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  • 6 minutes ago
Emma Fogarty lives with EB, Epidermolysis Bullosa, a rare and extremely painful genetic condition that leaves her skin so fragile it blisters and tears at the slightest touch. She takes up an offer from her long-time friend, Colin Farrell.

Stars: Colin Farrell . Emma Fogarty
Transcript
00:00How you doing, darling?
00:02I just wanted to leave you a little voice note.
00:04I know your dreams have been taken from you.
00:07I have a dream now to make this film together.
00:10We'll speak soon.
00:11All right, bye, love.
00:13I'm not winning at all.
00:15But you know me.
00:17Smile as always on.
00:21Can you explain to me how this all came about?
00:23I said to her,
00:24I wish I'd run a marathon someday, about two years ago.
00:27And then about a year later, I got a text to her,
00:29and when you said we should run a marathon, I went, fuck.
00:32You look beautiful.
00:33I try to make an effort.
00:35Well, that makes one of us.
00:37I have EB.
00:38That means you deteriorate with age.
00:41She was born, and they said she wouldn't live within the week.
00:45Somehow, I've got to 40.
00:47Have they lined up the Prosecco?
00:48They better have.
00:50You did it.
00:51Cheers, everybody.
00:52I got cancer twice.
00:54I lost my leg.
00:55I have an open wound on my bum.
00:57That's good.
00:58Too much information.
01:00You're not filming the bum, okay?
01:01It's not that kind of movie.
01:03Yeah.
01:05I have never had a camera crew come near my home.
01:09We get away with nothing.
01:12The reason I'm here is the same reason you're here.
01:14It's for Emma.
01:16It's just those three words.
01:17It's for Emma.
01:18It's for Emma.
01:19It's for Emma.
01:20Thanks.
01:21I have to be the love.
01:24There will come a day where I will never be able to get out of the bed again.
01:29I need someone this size.
01:31This could be very bad for her, but this means a lot to her.
01:34She doesn't deserve the pain afterwards, but she deserves the experience, and you can't have the one without the other.
01:38He's got my back.
01:40I have her head.
01:45I think she makes the best out of everyone.
01:49All the things that I shouldn't be doing, I love doing.
01:56You either live, or you die.
02:03I want to live.

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