disease.
00:53
Her patients also include those with dementia and Parkinson's.
00:57
While some might find her job somewhat depressing, she embraces it with a unique perspective.
01:03
She considers herself not just a healthcare provider but a friend and companion to her
01:08
patients.
01:09
There will be a time that you feel very sad, there will be a time that you feel very satisfied
01:16
because when you go through the patient's suffering, their journey of life, their journey
01:22
of the illness and the family members.
01:25
At the same time, Nadia also leans on her colleagues to get through difficult cases.
01:31
We don't carry this burden alone because we have team members to support us at any time.
01:37
My organisation is giving us so much support in dealing with our emotion, in dealing with
01:45
the challenging cases that involve our emotion and feelings.
01:52
So I think that is how we have been coping for the past years.
01:58
Nur Amira Zamri, a palliative care nurse at a private hospital, finds solace in her unit's
02:04
debriefing sessions.
02:05
Then we will sit together and talk about it.
02:08
If we think we need to cry, then we cry.
02:11
Having to care for seriously ill patients and being by their side has taught Amira to
02:15
be more appreciative of life.
02:18
I always take that as a positive thing.
02:21
Always God wants me to have this to make me appreciate my family and friends more because
02:28
I have this time.
02:29
Given the nature of their jobs, Nadia hopes there will be more recognition for palliative
02:34
nurses like her.
02:36
We are not only the nurses, we are also the doctors, we are the pharmacists, we are also
02:41
the physiotherapists, social workers, we are the counsellors.
02:46
So we are doing so much.
02:48
But no one sees this as an important aspect in delivering care to the community.
02:58
Natasha Bust and Amira Huda, FMT News.
03:01
(upbeat music)
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