00:00Conor started taking steps unassisted for the first time ever.
00:06I do remember when we were sitting on the couch right here.
00:09Can you get off the couch, Conor?
00:10He just stood up and started walking away.
00:12I'll see Karen.
00:13We were all just like super shocked and it was like a really good time to experience.
00:19I think we were both just like blown away at the walking so early on
00:23when he was still at a very low dose of the medication because it was so unexpected.
00:27And we're talking about an 8-year-old, 9-year-old, 10-year-old doing these things for the first
00:32time.
00:32I mean, I still remember where I was when his smile came back and what toy we used to do
00:37it.
00:37It was the best thing ever.
00:39I have not seen Conor have a seizure now in four months.
00:41That's four months with zero seizures and this is a kid that had daily seizures.
00:45If people are saying that he shouldn't be alive right now and he just started taking his first steps,
00:51I mean, what do we not know?
00:53Where are the limits to where we can intervene?
00:55You know, this is a 15-year-old that we started the study on.
00:58We're seeing that it's not too late at his age.
01:01That's why I keep pushing because for you don't know exactly where the limits are.
01:05We just know the potential possibilities are there.
01:08It's just a relief that I have a doctor for my son that's right there fighting for him like I
01:13am.
01:14She's incredibly intelligent, but she has the heart too for her patients.
01:18And that combo is what so many more families deserve.
01:21We're going to be sick.
01:24We're going to be sick.
01:28Gracias.
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