00:05what if your child's muscles are getting weaker and you don't know why this is spinal muscular
00:11atrophy or sma it affects about one in seven thousand to ten thousand babies a change in the
00:18smn1 gene means the body can't make enough smn protein without it motor neurons the nerves that
00:25carry signals from the spinal cord to the muscles slowly weaken muscles that aren't signaled begin
00:30to shrink parents often notice a baby who feels floppy rolling sitting or crawling comes late
00:36some children struggle to swallow tire quickly or find breathing harder there are four types from
00:43infants to adults depending on when symptoms begin and how severe they are sma is genetic so we can't
00:50call any approach a cure approved medicines help slow the disease but families still look for ways
00:56to support the nerves and muscles that are affected this is where regenerative therapy comes in our
01:02therapy uses mesenchymal stem cells taken from umbilical cord amniotic or placental tissue these
01:08cells act like tiny repair coordinators they release growth factors called neurotrophic factors and
01:14exosomes which help protect nerve cells from dying and calm harmful inflammation the goal is
01:20to create a healthier environment for the motor neurons your child still has depending on your
01:26child's age and condition the cells are given by an iv drip or by an intrathecal injection a lumbar
01:33puncture that places them near the spinal cord the cells are gmp certified and every batch is checked by
01:39an independent lab for quality and viability so what the families report improvements in muscle tone and
01:45strength balance and coordination some notice less fatigue steadier hands and easier swallowing and
01:51speech fine and gross motor skills may improve and progression may slow every child responds differently
01:58and this is a supportive therapy it is not a cure the stay is short and supervised day one is
02:04arrival
02:05examination and tests day two is the stem cell procedure and physiotherapy day three is supportive
02:11care and discharge a neurologist diagnosis is needed first and our team calls you at one month two months
02:18and six months if your child has sma you don't have to figure this out alone talk to our team
02:23is this EPI-L somber7 turns out the two you
02:23and this is a Identity Bean
02:24well
02:24I'm on
02:24you
