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  • 2 weeks ago
As she turns forty - an age doctors once said she would never reach - Emma Fogarty, who lives with the rare and extremely painful condition Epidermolysis Bullosa, takes up an offer from longtime friend Colin Farrell; they agree to run the Dublin Marathon together, with Colin pushing Emma's wheelchair for the final four kilometres. Also follow their lives and the enduring friendship that has sustained them through the years.
Transcript
00:00If the film can be a part of a conversation that already exists, but exists at a very low decibel,
00:08and if that conversation can increase in volume, and if the film can be a part of that,
00:14that would be an extraordinary thing, and I think it will.
00:17Anyone with Epidermal Isis Bellosa sees this film, or anyone who is a brother or a sister,
00:26or a mother or a father of somebody with Epidermal Isis Bellosa sees this film,
00:29and they feel, even for a second, and I'm not expecting them to, by the way,
00:32but if they feel, even for a second, like they've been seen and heard,
00:35and their struggle has been acknowledged through the experience of everyone acknowledging Emma's struggle,
00:41well, then that would be an extraordinary thing to be a part of as well.

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