Kisah Wawa dan baby Rara viral kerana Rara seorang bayi unik yang lahir dengan Robert Syndrome. Kita akan kupas lebih lanjut tentang penyakit ini di Motif Trending.
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LearningTranscript
00:00I think the baby is from the syurga.
00:05So, in the syurga, the baby is called Mama.
00:30There is a story about her daughter, baby Rara, who has had Robert's Syndrome.
00:36It is a genetic disease that causes her childhood when she was born.
00:41And Wawa just wanted to know the situation of her daughter after she was born.
00:45And today, we are here with both of them, accompanied by her mom as well.
00:50So, hi, welcome to Motif Trending.
01:01She's very nice.
01:03Okay, before we start, maybe you can introduce yourself to the audience before we begin.
01:08A brief introduction about yourself.
01:10Hi, my name is Wawa.
01:12I'm a mother to Nadra.
01:15That's it.
01:16That's right.
01:17That's right.
01:18And you're a friend of your mother?
01:20I'm a mother.
01:21I'm a mother to Wawa.
01:24I'm a mother to Nadra.
01:26So, I can call you a mother for the interview?
01:29Okay.
01:30Alright.
01:31Boleh tak share sikit mengenai Robert's Syndrome ni?
01:34Sebab, I've never heard of this term before this interview.
01:39And, yeah.
01:40Okay.
01:41Robert's Syndrome ni, tak banyak dekat Malaysia.
01:44So, macam dekat masa saya bersalin, kat hospital,
01:47Doktor Pakar sahkan benda ni.
01:50Kira, first case lah kat situ.
01:51Okay.
01:52So.
01:53Dekat hospital tu?
01:54Yep.
01:55First case.
01:56I don't expect that when she's born, she's not a child.
02:04Because when she's gone, she's not a child.
02:11She's not a child.
02:13She's not a child.
02:15She's not a child.
02:17So, for me, it's a normal for me.
02:24She's not a child.
02:26So, with one of my own, I didn't make the whole child's child.
02:31When I was pregnant, I was busy to go to the home.
02:35So, I got to know that she had a child with Robert's Syndrome after she was born.
02:45So, in that time, the doctor told me that the child's child's child's child.
02:51So, in that time, I was in the mood of the child's child.
02:56I didn't want to do anything.
02:58So, I didn't want to go to the house.
03:01But, before I was born, I was able to get a child's child.
03:05I was able to get a child's child's child.
03:08So, I felt like a child's child's child's child.
03:13Yeah.
03:14People slept on her physical...
03:18What?
03:19Oh, we're also fighting...
03:22Oh, that's bad.
03:23Love you.
03:24We're not feeling it about her as a child.
03:25Yeah.
03:26I was fighting for her.
03:27I'm fighting for her.
03:28I felt like a child in her, у zich.
03:29Oops, I didn't like anything.
03:32Well, it was going to bebra lunch.
03:34So,öth or,�?
03:35I was fighting for her at the house.
03:38So, when I call my mom, I'm going to cry for 2 weeks, I'm going to cry for something like that.
03:44So, I asked her husband, what's the meaning of her?
03:50After that, she said that she didn't have a lot of fun at night, so she didn't think about it.
03:55So, we don't think about it. We don't think about it.
04:00So, there are people who say, I have done research, they say that if we're dreaming, sometimes like a human.
04:08But when I ask my dad, my dad says that if we're dreaming, we're dreaming of a human or a human.
04:18But he says that if we're dreaming like this, he wants to give hints.
04:22But not now, he wants to give hints.
04:25So, maybe that's what I know, but I don't know what God wants to give.
04:32So, the baby, before I meet her, she was full.
04:38She went to an S-ray, ultrasound, everything.
04:40So, we want to know if she had a problem.
04:43After that, she took the blood, etc.
04:46After that, they told me that Robert's syndrome doesn't have a lot in Malaysia.
04:55But there are a lot of cases in the world.
04:59So, I was like, okay.
05:01It's unique to her, right?
05:04So, I think I'm happy because I got a family of support,
05:09like, I'll do my poo-p количе mop profiles and I grew up.
05:13So, she said, I neveraku.
05:15That's right.
05:16So, I didn't realize that they are ok in the life later.
05:18So, actually, I believe that even see me as a gentleman is ok.
05:22So, the client Jacket, that's your meal, it's all pretty.
05:24So, my Food соответ is the same.
05:27After that, then I'm just going to be a little bit whenever she wants me,
05:32Since you are in my life, I don't have a feeling.
05:45I want to ask, at that moment, when you get to know and when the doctor tells you,
05:50what is the feeling of your thoughts at that time?
05:55I don't know.
05:56At that time, when the doctor asks me, you know what your son is now?
06:02Then I ask, do you know?
06:05Do you know how physical he is?
06:07Do you know what he can do?
06:10Alhamdulillah, I feel that I can do with my son.
06:13Because my son is so beautiful.
06:16He is so beautiful.
06:17He is just a few people.
06:20Alhamdulillah, his body is so beautiful.
06:26He is so beautiful.
06:27He is so beautiful in the body.
06:28He is so beautiful.
06:29He is so beautiful.
06:30He says, the hearing is okay.
06:31Your eyes are so beautiful.
06:32His body is so beautiful.
06:33Your body is so beautiful.
06:34So, when I say, I feel like, yeah.
06:38There is another person who is who is more powerful than me.
06:41So, I feel like, that's not a big deal.
06:44I feel like I really appreciate it.
06:46This is the journey of my life.
06:48After that, my friend said that you are the first woman in the age of age.
06:56I didn't see you as a person like you.
07:01I said, why not many of them are the same as a child.
07:07Most of them are the same as a child or she left in hospital.
07:11Or she didn't know about her own.
07:13But you are a child that's unique.
07:16How can you do it in one day?
07:19Exactly.
07:21How can you do it in one day?
07:24Because for people in the outside, it's not a thing that's not a thing.
07:28It's a thing that's why it's not a thing.
07:32It's a very big commitment.
07:35As a mother, you have to do it.
07:39You have to be really quiet with what God has.
07:45How do you accept this?
07:47Mula-mula, sebelum saya dapat mimpi tu, awal-awal memang macam tak boleh terima.
07:52Tapi lama-lama, bila benda pun dah jadi, saya terima lah.
07:57Lepas tu, saya dapat support daripada suami,
08:00dan keluarga, keluarga saya lah.
08:04Macam mak minta saya datang, saya telefon pun,
08:07dia cakap, tak apa, ada rezeki dia ni.
08:10Jangan pernah give up.
08:12Dia cakap kan, Rara ni unik.
08:14Percayalah, ada rezeki dia.
08:16Anak syurga ni pembawa rezeki.
08:19Percayalah, kita nak rewind sikit pasal,
08:34nak tahu lebih pasal mimpi you actually.
08:36Masa mimpi tu, actually, you dah nampak,
08:39yang dia ada kekurangan.
08:41Masa dalam mimpi, ke tak nampak?
08:42Dalam mimpi tu, baby tu sempurna.
08:44Cuma, saya tak nampak dia punya muka.
08:47Muka ni macam bersinar, macam pantulan cahaya kan.
08:51Dia bersinar, saya tak nampak.
08:53Daripada jauh, dia hulur tangan.
08:55Macam, mama, mama.
08:57Dia cakap panggil.
08:58Tapi bila saya nak datang kat dia, tangan tu selalu terlepas.
09:02Bila tangan terlepas, saya akan sedar.
09:04Dia macam secara random.
09:07Tapi dia memang dua minggu betul-betul surut lah.
09:09So, masa tu, she's already in your belly,
09:12dah ready nak bersalin dalam masa dua minggu?
09:14Time tu dah tiga puluh empat minggu dah.
09:17Sebelum kita jumpa pakar.
09:19Jumpa pakar untuk yang dapat tahu yang...
09:21The final check-up tu lah, basically.
09:23Okay, okay.
09:27Untuk ibu pula, masa ibu dapat tahu bila bawah call tu,
09:31ataupun ibu ada kat hospital masa...
09:33Masa tu, tengah kerja.
09:35Okay, tengah kerja.
09:36Dapat panggilan, dia cakap, dia dah bersalin.
09:38Tu, dia nangis.
09:40Dan tanya je lah, kenapa dia cakap kan?
09:42Dia kata, baby dah lahir tapi...
09:45Tak sempurna, dia cakap.
09:47Tak sempurna macam mana?
09:49Dia kata, tak ada jari, kaki dan tangan.
09:51Maksud tu, tak imagine lah macam mana.
09:53Tak aspek macam...
09:55Tak tengok kan?
09:56Tak terbayangkan macam mana kan?
09:58Rupa dia masa tu lah.
10:00Lepas tu, cakap dengan dia, kuat je lah semangat.
10:02Kita jaga je lah sama-sama nanti kan?
10:04Macam tu lah.
10:16Okay, Baba saya nak tanya, apa sebenarnya yang buat you nak share tentang ni dekat sosial media?
10:22You know like, what is it that makes you want to share your journey dekat sosial media?
10:27Sebab benda ni tak senang.
10:28I rasa, kalau saya lalu benda ni, saya kena ada masa untuk proses benda ni.
10:34Saya takkan keluar daripada dunia, saya kan you know.
10:37Saya akan melalui fasa saya lah, in a sense.
10:39But how and why it makes you want to do this?
10:41Sebenarnya benda ni, saya tak nak post pun.
10:44Actually lah.
10:45Lepas tu, mak muntut saya cakap,
10:47post je lah, mana tahu rezeki dia kan?
10:50Lepas tu, saya rasa macam...
10:52Sebab anak saya yang lain pun, saya post juga.
10:54Dia punya perkembangan dia, macam video-video apa semua.
10:57Sebelum-sebelum ni lah.
10:59Sebenarnya, saya malas nak berhadapan dengan netizen.
11:03Malas nak berhadapan dengan netizen lah.
11:06Tapi, first, saya post pasal dia tu, awal perkembangan dia lah.
11:10Saya rasa macam, ok, kalau aku tak post, benda ni,
11:14sampai bila-bila pun orang takkan tahu yang penyakit dia ni.
11:17Sebab, bila saya buat research dekat mana-mana media,
11:20memang tak ada lagi yang post pasal Robert Syndrome ni.
11:23So, dari situ lah, saya rasa macam, ok, takpelah.
11:26Kita bagi awareness lah kat orang kan.
11:28So, macam, at least dia tahulah apa sebab-sebab
11:31daripada Robert Syndrome ni, macam mana berlakunya,
11:34mana datang dia kan.
11:36Tapi yang niat saya, just nak bagi awareness je lah kat orang.
11:40Masa mengandung, tak boleh terlalu stress ke,
11:44terlalu macam buat kerja berlebihan ke,
11:47tak boleh. So, impact dia, bukan ke kita tapi ke baby.
11:50Saya rasa benda ni tak senang dan bahawa seorang yang sangat kuat juga,
12:05sebab dalam semua ni pun kongsi general knowledge untuk semua.
12:09Supaya semua orang faham keadaan you,
12:11dan faham tentang Robert Syndrome ni.
12:14The next question saya nak tanya sebenarnya is,
12:18the future is quite scary, you know,
12:21untuk seseorang macam, macam, macam Lara, you know.
12:26And, you know, you pernah tak fikir pasal benda tu,
12:29macam mana you nak, ya.
12:31Saya ada juga terfikir,
12:33saya ada pergi jabatan ni lah, rehab lah.
12:36Sekarang dia tengah bawah fisiologi.
12:39So, saya ada tanya benda tu, dia cakap,
12:42takpe, tak payah risau sebabnya,
12:44mungkin bila dia besar nanti,
12:46dia akan disekolahkan daripada UPKK lah.
12:49Sekolah khas kanak-kanak.
12:51Doktor kata, lebih baik untuk jaga dia punya emosi
12:55dan mental dia sekolah khas.
12:57Sebabnya nanti dia akan kenal yang macam,
12:59orang macam,
13:01ada lagi taruh pada dia.
13:03So, dia macam,
13:04ok, bukan dia je yang tak cukup sifat.
13:07Ada lagi yang tak cukup sifat.
13:09Macam tu.
13:10So, kita nak elakkan daripada masalah,
13:12dia dapat masalah mental lah.
13:14Betul?
13:15So, do you also agree for,
13:18untuk keputusan ni,
13:20dalam masa yang akan datang?
13:22So far, saya agree je.
13:24Sebabnya, memang,
13:26lepas bincang-bincang dengan husband,
13:29lepas bersalin tu,
13:30dia kata dia ok.
13:32Apa je benda,
13:34yang terbaik untuk nada,
13:35dia ok.
13:43Ada tak,
13:44pengajaran yang baru,
13:45yang Wawa belajar,
13:46untuk diri sendiri.
13:48You tak pernah lalu,
13:49ataupun,
13:50dia buka sesuatu dalam,
13:51hati you,
13:52ataupun,
13:53your life,
13:54yang you tak pernah,
13:55you know,
13:56terfikir yang you akan lalu benda ni.
13:57Hmm,
13:58sebenarnya,
13:59tak tahu nak cakap ni.
14:00Tapi, sebenarnya,
14:01pengajaran yang saya dapat belajar lah,
14:03daripada,
14:04kisah ni kan,
14:05jangan terlalu baik dengan orang.
14:08Jangan terlalu memperhambakan diri kita,
14:11dengan orang.
14:12Kalau,
14:13kita,
14:14terlalu baik,
14:15orang akan manfaatkan kita,
14:16sebaik-baiknya lah.
14:17Tanpa,
14:18kita sedar,
14:19kita dah,
14:20lebih baik,
14:21kita berluas pada,
14:22kita jaga hati kita je lah,
14:24senang cerita.
14:25Hmm,
14:26sebabnya,
14:27kalau dalam mengandung,
14:28kita fikir orang,
14:29memang,
14:30dia tu,
14:31efek ke,
14:32baby lah.
14:33Haa,
14:34saya,
14:35itulah pengajaran saya sebab,
14:36masa mengandung yang lain,
14:37saya tak,
14:38saya tak ada macam ni,
14:39saya okey je.
14:40Cuba mengandung dia,
14:41saya lalu,
14:42fikir ke orang lain.
14:43Haa,
14:44orang ni tak ni,
14:45haa,
14:46saya,
14:47jadi,
14:48saya rasa macam,
14:49tak apa,
14:50saya buat kerja lebih,
14:51lebih, lebih, lebih, lebih.
14:52Yang,
14:53tanpa saya sedar,
14:54saya dah,
14:55memudaratkan diri saya sendiri,
14:56tanpa, tanpa saya sedar.
14:57Haa,
14:58saya tak penat,
14:59tapi,
15:00baby dalam perut penat.
15:01Haa,
15:02dia punya mental,
15:03dia punya fizikal dia.
15:04Sampai,
15:05aa,
15:06doktor scan,
15:07rahim saya dah tak boleh nak support nutrition ke,
15:09aa,
15:10ke baby.
15:11So, mungkin daripada 35 weeks tu,
15:12yang saya dapat tahu tu,
15:13mungkin,
15:14dah lama,
15:15aa,
15:16rahim saya tak dapat nak support dia.
15:17So,
15:18dalam masa proses dia dalam perut tu kan,
15:20dia dalam,
15:21aa,
15:22apa nak orang kata?
15:23Haa,
15:24developing kan dia tengah develop,
15:25Haa,
15:26dia tengah,
15:27berkembang dalam tu.
15:28Haa,
15:29dia mengecut sebab dia tak dapat,
15:30aa,
15:31nutrisilah,
15:32aa,
15:33makanan secukupnya,
15:34dekat badan dia.
15:35Haa,
15:36sebabnya,
15:37aa,
15:38ada doktor cakap,
15:39aa,
15:40dia kata,
15:41mungkin,
15:42sebabkan rahim kita dah tak support nutrition tu,
15:43baby mengecut,
15:44ada kemungkinan,
15:45sebabkan stress, aa,
15:46benda tu jadi terputus lah.
15:47Haa,
15:48lepas tu kita,
15:49bekerja lebih masa, aa,
15:50aa,
15:51dia,
15:52aa,
15:53so,
15:54how old is Rara right now?
16:02Dia umur berapa tahun ni?
16:03Haa,
16:04aa,
16:05bulan,
16:06sebelas.
16:07Sebelas.
16:08That,
16:098 bulan.
16:108 bulan sahaja.
16:11Haa.
16:12Untuk,
16:13ibu bapa kat luar sana,
16:14mungkin yang tengah melalui perkara yang sama,
16:16ataupun,
16:17ibu ada apa-apa yang,
16:18apa-apa yang,
16:19apa-apa yang,
16:20apa-apa yang,
16:21apa-apa yang,
16:22apa-apa yang,
16:23apa-apa yang,
16:24apa-apa yang,
16:25apa-apa yang,
16:26apa-apa yang,
16:27untuk kuatkan semangat mereka,
16:28you know?
16:29Haa,
16:30macam saya,
16:31kalau macam,
16:32dapat tahu,
16:33yang anak kita ada,
16:34simptom,
16:35simptom yang kita tak boleh nak terima,
16:37aa,
16:38aa,
16:39kita boleh,
16:40orang cakap,
16:42belajar redo.
16:44Aa,
16:45aa,
16:46saya rasa macam,
16:47anak yang tak cukup sifat ni,
16:48membebankan kita.
16:50Tapi,
16:51kalau fikir balik,
16:52fikir balik dalam-dalam,
16:53sebenarnya,
16:54dia adalah rezeki kita.
16:56Dia amanah,
16:57dia,
16:58dia yang akan tarik kita ke pintu syurga.
17:00Itu dah,
17:01tiket lah orang cakap.
17:02Tiket kita,
17:03sebagai ibu,
17:04aa,
17:05ibu bapa,
17:06untuk pergi ke syurga lah.
17:07Aa,
17:08aa,
17:09aa,
17:10aa,
17:11aa,
17:12aa,
17:13aa,
17:14aa,
17:15aa,
17:17ibu,
17:18wawah,
17:19Rara,
17:20thank you so much
17:21for coming,
17:22aa,
17:23kita sangat hargai masa korang,
17:24untuk datang sini dan
17:25komisi pasal ni,
17:26aa,
17:27Saya,
17:28do akan,
17:29supaya korang,
17:30aa,
17:31aa,
17:32berjaya, aa,
17:32dengan apa yang korang nak dalam hidup ni and,
17:34aa,
17:35aa,
17:36I pray for,
17:37for Rara also,
17:38aa,
17:39and to have the best people around her, to support her, to grow up, to become the best that she can be.
17:44Yeah, I wish you guys all the best, and thank you so much for coming.
17:51Sama-sama, because we have to meet our people.
17:54Yes, of course, of course.
17:55Bye!
18:09Sama-sama
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