00:00foreign
00:17foreign
00:38।
00:50So the cases were filed in high court in some countries and when they were starting to make a national
00:58policy and that was not made the national policy.
01:02So that was revised in 2021.
01:05First it was one time to keep 20,000,000,000,000,000.
01:09And then it was revised to keep 50,000,000,000,000,000,000 in patients' treatment.
01:15I was also a normal person when my son got to know this disease.
01:21I worked in a multinational telecom company.
01:24I worked on a good salary.
01:27But when I realized that my son is suffering from this disease,
01:31I resigned from this company.
01:33We made rare disease India Foundation with some mother-in-law.
01:38We thought that now we have to do this.
01:39We made rare disease in this country.
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