00:00All the Feeling with PVC is the campaign that we launched today to give voice to the needs of patients
00:06who live with colangite biliary primitiva.
00:09It is an innovative campaign because it passes through art to tell the lives of patients and their emotions.
00:17This campaign is in a wider context in which Gilead enters into this world, first of all, watching patients but
00:28also doing research and trying to bring innovation to patients.
00:35We do it through clinical research with 14 centers involved in international international experiments.
00:47We build it on an important heritage of Gilead in the field of pathology.
00:55On this basis, we build it for the colangite biliary primitiva, to follow the needs of patients and clinicians.
01:06We start with this campaign to listen to them.
01:09The colangite biliary primitiva is a chronic autoimmune disease.
01:12The colangite is a chronic autoimmune disease.
01:15The colangite is important because we are talking about a rare disease,
01:19that is not known as a rare disease,
01:20that often affects women in mid-sized age, between 45 and 65 years.
01:27It is a disease that, if not treated and not diagnosed for a long time,
01:32can evolve towards the very advanced forms of hepatopathy
01:37to bring patients to a fetus.
01:41It can be diagnosed in patients that are all asymptomatic,
01:45because there are alterations of the function of hepatitis,
01:48or in patients that are present from the doctor with symptoms that are the pruritus and fatigue.
01:55These symptoms are a little invisible,
01:57they are difficult for the patient to tell, to express with words.
02:03The campaign today wants to represent with visible everything that is not visible.
02:08So, thanks to the artist Neur,
02:12they are represented the sensations of patients who live this disease.
02:18When we talk about a disease, we think about diagnosis,
02:22the procedure, the symptoms,
02:24how severe the disease is,
02:26but there is also a whole dimension of the patient.
02:28Before we, in ambulatory, we have always a person with his life,
02:34his unique way of living that disease.
02:37For us it is always the same disease,
02:39but in reality it is not the same disease.
02:41In each patient the disease is different,
02:44he lives in a different way,
02:46he perceives in a different way,
02:48and then it is also different because not all patients have the same severity of the disease.
02:52But we have to approach the patient globally.
02:57That point we have brought to the end our goal.
03:01The role of the association is very important because it is a community where the patient can find home.
03:08The diagnosis of a chronic disease is a chronic disease.
03:11The goal of finding a patient is in a community that is physical,
03:16but also virtual,
03:17allows the patient to find a home.
03:20When one is in the home,
03:21he feels safe,
03:22he feels clear,
03:22he feels clear.
03:23He is not the only one in the world who has this problem,
03:25but there are others who have the same life,
03:28and the union,
03:29he knows,
03:30he has the strength,
03:31he has the hope,
03:32we have to look forward,
03:33because we don't have our own disease.
03:35We encounter the disease,
03:37we have to live with the disease,
03:39but we don't have our own disease.
03:40The empowerment,
03:41for a patient,
03:42it means also to maintain a meeting with the doctor,
03:46to understand the needs of the doctor,
03:48and to transmit what are the sensations.
03:50So,
03:53the diagnosis of the diagnosis is facilitated,
03:56the diagnosis of the cure is facilitated,
03:59as well as the therapeutic patient,
04:01so that the patient can follow well the indications of the doctor,
04:04it is a virtuous process,
04:07which allows you to be able to be better.
04:09To transmit the symptoms,
04:12for those who are,
04:13to the clinic,
04:14it allows us to understand better the care and,
04:18and therefore,
04:18the cure.
04:19To be a liver company,
04:21for us,
04:22it represents the commitment,
04:23that we have put in the years,
04:25we talk about 40 years,
04:27in creating,
04:30in the new treatment,
04:31in the new treatment,
04:32in the new treatment,
04:32for patients affected by hepatitis.
04:35This is the basis to go further,
04:39in the colangite biliary primitivity,
04:41which is a hepatitis,
04:43not of a infectious disease,
04:45but a cronic disease,
04:46with a heavy load of symptoms.
04:50And from here,
04:52we start to listen to it,
04:54and especially to try to contribute,
04:58and collaborate with all the actors
05:00of the health system,
05:01to follow their needs and not leave anyone behind.
05:05Heartburn
